Xey/Xem They/Them. Was grumpy, now angry. 🔞 Queer bi bear-dyke. Survivor of life. FND, CPTSD, ADHD, ME/CFS, hEDS, Dyspraxia. I add alt text 👀
£YesCaptain
Sep 27, 2020 • 4 tweets • 2 min read
@BlindFury_5428 "Finally, there's a braille smartwatch. The Dot Watch is bringing modern innovation to the visually impaired. The face features 24 shifting dots. That are powered by magnets and electrical signals. And linked to a smartphone via Bluetooth."
(cont)
@BlindFury_5428 To display time, texts and app notifications. "Dot" not only revolutionises bulky and expensive machines but it provides the freedom of a wearable many sighted people enjoy. An estimated 285 million people worldwide are visually impaired. The company hopes to expand its products
Sep 24, 2020 • 13 tweets • 3 min read
CW: Suicide
This is so right on. Having just been through a suicide attempt in the midst of everyone "talking about it" around Suicide prevention week, I can confirm it's a useless platitude and pretty crap advice.
Without exception, my close support network are mentally ill or/and disabled. Most have had MH crises in the last year (surprise). Most have semi-regular issues with ideation. We understand it and each other and we can talk about it in consensual way.
Sep 20, 2020 • 6 tweets • 2 min read
Some feelings re GRA news: I'm frustrated, upset, and aware that it feels likely but it's not an official statement. I'm mostly relieved there's no roll backs. The terfs have done damage with disinformation but that's all it is. Self ID is still a thing. This was about a document
I'll link helpful takes rather than rehashing, but essentially self ID gives us the ability to change almost all of our documents. This was about changing sex markers on birth certificates - important, but only in very specific places. We still have access everywhere we should.
Aug 26, 2020 • 10 tweets • 2 min read
Thread CW: weight BMI diet EDs abuse
I had a frustrating fat convo with the GP. She's starting to feel over inquisitive about my GIC stuff, not inappropriate yet but the signs are there.
I asked to weigh myself because I have an Endo appt next week and I don't own scales
CW weight
She asked if I need to be a certain weight, I explained it's based on BMI < 30 which is bullshit bc BMI is bullshit.
-Hm. Well there's different plans we can try...
-No.
I'd literally just got done telling her that I didn't eat for 3 days because of pain+fatigue etc
Aug 24, 2020 • 4 tweets • 2 min read
CW: DNR Eugenics
I've been talking about this for ~5 months and I just had someone I see DAILY tell me "I didn't know" and "they can't do that" and "at least they found out quickly"
This was reported by the BBC in APRIL. How many people could've been saved if you cared?
CW: DNR Eugenics
An April article. When this came out disabled people were begging for our lives. Mainstream discourse was "Ofc we should use triage methods for prioritising care, that's just logical."
You enabled this. bbc.co.uk/news/amp/uk-en…
Aug 20, 2020 • 13 tweets • 3 min read
CW: Describes experiencing triggers as someone with PTSD/C-PTSD, references to abuse.
Really good thread regarding the casual use of the word triggered by "allies"
I'll probably thread later when I've clarified my thoughts through the brain fog
Still thinking.
I've been in what feels like a tunnel of triggers for the last 6 months. I've spent more of lockdown dissociating than lucid. I've lost so much time. I've sometimes forgotten to eat for 3 days. This is my existence
2/
Jul 12, 2020 • 11 tweets • 3 min read
THIS. Don't be so afraid to call out the shitty behaviour! BE the honest friend. Remind your friends of their worth! I refuse to budge an inch when they're not being treated as well as they should be.
I recently/am saving (her words) friend from 34yo manchild w anger issues. HE SHOOK A LADDER SHE WAS ON BC RAGE! and most importantly, her dog dislikes him. He moved in not long before pandemic and she couldn't see the signs. Red flags look like flags through rose tinted glasses
Every time she tweets I go through a very similar experience
I get angry
I get upset
I get sick
Really physically sick. I vomit, I get tremors, palpitations, even passing out. My body goes into shock /1
It triggers my CPTSD. I have flashbacks, nightmares, dissociative episodes, hallucinations. I relive my trauma over and over sometimes for days. The physical repercussions can leave me bed bound. The trauma can and has stopped me asking for help in crisis /2
Jul 5, 2020 • 15 tweets • 4 min read
For those who are new, Archie is a NINE year old lurcher rescue who came home with me just over a year ago. He's my support dog and we've been training in service tasks for six months. He's taken to it brilliantly and loves his work.
He picks up after me.
He empties the washing machine and moves the laundry basket from room to room for me.
He helps me undress.
During CPTSD flashbacks, dissociations, panic attacks he grounds me physically by leaning against my chest, forcing me to control my breathing.
Jul 5, 2020 • 4 tweets • 2 min read
I got to do some distanced dog training with Archie today! He was terrified and cowering from this scooter initially, we did two sessions with it pre-covid, and one session today. THREE SESSIONS. He's the most incredible dog my trainer has ever known.
[video from behind a white person in a dark hoodie and jeans on a beeping white mobility scooter with a hi-vis vest tangled in the seat. A leash hangs loosely from the back of the seat to Archie the wonder support dog calmly walking beside the scooter as they go down a sidewalk]
Jun 29, 2020 • 5 tweets • 1 min read
It's my first GIC appointment today. I've been waiting ~3.5yrs and now it's here I'm in total shock. It feels unreal that I'm about to take the next step in becoming me.
On Thursday I got a voicemail that I'd made it to the top of the wait list. I spent most of it crying with shock and joy. I called back on Friday to make the appointment. The appointment is today. I feel entirely unprepared and like I have emotional whiplash.
Jun 26, 2020 • 8 tweets • 2 min read
Jfc, don't scare me with these trending names! Not this year!
Anyway. Imo this feels like distraction. Wtf are we celebrating another a cis white man rn. Ageism is 💯 an issue that needs addressing, but it doesn't effect men (esp cis white) in the way it does women. Esp BIPOC women. Moira Stuart anyone? theguardian.com/media/2009/feb…
Jun 16, 2020 • 5 tweets • 1 min read
Some rando just came and knocked on my door and asked if I wanted my grass cut?? Archie was going wild and I couldn't hear him through the door, so I opened it a crack and and he just kept repeating himself. He def wasn't from the council.
I just sort of blurted out that I'm in isolation and can't be around people and shut the door. I'm really freaking out and I'm sure it's fine, and he was just some dude looking for work but also there was a murder down the street a matter of months ago 😖
Jun 10, 2020 • 4 tweets • 1 min read
I don't have words for how hurt and physically ill I am after reading her diatribe. Do NOT read it. I'm pretty thick skinned and well prepared for her bullshit and I'm still sobbing writing this.
I keep trying to add to this and stopping to cry more. It's like she's finally knocked the wind out of me. I feel like giving up.
Jun 8, 2020 • 11 tweets • 3 min read
As a trans masc enbie I encourage you to read. Every time I interact with my GPs I'm told I must use my "real" name. They remember my support dog's name+pronouns but not mine
[CN for the whole thread for discussions of medical transphobia, structural transphobia, and cancer]
To add, I see them once a month for a decapeptyl injection to stop my excruciating periods. This has the added bonus of helping my dysphoria immeasurably. I've been using them for 6mo after which they advise low grade HRT to protect bone density
