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Jessica Taylor-Bearman Profile picture
Jessica Taylor-Bearman
@jayletay
Author of A Girl Behind Dark Glasses and A Girl in One Room. and A Girl Beyond Closed Doors Winner of Best Non-Fiction at The People’s Book Prize She/her
Apr 4 • 8 tweets • 2 min read
What you should know (A THREAD)

I became ill with M.E. at 15, due to a virus. I disappeared from my life.

Since 2006, I have spent 1825 days in hospital.

I was bed bound for 12 YEARS and housebound for longer.

I've had 4745 blood thinning injections. (1)

#PwME #MedTwitter I was tube fed for 2 years.

I was mute for 2 years.

I couldn't move for 4 years.

I've been shouted at for not getting better quickly enough and "ruining recovery statistics"

I've suffered with severe post exertional malaise with anything I do.

(2)
Sep 18, 2020 • 6 tweets • 3 min read
So we are in the second wave of the virus... people are terrified and moaning at the very thought of a second lockdown. It has already caused such detriment to people’s mental and physical health... BUT... I’ve been in ‘lockdown’ for over a decade... All due to my chronic health condition. I was bed bound for over ten years and I’ve been mainly housebound for a further four. People have called lockdown a ‘prison’... but that prison has been my life... my entire world for ALL of my adult life