Iatrogenic harm in FND – new review article @Brain1878 very much the work of Caoimhe McLoughlin – a short thread. 1/ academic.oup.com/brain/advance-… Iatrogenic harm means harm arising from medical care. There has been progress with FND in terms of diagnosis, treatment and stigma but we still have a long way to go. We identified 8 sources of iatrogenic harm 2/

"Stigma in FND" led by @dr_caoimhe_mc - new in Clinical psychology review.

Stigma remains a huge problem for people with FND, which we need to understand to help overcome it

Caoimhe and I wrote this 🧵on her massive effort. Free download to 15.8.24 1/ authors.elsevier.com/c/1jIFs~0r1w3Sj
This is the first systematic review describing how stigma occurs across the full spectrum of FND symptoms, synthesising viewpoints of individuals with FND, their caregivers, professionals, and the general public. 2/

Pleased to announce a new FND pathway for Scotland organised by NHS Scotland Centre for Sustainable Delivery. @NHSScotCfSD
. Thread 1/ nhscfsd.co.uk/media/zt0h0s0k…
The Neurology Specialty Delivery Group @NHSScotCfSD focuses on adult neurology services They identified FND as a common condition in neurological practice, where a pathway could give useful guidance. They’ve already done a headache pathway. nhscfsd.co.uk/our-work/moder…

‘Incongruence in FND - time for retirement’ - my new short neuromythology paper for @PracticalNeurol - short thread 1/



FREE download link here pn.bmj.com/content/early/…
bit.ly/48RQANO
The idea that you can diagnose a functional movement disorder because it’s ‘incongruent’ with other neurological conditions or with the laws of physics or anatomy has been around for decades 2/

FND thread collection from this account. Went back and chose a few I've been personally involved with- some based on our 10 myths of FND paper. 1/

https://twitter.com/jonstoneneuro/status/1268626216040501252?s=20

FND is a diagnosis of inclusion. We covered some of the positive diagnostic features of FND in a BMJ review in 2020.

https://twitter.com/jonstoneneuro/status/1318865674199027712?s=20

‘Why FND is not Feigning or Malingering’ - our new @NatRevNeurol review and synthesis - with @M_Yogarajah and Mark Edwards nature.com/articles/s4158…. a thread… 1/ Health professionals have found many ways to ignore people with FND over the years including ‘The diagnosis must be wrong’ and ‘It’s not my specialty – go see someone else’ – but the most pernicious has been ‘its probably just a form of feigning’. 2/

NEW! Neurosymptoms FND Guide Formulator - a new tool for people with FND on the neurosymptoms.org website. This thread explains why we hope it will help patients and clinicians make sense of FND and improve communication. formulation.neurosymptoms.org . 1/… The FND formulator is designed to:
✅Help you make sense of your symptoms
✅Understand which of your conditions are functional disorders
✅Think through potential causes and triggers
✅Prepare for a healthcare appointment
✅Communicate better with healthcare professionals
2/…

Just in time for FND Month - our review of FND for @lancetneurology led by @FNDSociety president @MarkHallett007 includes functional cognitive disorder and persistent postural perceptual dizziness (PPPD). Free link (until 1.6.22) in next item in thread 1/
thelancet.com/journals/laneu… FND has come a long way over the last 20 years. Lancet Neurology asked us to take stock of what is now a rapidly expanding field. Free link until 1st June 22 here - authors.elsevier.com/c/1evn45FFzKqo… 2/

Functional tics. Spotlight on a new page/factsheet for the updated neurosymptoms site/app co-written with Isobel Heyman @GreatOrmondSt , @hedderly_tam, @ChristosGanos and other colleagues. Thread...1/ neurosymptoms.org/en_US/symptoms… Functional tics have their own distinctive clinical features as well as some features that overlap with Tourette syndrome. Clinicians around the world have seen a large increase in people with this problem in the last couple of years 2/

Today we are launching the new neurosymptoms.org website and app - now named Neurosymptoms FND Guide. This thread takes you through the new features. I hope you like it! Its at the same address 1/ I started neurosymptoms.org in 2009, frustrated that there was literally NO information for my patients with FND online Since then, the FND landscape has changed dramatically. We have many FND organisations and from 2019 @FNDSociety for health professionals. 2/

FND in the Emergency Department. A new review for @AcademicEmerMed with Sara Finkelstein, Miguel (ED) and Achelle (Neuro) Cortel-LeBlanc. Open access - onlinelibrary.wiley.com/doi/full/10.11…. A quick thread , especially for ED folks 1/.. FND is one of the commonest neurological problems in the ED. At least 10% of all seizures in the ED and around 50% of ‘status’ presentations. 9% of all stroke presentations in London. 9% of all acute neurology admissions in NZ. 2/

"Ten Myths about FND" just out in Eur J Neurology @SarahLidstone @rmmaraujo, myself and @basbloem @EANeurology. People with FND come up against a lot of these during diagnosis and treatment. 1/ onlinelibrary.wiley.com/doi/epdf/10.11… Functional Neurological Disorder is still emerging from a long period of scientific and clinical neglect. Many clinicians haven’t caught up with recent advances in practice, research or attitudes 2/