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Natasha Lipman Profile picture
Natasha Lipman
@natashalipman
Host of The Rest Room Podcast. Journalist (former BBC) writing about chronic illness on Substack. Content Lead @visible_health. Learning Yiddish.
Nov 30, 2022 • 10 tweets • 3 min read
One of the things I struggle with when I'm having a fatigue flare up is the impact it has on my #EDS symptoms: less movement/strengthening = more pain & injuries.

I've been having a hard time not getting frustrated by this, so I wrote a little "Agony" Aunt letter to @jdibon. 🧵 I wanted to know how can I balance the substantial change in capacity and respecting the extra rest and time in bed that my body needs with the things I know I need to do to manage my EDS issues.
Nov 25, 2022 • 17 tweets • 4 min read
It's arguable that the Beighton Score is at the heart of the hEDS diagnostic criteria - but is it a tool that's fit for purpose?

How did it even come to be used. The history may surprise you. Buckle in for a little medical history trip.

A 🧵 from my talk with @SabeehaMalek. What is the Beighton Score?

It's a clinical tool that assesses patients for Generalised Joint Hypermobility (GJH) - a term used to describe anyone that has a widespread presentation of joint hypermobility across their entire body.