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https://t.co/IkFg37MLqH is the social network for people with multiple sclerosis. Weekend tweets come from our MSer Takeover.
Feb 21, 2022 10 tweets 3 min read
I don't need to use a mobility scooter, my mobility is actually pretty good - in bursts. If you saw me walking down the street you probably wouldn't know there was anything going on. You might just think I'm an ignorantly slow walker with a slight limp leaving the pub. I didn't need to use a mobility scooter today. I could have stayed at home and rested my stiff, painful legs: a result of yesterday's swim. I didn't need to use a mobility scooter today.
Aug 1, 2021 4 tweets 1 min read
No disrespect to anyone who embraces it, but I've always shied away from the "I have MS, but MS doesn't have me" statement. I prefer "I have MS, but MS IS NOT ME". There's a qualitative difference, I think. I mean, one look at my lesion ravaged MRIs, and the accessories of my MS that adorn my space (mobility aids, reachers, etc.), and it's clear that MS has me. However...
Aug 1, 2021 4 tweets 1 min read
The #sicknotugly trope is a bit problematic, but you probably get my gist. Just because we are chronically ill doesn't mean that we have to look haggardly or wretched. Image And here's where the ableism creeps in. If ppl with chronic illness are inherently haggard/wretched/assumed to be all the bad things, how might those assumptions impact their...
May 8, 2021 6 tweets 3 min read
Wanted to share more of my journey & invite you to share yours. Early in my #MultipleSclerosis diagnosis,looked for local support groups. MS Society. All->Travel, Arrangements, Drug Ad Sponsors,Adherence Guidelines. I wanted none of that. Others desperately Needed that. It’s OK. Each of Individuals is Our Own Person.
Genetics
Health
Nutrition
Socialization
Activity
Purpose
Love
Preferences
Dislikes
Distastes
Predjudice
Greed
So much more.
#MultipleSclerosis
Apr 12, 2020 19 tweets 4 min read
Time for some career chat (a thread again) - I still work full-time and I hope that this crisis shows that with the right adjustments I can continue to do so even if travelling to the/an office every day becomes unfeasible... I have a PhD in Civil & Environmental Engineering (2013) and have worked in Geoscience Research for the British Geological Survey (2013-2014) and Heriot-Watt University (2015-2018) before changing career to Researcher Development in Nov 2018...
Jan 19, 2020 5 tweets 2 min read
Good Morning Shift MS followers! First cup of coffee, peruse Twitter. Check Email, then do a little @FishdomOfficial or Clockmaker. That match 3 thing...ding 🔔 ding🔔 prize 🥳 Try out new headphones 🎧 listening to political shows Fred gets weary of, Glatopa shot,Meds,breakfast How’s your morning going/gone?
Do you wake up too, doing a Neuro self exam?
Right leg ✅
Left leg ❌ wait, wiggle it around, ok 👌🏽✅
You know the drill.
Eyesight, balance, strength.
Sleep evaluation...not long enough or deep enough.
Pain? Don’t get me started 🤦‍♀️