Pediatrician, healthcare & disability advocate, writer, artist. #hEDS and friends. Good medicine starts with #empathy. Opinions my own. She/her.
Jan 15, 2023 • 15 tweets • 6 min read
Many people asking recently "why is an #hEDS diagnosis important if there's nothing I can do about it?" There's a simple answer and a complex one. Simply: because that's not TRUE - there's LOADS we can do about it. A brief 🧵
1. Knowledge is power. Knowing the answer that connects the dots for your symptoms helps put YOU in control of your health. Its also extremely validating to have answers.