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skye Profile picture
skye
@stimmyskye
manic trash kobold. lap fiddler in training. sleep enthusiast. disability punk. bad music opinions. trans joy. vi/vim (en), el/ems (de)
Mar 13, 2022 • 4 tweets • 1 min read
I am fully losing my shit trying to sand / file / scrape this piece perfectly plane. it has to be PERFECT I just don't know how to achieve that because the art of filing an area perfectly plane by hand is something I will never master my disassembled and cut open electric violin. I was considering a plane (the tool, somehow the word "plane" means a trillion different things) but the piece isn't large enough and a decent plane costs at least 70 € for the tiniest version, more like 100+ for a regular one and just. no.
Mar 12, 2022 • 14 tweets • 2 min read
Einkaufen wenn du arm bist macht echt gar keinen Spaß mehr. Alles ist so krass teuer auf einmal. Tüte Chips ist jetzt 70 Cent statt 40. Klopapier kostet 20% mehr. Schlagsahne einfach mal mehr als doppelt so teuer. Und Grundsicherung? Immer noch 150 € für Lebensmittel pro Monat. Ich weiß echt nicht, was ich da noch machen soll. Von Strompreisen reden wir mal gar nicht erst.

Ohne dir zusätzlich irgendwo Geld zu besorgen - was verboten ist und als Betrug zählt - kommst du damit einfach nicht mehr durch.
Mar 12, 2022 • 17 tweets • 9 min read
I am fully living the trash lifestyle by now.

this is not my trash. this is my collection of free plant containers, food containers and storage for various other things.

no plastic container gets thrown out without being reused at least once. two large bags containing various empty plastic containers a you all know the problem: plastic lasts decades, and yet most of it is single use.

i say fuck that. I reuse EVERYTHING. my entire household is being taken over by "single-use" plastic containers - and they last, they are practical, and they are FREE.

let me show you.
Mar 11, 2022 • 31 tweets • 12 min read
I know you've all been excitedly awaiting....

PLANT STATUS!

we've had very spring weather. ice cold nights, pleasant days. the plants know what's up.

these are the lupines, wasting no time at all. lupines in a clay planter, ... I'm raising seedlings indoors at the moment. this is my bedroom windowsill. an old CD stand that's now ...
Mar 10, 2022 • 4 tweets • 1 min read
I managed to get my doctor to help me and now I have new meds. go me! the last few days were a severe health crisis again, same thing that put me in hospital last time. but this time I knew what was coming so instead of taking every medication that I have in an uncontrolled fashion I took only a few and went to a doctor.
Oct 31, 2021 • 9 tweets • 2 min read
*muffled screaming* my nerves I have 3 days left to clean the living room and too much to do in addition to that and oh yeah still doing medication withdrawal and in a depressive episode
Oct 30, 2021 • 6 tweets • 1 min read
the problem is that "men" and "non-men" aren't groups that exclude each other.

there is overlap in multiple ways. there is the perception of others - who is seen as a man and who isn't? this is not always easy to answer and often depends on circumstances. there is an insecure self perception - who sees themselves as a man and who doesn't? this, too, can be complicated, and is often painful: men whose dysphoria tells them they're women. women whose dysphoria tells them they're men. people who simply aren't sure.
Oct 29, 2021 • 8 tweets • 1 min read
it's so nice to have a usable computer again. it's not fast, it's not fancy, but i can access all my data whenever i want! i have forgotten how to use a physical keyboard compose key setting is not working but other than that
Oct 29, 2021 • 6 tweets • 2 min read
I don't even know how to process all of this

So 2 days ago my electric bicycle was stolen in spite of being 2 years old, dirty, badly repaired, and having a 80 € abus lock. They just took an angle grinder

My specific mix of disabilities means ebike is my only way to get around the big fat chain links hav... The bike is my wheelchair, my car, my cargo transporter. My only alternative is my beloved manual wheelchair which I sadly don't get far with & can't transport anything on

With bike i can do it all. Transport everything. Go everywhere. Help friends and strangers with everything
Sep 23, 2021 • 11 tweets • 3 min read
okay so as some people don't seem to know this is happening:

when someone replies to one of your posts asking you for your paypal / venmo / etc, there are bots that will IMMEDIATELY clone your account and reply with a payment link. they block your account in the same second. tweet by anonymised account: replying to @stimmyskye "Y because you're blocked, you'll see that there's 1 reply to that question but the reply tweet won't show up.

if you see a ghost reply to a comment like that, it's almost always a scam bot.

they delete as fast as they clone your account. you won't even know it happened.
Sep 21, 2021 • 9 tweets • 2 min read
self diagnosis was the only way I knew to ask for specific meds, and to self medicate with OTC and supplements, and THAT was how I went from needing a wheelchair to get from bed to toilet to... well I haven't used my wheelchair in almost 2 years.

clearly, I've harmed myself. I'm tired.

I have never met a single doctor who actually knew *anything* about my underlying condition (MCAS).

I have met plenty of doctors who didn't believe me that it even exists.

There is precisely 1 place in germany that offers MCAS diagnosis and I can't get there.
Jul 13, 2021 • 9 tweets • 2 min read
every time one of these "1 like = 1 answer" images goes around I get to unfollow so many people because nobody cares about access! you don't care about me, I don't care about you either, goodbye I know the questions don't all fit in the alt text! it's better to write them out as you post the answers anyway, because nobody will keep scrolling up and down to see what you're even answering.

but you're not even making the slightest effort.
Jul 12, 2021 • 7 tweets • 2 min read
drugs

/

I would like to add that opiates are a very good option for pain relief, and that the fact that they also make you high is in many cases a feature and not a bug.

if you're in immense acute pain, that high does actually help you through it. I'd also like to add that growing opium poppies in your garden is something that people have been doing for millennia, because it's easy, it works, it's quite safe (it's difficult to dangerously overdose oral opioids by accident) and it's, for some fucking reason, illegal.
Jul 11, 2021 • 4 tweets • 2 min read
somehow I have to come up with around 100 € to have my fiddle 🎻 adapted to my disabled playing style sooo please consider purchasing my wares if you buy multiple things I am happy to give discounts or add surprise items. I'm currently not making the stimmy bracelets (sorry) because my workspace is a mess and half the stuff I'd need for those is buried where I can't reach it and I HAVE to tidy the living room first
Jul 11, 2021 • 5 tweets • 1 min read
this is a sign that your natural circadian rhythm does not correspond to the schedule externally imposed on your body and if you keep going like this you'll ruin your health permanently and the fact that you've got no choice means capitalism is killing you ✨ take it from someone who did ruin their health permanently in exactly this way and is now unable to work or do their favourite hobbies forever ✨
Jul 11, 2021 • 4 tweets • 1 min read
Ich mein, wenn du das schon so sagst Auch immer faszinierend wie entgenderte Sprache den Bedürfnissen von Behinderten entgegengesetzt wird, als ob trans Personen nicht überdurchschnittlich oft behindert wären
Jul 3, 2021 • 4 tweets • 1 min read
the voice part for that doctor who doomsday song makes a reeeeallly nice violin song 👀 I mean when I try it that's just horrific, but played someone who CAN actually play it would probably sound like a dream soooo pretty. my attempts are starting to vaguely sound like this song but oooooof. long way to go
Jul 3, 2021 • 22 tweets • 3 min read
Leute... Bevor ihr ohne Fachwissen mutmaßt, dass es doch nicht so schwer sein kann, Kunststoffprodukte durch Alternativen ohne Kunststoff zu ersetzen, solltet ihr euch klarmachen, warum Kunststoff so universell eingesetzt wird:

Weil es ein verdammt guter Werkstoff ist. Viele Kunststoffe

- sind problemlos wasserfest, es gibt aber auch wasserlösliche Kunststoffe

- sind komplett ungiftig und hypoallergen

- sind unheimlich stabil, aber immer noch flexibel, und lassen sich an fast beliebige Anforderungen anpassen

- sind popelbillig
Jul 2, 2021 • 7 tweets • 4 min read
plant status

I never post plant status anymore because... well.... the balcony belongs to the plants now. it's completely overgrown, ...Image I just... I still need to put up the long planters on the other side of the railing but I have no idea how I'm supposed to do that considering that between all the plants you can't fucking move Image
Jul 2, 2021 • 13 tweets • 1 min read
who the fuck invented the alto clef and why did they do such a terrible thing it's just a pair of boobs that tell you how to read notes
Jul 2, 2021 • 5 tweets • 1 min read
for someone who proudly hates the lord of the rings I sure listen to a lot of lord of the rings music but what can I do? the songs are nice. they really are. the books can burn for all I care, the movies should never have existed, but the music can stay