Even now some people w/ these illnesses are still doubted or questioned about anxiety & psychological state.
What were some incorrect, even harmful, past treatments for illnesses?
Jul 11 • 6 tweets • 3 min read
This paper from 1988 notes infection-triggered fatigue syndromes like #LongCovid#MECFS occurring as far back as 1934 (though other papers show they existed long before that). It also discusses some potential hypotheses for cause, which might sound very familiar...
"the presence of muscle damage associated with a disorder of oxidative metabolism"
"reduced respiratory function of the mitochondria"
"A variety of autoantibodies can be demonstrated" (2/6)
Jul 2 • 7 tweets • 3 min read
🧵The 7 questions I submitted for the White House & HHS Call on #LongCovid (7/15, 4pm EST):
1. Why has public health (e.g. CDC) failed to include a warning of long-term effects of #COVID19 in the recommendations for prevention of infection? How will they be held accountable?
2. This is truly a national/international crisis. Will the White House include #LongCovid in its next public address, press conference, etc? The American public is still largely unaware of the extensive damage and the millions of people experiencing it.
Jun 14 • 4 tweets • 3 min read
I have created an email template to be sent to RECOVER@nih.gov expressing concerns about the RECOVER study for #LongCovid. It can be copied/pasted & sent as is (please add your name at the end, after sincerely, before references) or personalized. (1/3)
It is written from the view of any stakeholder, which (in my opinion) means it can be sent by #pwME, #NEISvoid, anyone w/ illness pre-Covid who stands to benefit from this research (even outside the U.S). Also, caregivers/family, researchers, HCPs. (2/3)