Share this page!

Enter URL or ID to Unroll

You can paste full URL like: https://x.com/threadreaderapp/status/1644127596119195649
or just the ID like: 1644127596119195649

How to get URL link on X (Twitter) App

  1. On the Twitter thread, click on or icon on the bottom
  2. Click again on or Share Via icon
  3. Click on Copy Link to Tweet
  4. Paste it above and click "Unroll Thread"!
  5. More info at Twitter Help
Arthur Profile picture
Arthur
@unreal_arthur
ME Patient-ly Waiting for Biomedical Research | Volunteer @WeCrunchME #GreatestMEdicalScandal https://t.co/9VY3sk6fK2
Jun 17 • 8 tweets • 2 min read
1/7 "The APPG held its most recent meeting of the Parliament on Wednesday 14 May. This was the first joint-meeting with the APPG on Long Covid, also Chaired by @JoPlattLeigh MP."
appgme.co.uk/meetings/minut… 2/7 "The Rt Hon @stephenctimms was in attendance for item 1, to outline and discuss the government’s plans to address employment and benefits for disabled people, and concerns held by members of the APPG surrounding the plans..."
Dec 10, 2024 • 13 tweets • 4 min read
1/9 Yes. The MOD have updated their recruitment criteria, here's a thread on the recent changes regarding #MyalgicEncephalomyelitis... it's shocking! 🧵 2/9 The MOD uses the 'Joint Service Manual of Medical Fitness' to determine who is fit and unfit for recruitment. A recent FOl request in October 2024 here, , requested an up to date copy. The MOD replied in November 2024.whatdotheyknow.com/request/jsp_95…
Dec 2, 2024 • 13 tweets • 4 min read
1/12 @SNEEICB_WS @SNEEICB_IES @SNEEICB_NEE Suffolk and North East Essex (SNEE) Integrated Care Board (ICB) is looking to create a combined #MyalgicEncephalomyelitis & #CFS and #LongCovid service, , here is a thread on the @DWPgovuk #statxplore #PIP data 🧵 find-tender.service.gov.uk/Notice/035796-…Image 2/12 The data below is from April 2013 to July 2024. Clearances means processed applications (Awarded + Disallowed). Enhanced = higher rate | Standard = lower rate. The DWP calls ME "Chronic fatigue syndrome (CFS)" and Long Covid "Coronavirus COVID-19"
Sep 29, 2024 • 10 tweets • 3 min read
1/6 Thank you for the interest in the DWP's PIP data's recent reclassification of ME/CFS from Musculoskeletal to Neurological. I've just discovered how to use the DWP's 'Stat-Xplore' and have found the ME/CFS and Long Covid data interesting... see graphs below! 📈 2/6 Here is ME, or as the DWP calls it 'Chronic Fatigue Syndrome'. Looks like there has been a recent uptick in 'PIP Clearances' Image
Sep 28, 2024 • 13 tweets • 4 min read
Can someone help me find out how the DWP classifies ME and LC? The IFS, FT, think tanks and journalists are frequently referencing DWP PIP data. The data shows 'Mental and Behavioural Disorders' and 'Musculoskeletal Diseases' as rising the fastest. DWP data misleading? Can someone trawl through the raw data to see? I don’t know if this is the correct place… stat-xplore.dwp.gov.uk/webapi/jsf/log…