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Arthur Profile picture
Arthur
@unreal_arthur
ME Patient-ly Waiting for Biomedical Research | Volunteer @WeCrunchME #GreatestMEdicalScandal https://t.co/9VY3sk6fK2
Mar 20 • 5 tweets • 2 min read
1/3 NEW MOD Updated Guidance Published! The JSP 950 Leaflet 6-7-7 V3.2 Effective from 10 Feb 2026 has updated the guidance from previously stating CBT and GET have 'definite benefit' to now stating the 'most up-to-date NICE guidance' should be followed. Screenshot highlighting differences between old MOD guidance on ME/CFS and updated version with highlights 2/3 The 'The Influence of Particular Conditions on Medical Fitness for Entry' remains unchanged with 'no ongoing symptoms' having 'resolved for at least two years' being the requirement. This essentially means that a full and sustained recovery is required to not be deemed UNFIT. Screenshot of old and new MOD guidance compared showing no changes
Aug 10, 2025 • 6 tweets • 2 min read
“As my daughter died of ME, the state met in secret to blame me”

“Maeve Boothby O’Neill’s mother had no idea she was being accused in private of causing or fabricating the illness that would take her life aged 27”

#MaeveInquest

thetimes.com/uk/healthcare/… web.archive.org/web/2025081005…
Jun 17, 2025 • 8 tweets • 2 min read
1/7 "The APPG held its most recent meeting of the Parliament on Wednesday 14 May. This was the first joint-meeting with the APPG on Long Covid, also Chaired by @JoPlattLeigh MP."
appgme.co.uk/meetings/minut… 2/7 "The Rt Hon @stephenctimms was in attendance for item 1, to outline and discuss the government’s plans to address employment and benefits for disabled people, and concerns held by members of the APPG surrounding the plans..."
Dec 10, 2024 • 13 tweets • 4 min read
1/9 Yes. The MOD have updated their recruitment criteria, here's a thread on the recent changes regarding #MyalgicEncephalomyelitis... it's shocking! 🧵 2/9 The MOD uses the 'Joint Service Manual of Medical Fitness' to determine who is fit and unfit for recruitment. A recent FOl request in October 2024 here, , requested an up to date copy. The MOD replied in November 2024.whatdotheyknow.com/request/jsp_95…
Dec 2, 2024 • 13 tweets • 4 min read
1/12 @SNEEICB_WS @SNEEICB_IES @SNEEICB_NEE Suffolk and North East Essex (SNEE) Integrated Care Board (ICB) is looking to create a combined #MyalgicEncephalomyelitis & #CFS and #LongCovid service, , here is a thread on the @DWPgovuk #statxplore #PIP data 🧵 find-tender.service.gov.uk/Notice/035796-…Image 2/12 The data below is from April 2013 to July 2024. Clearances means processed applications (Awarded + Disallowed). Enhanced = higher rate | Standard = lower rate. The DWP calls ME "Chronic fatigue syndrome (CFS)" and Long Covid "Coronavirus COVID-19"
Sep 29, 2024 • 10 tweets • 3 min read
1/6 Thank you for the interest in the DWP's PIP data's recent reclassification of ME/CFS from Musculoskeletal to Neurological. I've just discovered how to use the DWP's 'Stat-Xplore' and have found the ME/CFS and Long Covid data interesting... see graphs below! 📈 2/6 Here is ME, or as the DWP calls it 'Chronic Fatigue Syndrome'. Looks like there has been a recent uptick in 'PIP Clearances' Image
Sep 28, 2024 • 13 tweets • 4 min read
Can someone help me find out how the DWP classifies ME and LC? The IFS, FT, think tanks and journalists are frequently referencing DWP PIP data. The data shows 'Mental and Behavioural Disorders' and 'Musculoskeletal Diseases' as rising the fastest. DWP data misleading? Can someone trawl through the raw data to see? I don’t know if this is the correct place… stat-xplore.dwp.gov.uk/webapi/jsf/log…