Our #qualitative study exploring the experiences of people involved in #participation and #involvement for the design and delivery of #CAMHS has just been submitted for publication, but we didn't want to wait to share some key findings and resources with you!
Following a #research and service development meeting to design a new staff-based intervention for inpatient #CAMHS (Follow @StudyTric and me for updates in due course), we asked those present to tell us about their experiences of being involved.
In line with @NIHRinvolvement guidelines, our group included all those with a stake in the intervention and lived experience of the context: young people, family members and frontline clinicians all sharing their expertise alongside researchers and clinical academics.
Previous experiences drove hopes + fears related to involvement. Participants felt like they were 'all in the same boat' - sharing a sense of community + respect, working for a similar aim, alongside 'wearing different hats' drawing on various facets of their experiences + roles.
Individual experiences varied, with a real richness in the data. We have submitted the paper for publication + can share in due course. It's been a positive collaboration between @OfficialUoM @ManMetUni and @PennineCareNHS led by myself, @JasmineHearn1 + a wonderful MSc student.
We have these photos available as a pdf and jpegs for digital sharing and formatted as a three-fold leaflet for printing- more than happy to share. @HealthyYM @McPinYPNetwork @42ndStreetmcr @GMiTHRIVE @AFNCCF @RollercoasterPS @WeCanTalkCYPMH @CAMHsBright
It's sparked more of an interest for me in understanding how to implement effective #involvement. Exploring more fully the experiences of those that don't want to do this, understanding when involvement doesn't work + why. Who is excluded + how can we make it better for all.
....+How we can create spaces where clinicians' individual practice is shaped by meaningful involvement, education + challenge from those with lived experience of services. Myself and @beth_1day have been working on this and hope to share and do more in due course.
We have now uploaded the electronic sharing version onto ResearchGate. We also have a three-fold version for printing as a leaflet so please ask if you want that. We will share the paper once published. researchgate.net/publication/34…
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