Thread by @ChandraPasma

Update Day 184: The Six Monthiversary of my onset of symptoms.

I'm happy to report that three of us are asymptomatic and Kid 3's cough is so sporadic that she's nearly asymptomatic.

#COVID19 #Longhaulers #LongCovid #ApresJ180 #CovidandKids

I will probably use asymptomatic for a long while rather than recovered, because as we've seen before, being symptom-free now doesn't mean they won't come back. I also remain paranoid about things like rashes & hugely swollen bug bites, although there's no reason to believe...

they're related to Covid. It will just take a while for the anxiety reflex to go away.

As for me, I'm having a really good week, including lengthy periods of the day where I have no symptoms at all and others where my only symptom is tinnitus.

But that's coming off two major relapses in August, and the onset of new symptoms, including chest pain not related to activity. I also had flu-like symptoms over the Labour Day weekend, followed by a migraine on Tuesday.

All of it feels inexplicable - I don't know what made me feel worse that week just as I don't know what made me suddenly feel better this week. But I'm being far more careful this time. Very little physical activity, including no more than 2 10-minute, very slow walks a day.

I want to be able to come back in a month and report that I too am asymptomatic. That probably means strictly limiting my activities on an ongoing basis, but my hope is that doing it now means that I won't have to do it forever.

I realize that having hope of recovery makes me one of the lucky ones. And if I recover, it won't be due to any medical support that I've received. I want to make sure that isn't the case for others who are struggling with #LongCovid. The advocacy continues.