It is with a heavy heart that we learned that Faustine Nogherotto @faustineno passed away yesterday.
Faustine, an upcoming singer, saw her rise brutally stopped by very severe myalgic encephalomyelitis and Sjögren's.
We are torn and reeling from her loss
#pwME #MillionsMissing
Faustine never was able to receive proper medical care for her severe ME, like many thousands in the same situation in France.
She advocated for #pwME until she couldn't anymore. Here is her appearance on a national singing TV show (2016) @Nagui ⬇️
We all felt close to Faustine, and we are immensely grateful for her advocacy.
This moment of grieving is difficult. Our sorrow is mixed with anger. The anger that in France, people with very severe ME are left on their own, the disease is considered psychosomatic, and
that graded exercise is still being prescribed routinely to #pwME.
Faustine won't have to suffer horribly from ME anymore. But how many more will, because their disease, ME, is not recognized in France ?
We hope that you can rest in peace, Faustine. Thank you for accompanying and helping us all these years.
#MillionsMissing #severeME #pwME #MyalgicE #MyalgicEncephalomyelitis
.@MEActNet @OpenMedF @MillionsMissin2 @FinlandMissing @MMissingGermany @MMissingSweden @MillionMissCan @MMissingAus @jenbrea @julierehmeyer
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