I certainly don't disagree with @AdaLovelaceInst's five messages...
adalovelaceinstitute.org/blog/distrust-…
...but a few points of clarification:
1) The #NationalDataOptOut, while it was (cack-handedly) introduced alongside #GDPR in May 2018, had in fact existed since #caredata - when it...
...was known as a #Type2 opt out - in case you were wondering about the derivation of #Type1s.
2) There was no announced date for the "expiration" of #Type1 opt-outs - certainly NOT "June 2021". There's no mention of this in the #GPDPR #DPN issued on...
nhs-prod.global.ssl.fastly.net/binaries/conte…
...12 May 2021, and one has to wonder who suggested this to the authors. And why. (A subtle attempt to 'rewrite history'?)
3) #caredata did NOT "lead to" #Caldicott2; indeed, Dame Fiona's Review predated the scheme by months - and was instrumental in...
assets.publishing.service.gov.uk/government/upl…
...ensuring that patients *did* have a right to opt out. In fact, it was the eventual collapse of #caredata in 2016 that led to #Caldicott3 - though it is now apparent that lessons WEREN'T learned from that debacle. (Or at least, not the right ones!)...
assets.publishing.service.gov.uk/government/upl…
We can certainly all agree on this 👇 though; #trustworthiness is far more than just words.
As Onora O'Neill says, the questions the Gov't & NHS must now answer through their #actions are:
"Are they #competent? Are they #honest? Are they #reliable?"
ted.com/talks/onora_o_…
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