Mind 'for hire'; critical friend to just causes. Currently also @medConfidential; formerly @NO2ID
1 added to My Authors
May 6 • 24 tweets • 25 min read
I see #NHSEx has published the slides from its @HDR_UK “Data Access & Discovery” event, charmingly subtitled “A Forest Through the TREs” - on YouTube, if you want to listen:
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*I thought the phrase was “cannot see the forest for the TREs”, but hey...
Let’s take a look:
One reason we use the category term #TRE to refer to Trusted Research (or any other use) Environments that meet the #FiveSafes is that everyone wants to call their own TRE something different, so no-one really knows what they mean...
May 4 • 8 tweets • 9 min read
Appalling bit of subediting(?) but the article itself lays out both the history and US context of #RoeVsWade and the consequences of overturning it with rather more nuance:
thetimes.co.uk/article/the-ti…
The "right approach" the writer appears to support 👇 is the codification of the #RightToChoose into federal #law - which should have happened decades ago. The major issue being the parlous state of US politics...
Worth noting you can't #volunteer for this trial, but if you are 50-77 & haven't been diagnosed with cancer in the past 3 years, you may be #invited...
The NHS-Galleri™ #screening trial is a proper #RCT, which means half of the 140,000 participants WON'T be tested (certainly not in the initial phase) and NONE will be told whether they have been #tested or not.
Of course if the test indicates *possible* markers for #cancer...
Sep 10, 2021 • 28 tweets • 35 min read
"#Data: a new direction" - a public consultation by @DCMS on "reforms to the UK’s #DataProtection regime":
We're clearly going to be hearing a lot about #LegitimateInterests, as well as #commercial and #public ones. The real question being, how do this Government's interests actually align with YOURS?
18 months after we first pointed out it had to, and over a year since we began requesting it!
Let's take a look...
For starters, it's staggering how little information the register actually contains. Just 18 lines, on 18 data flows or extracts over the past 18 months!
This for what has repeatedly been claimed as a "vital #COVID19 resource"?!
Here's a snapshot of ALL of them 👇
Aug 1, 2021 • 13 tweets • 17 min read
On this I can agree with @Dominic2306, and go further.
#SW1#IT and #IG has been in a parlous state for well over a DECADE, and more.
..of #PersonalData they held. (Initially just the ones containing over 1 million records.)
I'll have to dig up the responses, but I clearly remember only 4 or 5 (out of 24) even had an #InformationAssetRegister, i.e. just a basic list of all the #databases for which they were...
Jul 31, 2021 • 5 tweets • 7 min read
Hmm. So the shadowy #JBC, a part of @UKHSAgovuk (which is, I note, still answering #FOI requests as @PHE_uk 🤔) is now hiring *permanent* staff:
to the review stating they won't be #mandated in early July...
...to @BorisJohnson announcing they WILL be #mandatory for (mostly) young people from the end of September:
If millions fewer young people are doing twice-weekly #tests then obviously those numbers will go down.
And that children are no longer #mixing regularly will have significantly reduced #transmission amongst their own and other age groups, i.e. family members.
...this is 'news', though it's another failure of (public health) comms if folks are being left confused.
More concerning, however, is the implication the #models - which one assumes were those used to predict the effects of re-opening schools - either didn't or couldn't cope...
Let me tell you a tale about #BTECs, which I taught in the early 90s. (Names changed.)
Some of the students I taught General Art & Design (GAD) BTEC also did an A-level or two, but many of them didn't. And far too many of them had already been failed by schools that treated...
...'non-academic' kids as inferior, slow or disruptive. Some of my students did have problems; most often no fault of their own. But they showed up. And together, we learned.
I still remember the 'lightbulb moments' - the pieces & projects when young people found their stride...
Jul 21, 2021 • 13 tweets • 17 min read
There seemed to be some confusion about (the use of) words in @CommonsHealth Committee yesterday morning, so here's a [Thread] to try to clarify.
First "#commercial". It is of course the case that many parts of the #NHS use commercial providers, e.g. of software, whether that...
...is @Microsoft365 for word processing, spreadsheets & e-mail; or IT systems to handle patients' records in hospitals (e.g. @CernerUK) & General Practice (e.g. @TPP_SystmOne, @EMISHealth, @CegedimHS); or software to drive complicated equipment like #MRIscanners, etc.
This is...
Jul 19, 2021 • 6 tweets • 5 min read
The #GPDPR#GPdata upload will still be going ahead, but it will no longer be starting on 1 September 2021 - the programme will have to meet 3 (or 4) #tests first instead:
digital.nhs.uk/news-and-event…
We'll let you do the diff between the "criteria" laid out in the announcement on @NHSDigital website and the "key areas of work" listed in the letter to GPs from @Jochurchill4 this afternoon: