1/ Excerpts from Francis Collins’s (@NIHDirector) speech from the Accelerating Research into Myalgic Encephalomyelitis conference, April 2019. 🧵
As you said, Dr. Collins: “No action, no hope.” (Apr 2019)
bit.ly/mecfsquotes-co… #MECFS #pwME
2/ In March 2017, Francis Collins @NIHDirector and Walter Koroshetz @NINDSdirector had committed to “unravelling the underlying biologic cause(s) of #MECFS as swiftly as possible”. directorsblog.nih.gov/2017/03/21/mov…
3/ “We want to be [the National Institutes of Hope] for ME/CFS” @NIH @NIHDirector #MECFS
4/ “No action, no hope.” — @NIHDirector
#MECFS
5/ “We want to provide the kind of hope for ME/CFS that is attached to action.” — @NIHDirector
So why suspend the #MECFS intramural trial?
Why no new CRCs or set-aside funding?
Why no action to reduce stigma or bias in grant review process, or to educate clinicians?
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