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Spotlighting ideas, news, and research related to the debilitating disease ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) #MECFS | by @winstoncb
Mar 20, 2022 6 tweets 2 min read
1/ While some like Dr. Ian Lipkin are more bullish on there being biological commonalities between #longCOVID (that resembles ME/CFS) and #MECFS, Dr. Maureen Hanson urges caution — and the continuation of dedicated ME/CFS research.🧵 1/ One thing I'd like to caution is the conclusion that common symptoms mean the same underlying mechanism. [Is] Long COVID really the same thing as ME/CFS? 2/ #MECFS #longCOVID #GWI 2/ Many years of study, with more luxurious funding, of Gulf War Illness (GWI) has shown that ME/CFS and GWI are not the same at the molecular level despite considerable overlap in symptoms...
Jan 23, 2022 9 tweets 6 min read
1/ Dr. Peter C. Rowe has been the director of the Johns Hopkins Children's Center Chronic Fatigue Clinic in Baltimore, MD since 1996. He has published over 20 studies on #MECFS and #POTS with a focus on pediatric ME/CFS.🧵
@HopkinsMedicine #longCOVID

Photo credit: @mattrothphoto 1/ "The similarity between these [Long COVID] patients 2/ Preliminary findings show biological similarities between #MECFS and #longCOVID, such as reduced brain blood flow. 2/ "[Both Long COVID and ME/CFS] have the reduction in
Jan 7, 2022 6 tweets 4 min read
1/ Dr. @resiapretorius has found signs of vascular pathology, including microclots in the blood, that could be causing widespread tissue hypoxia — potentially explaining the debilitating symptoms in #LongCOVID, and maybe even #MECFS.

Source: bit.ly/mecfsquotes-pr… 1/ "One of the biggest failures during the Covid-19 pan 2/ #LongCOVID 2/ "Since early 2020, we and other researchers have poi
Dec 7, 2021 4 tweets 4 min read
1/ Dr. Ian Lipkin is internationally recognized in the use of molecular methods for pathogen discovery w/ 30+ years of experience in diagnostics, microbial discovery and outbreak response. He runs the ME/CFS Collaborative Research Center at @ColumbiaMSPH. #MECFS #LongCOVID 1/ "[Regarding] the stigma associated with [post-viral]2/ "We are very concerned that in the process of invest3/ "[Long COVID researchers need] to look up the ME/CFS4/ "This is a plea... for those of you who would like t 2/ On a recent panel, Dr. Lipkin referenced emerging #MECFS biomarkers uncovered by the Collaborative Research Centers, which may be applicable to #LongCOVID.

He also noted biological commonalities he has found between ME/CFS and Long Covid in preliminary analyses.

Related:
Dec 5, 2021 5 tweets 5 min read
1/ Excerpts from Francis Collins’s (@NIHDirector) speech from the Accelerating Research into Myalgic Encephalomyelitis conference, April 2019. 🧵

As you said, Dr. Collins: “No action, no hope.” (Apr 2019)

bit.ly/mecfsquotes-co… #MECFS #pwME “I know that we have, in th... 2/ In March 2017, Francis Collins @NIHDirector and Walter Koroshetz @NINDSdirector had committed to “unravelling the underlying biologic cause(s) of #MECFS as swiftly as possible”. directorsblog.nih.gov/2017/03/21/mov… “You should keep pushing us...
Nov 12, 2021 10 tweets 11 min read
Dr. David Putrino is a physical therapist with a PhD in neuroscience. He runs @PutrinoLab at Mt Sinai, which builds state-of-the-art tools to rehabilitate those w/ #LongCOVID & other conditions. 🧵

bit.ly/mecfsquotes-pu…

@MountSinaiRehab @microbeminded2 #PolyBioPodcast #MECFS “I think it’s really import... 2/ The most devastating words for the severely unwell: “Your lab results look great!”

It means science/medicine has nothing for you… or that your doctor doesn’t even believe your suffering is real.

Dr. Putrino’s perspective brings hope.

#LongCOVID #MECFS #MedTwitter “And it’s crazy to me how m...
Sep 30, 2021 10 tweets 7 min read
At an @MEActNet press briefing back in March, Dr. Anthony Komaroff confirmed his earlier prediction that we had reason to expect some w/ COVID-19 would develop a debilitating chronic #LongCOVID syndrome with symptoms similar to post-viral #MECFS. bit.ly/mecfsquotes-ko…

🧵 "It is not surprising that some [with COVID-19] develop Dr. Komaroff suggested that the underlying pathology of #LongCOVID may be similar to problems that have been observed in #MECFS.

Long COVID researchers can refer to ME/CFS research across the past few decades for a substantial head start. "It’s my bet that Long Covid is going to prove to be