👍🏼Consolidated 🧵of all #LongCovid & #ME survey results HERE for reference. Ongoing survey results will be added here too.
1) Supplement efficacy/tolerability: Tollovid, Ved9, vit B, Niacin, nattokinase, LK, SP, NAC, EGCG, cromolyn, antihistamines
2a) Nattokinase, lumbrokinase, serrapeptase are fibrinolytic supplements that break up fibrin in clots, degrade biofilms, & may even degrade the spike protein.
Results from 2 surveys on general efficacy & dosing in #LongCovid
2b) General Survey results on Nattokinase, lumbro, & SP efficacy in #ME
Decades ago, study found that #pwME have hyperactivated platelets & hypercoagulability. Current studies found similar microclots (tho less severe) in pwME vs pwLC.
3a) General Survey on popular Rx meds in #LongCovid surveyed for efficacy: Paxlovid, beta blockers, statins, Mestinon, Singulair, colchicine, famotidine, H1 blockers.
Scroll both down & upthread here (I kinda messed up thread before, sorry!).
3b) More from General Survey on popular Rx meds in #LongCovid: Ivabradine, LDN, CCBs, Maraviroc, beta blockers, fluvoxamine
This survey is still OPEN. Link in next tweet.
3c) OPEN LINK for general Survey on popular #LongCovid Rx medications. Currently 331 responses!
docs.google.com/forms/d/1yN3JX…
4a) General preliminary survey results on anticoagulants & antiplatelet use in #LongCovid & #ME with strongly suspected or confirmed #microclots.
Since that survey, I wrote a new streamlined & more in-depth survey that's now OPEN: see in next tweet!
4b) New streamlined & OPEN survey on antiplatelet & anticoagulant medications in #LongCovid & #ME patients with suspected or confirmed microclots, hyperactive platelets, or hypercoagulability. Please take this survey even if you already took the above one!
5) Quick Twitter Poll on effects of Nattokinase on menstrual cycle
6) Quick Twitter Poll on High-dose Oxaloacetate (for mitochondrial support) used in both #LongCovid and #ME:
Nattokinase brands, dosing and formulations
Paxlovid vs Tollovid vs V9
Quercetin, Curcumin, EGCG, monolaurin, L-lysine & EBV
Vagus Nerve Stimulation (VNS) and Hyperbaric Oxygen Therapy (HBOT)
Reactivated pathogens in Long Covid and ME/CFS
LINK to latest OPEN SURVEY
Reactivated viruses
MCAS
HBOT, VNS, SGB
Various supplements efficacy, dosing, formulation, symptoms
Specific symptoms helped or harmed with nattokinase, quercetin & curcumin:
Survey details for Paxlovid in Long Covid:
Quick Twitter Poll: Glutathione in Long Covid or ME:
Quick Twitter Poll: Resveratrol in Long Covid or ME:
Quick Twitter Poll (larger sample size than surveys, may include more responses in those with more severe disease): Nattokinase in Long Covid, ME/CFS and Lyme:
Quick Twitter Poll (still ongoing) on Vaccine Boosters (bivalent & Novavax) in Long Covid, ME/CFS & Lyme (6 polls in 🧵). Please note I will be posting a more detailed survey about vaccine efficacy soon, including questions about potential BENEFITS.
More thorough survey results from vaccine impact on those with Long Covid and ME here.
Compare these results with next tweet which examined how SARS-CoV-2 reinfection affected LC symptoms.
How has SARS-CoV-2 REINFECTION affected your Long Covid symptoms?
Example 1: You already had Long Covid from a prior infection, & then you were re-infected.
Example 2: You were vax-injured & later got Covid.
From a total of 1766(!) respondents, here are the final results from our Long Covid recovery survey re: non-pharmacological treatments. A more detailed survey on this topic forthcoming...after a medication/supplement survey to be released Mon/Tuesday.
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