2. Address the poor uptake on Childhood Budgets. Does the @ChildrenON know why there was a mere 22.5% uptake? What are they doing different to ensure success this time around? Otherwise only 135 out of 600 monthly invites will receive cheques.
3. Illustrate the interim plan up to April 2020. Publish a plan that shows high level what's happening between now and April. Show key milestones, and then provide updates on progress. Be transparent on what's happening!
4. Communicate the April 2020 program scope and manage expectations. What precisely will be delivered by April 2020, and what elements will take longer? Most feel @Sflecce and @celliottability responsibilities are longer term, or are they?
5. Make the Ontario Autism Program website the trusted source for info. Trying to keep up on the latest is difficult as info is spread thru listening events or leaked thru social media. This causes confusion and undue stress. Use your website.
6. Address the waitlist(s) issue with greater clarity. I used to check our waitlist position thru regional provider. Who is maintaining "the list" now? Does @ChildrenON have a master list? How can we verify the integrity of the waitlist data?
7. Release a summary of the Ontario Autism Consultation Online Survey results. Final submissions were at the end of May 2019. When can we expect transparency on the survey results?
8. Do not have a permanent autism advisory panel. Unaccountable permanent panels working behind NDAs has been tried before, with bad results for the community. Remember RAPON? You have a public service, enable them.
Full "8 things the government can do to course correct the interim Ontario Autism Program plan" article linked below including why the protests persist.
My holiday reading included @AndrewKavchak’s The Fight for Autism Treatment in Canada. I encourage all advocates to read this book and learn from past attempts to help shape our advocacy efforts most effectively going forward.
Throughout Canada, autism programs are underfunded, limit the amount of services one can receive, reduce services available based on age, impose age cut-offs and have long wait lists.
Many families end up draining their assets and life savings in an attempt to make up the difference. This is an outrageous situation for a country that pride’s itself on its universal healthcare system.
“Note the ministry has asked us not to stray outside of their messaging. (i.e. we would not tell families directly that there will be no service offers through the end of the fiscal year.)”
The documents have infuriated Scott Corbett, an Ottawa father of two sons on the autism spectrum, including one who has been on the waiting list for more than two years.
“Frankly, I find this a complete betrayal of the public trust”
1. $608M wasn't actually spent on services in FY19/20. $174M is tagged as carry forward to this FY for childhood budgets (that's if the OAG okays it). Also, $97M in CBs received does not = spent on services last FY.
2. If the OAG okays the carry-forward budget expense, will the government spend $774M this year ($600M budget plus the $174M carry-forward)? I'll believe when I see it.
3. The $174M unspent last FY is trending higher than the $192M underspend I estimated over the two FYs before the new program is up in 2021. The govt could've reinstated the OAP as the interim plan, put kids in service and stabilize service capacity #AutismDoesntEndAtFord#onpoli
Thread
One year under @ToddSmithPC leadership and we have a 75-83% decrease in the number of children in therapy! The choice to continue @MacLeodLisa's childhood budget scheme as the interim plan has had serious consequences
THREAD:
It’s a disgrace that nearly a year since @MacLeodLisa started her destruction of the Ontario Autism Program that advocates are still protesting for the government to fix this mess.
2/4:
This time the protest was brought to @JR_Ottawa office. Despite nearly doubling the autism budget @ToddSmithPC can’t figure out how to direct the money towards needs based services. Wants to stall until 2021! Parents and advocates are fed up.
2/ By prioritizing system design of the new OAP and delaying services until 2021, @ToddSmithPC has chosen process over people, a terrible decision given the dire straits the @fordnation has put the autism community thru #AutismDoesntEndAtFord#onpoli
3/ Let’s rewind to the beginning of 2019, the problem was the preposterously long wait times to receive autism services.