Discover and read the best of Twitter Threads about #autism

Most recents (24)

Autistic burnout. A really miserable thread but maybe the most important one yet. Please share. #autistic #autism #burnout /1
(I'm serious, by the way. This won't be light hearted and won't be fun either. But it might help.) /2
#autistic burnout is, currently, a strangely under-researched and lesser known aspect of autistic life. Unless you're autistic, if course, in which case you may be living it. And I use 'living' in the broadest sense of the term. /3
Read 23 tweets
Meltdown thread?

Meltdown thread. Let's go. /1
#autistic #autism #AskingAutistics #AutismAwareness
Tonight's stroll through the parks and glades of #autistic life will descend into one of the darker, more chaotic valleys of autism - the concept of the 'meltdown'. This will be emotive for all autistic readers and I'm sorry if I don't manage to communicate this well. /2
The term 'meltdown' has connotations of disaster. We all know that a nuclear meltdown, for example, is a less-than-ideal situation that may be worth avoiding at all costs. This is why there's some sensitivity around the use of the term for #Autism. Is it too negative? /3
Read 30 tweets
Reasons why #autistic children may present challenging behaviour in class at school. A thread, and an incomplete list. (sorry to fill your time line with yet another but it keeps me going at the moment.) #thread /1
Talk to any teacher about #autistic students and I can guarantee 95% of the time they will have the following mental image or response.

a) oh god, there goes the behaviour in *that* group then,
b) oh they're so lovely and quiet. Maybe too quiet.
c) she's autistic? No! /2
It's either going to be a nightmare relationship, a dream, or it's a shock (often as #autistic traits are so misunderstood. I'm going to be focusing on reaction a) today - a strange yet often partly justified fear that a certain 'type' of autistic child can be hard to manage. /3
Read 29 tweets
We have a new study forthcoming in Exceptional Children. We examine whether students of color are more or less likely to be identified as having #disabilities in U.S. states with histories of de jure and de facto racial #segregation. (1)
Special education has been theorized to have been used as an alternative legal strategy for schools to avoid racial integration. This prior work was historical and descriptive. Others have suggested that over-identification might be especially likely to occur in the South. (2)
Yet other work suggests that students of color may be under-identified as having disabilities in the U.S. South, incl. due to political and economic factors. Mechanisms hypothesized to result in under-identification nationally may also be operating similarly in the South. (3)
Read 12 tweets
Hi #pediatricians, our work on #disparities in #disability id. was just cited by the @AmerAcadPeds in their #policy statement on the impact of #racism on children's health. Our most recent study was cited. If helpful, here is a thread of our work to date. #RacismAndHealth (1)
@AmerAcadPeds Here is the abstract and link the the study cited in the @AmerAcadPeds policy statement.…. We find that children of color are less likely to be identified as having disabilities than similarly situated students who are White in U.S. schools (2)
@AmerAcadPeds Here is an example finding. Of U.S. 4th grade students displaying clinically significant reading difficulties, 74% of White students are receiving special education. The contrasting percentages for Black, Hispanic, and American Indian students? 44%, 43%, and 48%, respectively (3)
Read 15 tweets
People who have had ten minutes of training in #autism, perhaps over coffee as part of a larger training session on something or other, love periodically piping up, solemnly, that we must call autistic people 'people with autism'; that 'person first' language is key. /1
"We must not put the illness in front of the person," they trill. "Doing so reduces the person to their disease." They then sign off, satisfied by a job well done. 'I'm a better person for that," they purr contentedly to themselves. /2
Spend *any* time on #autistic Twitter and you'll immediately find a dozen saintlike autistic folk patiently explaining to these people that, in fact, this is not the preferred terminology in our community, and for damned good reason. /3
Read 6 tweets
A thread about #autistic adults. Please share if you can and let me know if this is useful. Here we go. /1
Teachers who follow me will have met many #autistic children over the years, and there's a tendency to see #autism as a childhood issue. But all these autistic children grow to be autistic adults. And being an autistic adult can be bloody difficult. /2
Autistic adults are much more likely to suffer anxiety and depression, and have much higher suicide rates too. There are many potential reasons for this. Let's run through some possibilities... /3
Read 30 tweets
Hello. Here follows a list of potential sensory hazards for children in schools. Share if you can, as it's usually a pretty straightforward thing to make environments more autistic-friendly. #Autism #ukedchat /1
1. The school bell. If it's not needed, lose it. If it is needed, make sure *all* autistic students (and staff!) are made aware of any changes to the routine. Allow students to wear ear defenders if they need to. /2
2. Glaring strip lighting. Classrooms are dreadful for this. Where affordable and possible, get diffusers over them all! Alternatively, use natural light as much as possible. If you have a malfunctioning light, flickering away, prioritise getting it fixed and leave it off. /3
Read 22 tweets
Let’s talk bodies, self, and the ethical use of biotechnology. A thread on what a human is, the differences between individuals, and autonomy as the bedrock principle of the biotechnological age. 1/x
Here’s the previous discussion on science, legitimacy, and social capital if you missed it
I’m a molecular biologist. I work with the bits and pieces of biology that are shared by every single living thing on this planet - DNA, RNA, and protein. 3/x
Read 40 tweets
Pro tip: if your autistic child is playing by lining up toys or doing something repetitive, bring your own toys, assume a reasonable distance, and play happily and silently. Use sparkly toys, blocks, cars, spinning toys, pots and pans, kinetic sand, magnets, canned food, (cont).
Stickers, dry pasta, colorful dough, etc. Try something new if it doesn’t work the first time. Make a craft. Spin something that sparkles. Meditate and quiet your mind. Find contentment in not worrying, fixing, controlling. Let it all go and stare into a shiny pinwheel.
Watch the way the light bounces and bends, sending a spattering of dancing lights over your face and chest. Grab a handful of raw pasta and let it fall from your fingers and try to feel and visualize how many have fallen.
Read 10 tweets
My brother used to sit on a broken down riding lawn mower in the garage for hours, silent. Sometimes he would line up his toys on the top of it over and over. Today he can still tell you the 56 worlds he frequently accessed from the mower and vivid details about each.
Using toys as a prop for pretend play is one-dimensional and detracts from the rich, fantastically-creative inner world of the autistic brain. You saw a kid sitting there or lining up toys. He saw beyond you to interplanetary adventures, rescue missions, architectural feats.
The mower became a space ship, a fire engine, an ambulance, a race car, a train, a mine cart leading to a subterranean world. We don't all like to act, but that does not mean we are lacking in imagination. The way you pretend play is painful for many of us.
Read 6 tweets
Autistic people "go hard" when they do something. Finding the autistic community and making the cognitive and emotional paradigm shift from "I am always wrong and need to show deference" (how we grow up) to "I am valuable and have been abused by systems and industries" (cont)
is a brutal rearranging of our whole psyche and sense of self. We make the decisive covenant with ourselves that we aren't going to be abused anymore and we will do anything possible to keep others from having the same experiences. It is a radical shift and a brave one (cont)
Sometimes, we over-correct. The lines are so obscure and hard to read between what is toxic abuse and what is ableism. We oscillate between realities: the reality that our voices are needed to help future autistic generations not suffer the way we did, but also (cont)
Read 19 tweets
Beseeching cuteness or perilous deception? First keynote by Amelia DeFalco on attachment to robots & boundary creature disposal /1 #FantMedHums @CRSFteam
Uncanny encounters with disposable life: the pigoons in @MargaretAtwood's Oryx & Crake, hauntingly, "unsettlingly" illustrated by Jason Courtney - "Thou shalt not kill"? #FantMedHums /2
Next up @AmyCChambers on inhuman caregiving and the dehumanised health services (very topical...), In "Humans" & "In the Flesh", where the NHS survives the apocalypse #FantMedHums
Read 30 tweets
So late last night, I was notified that #FireBillHogg was trending in #onpoli. Who's Bill Hogg? Well, let's start from the beginning.
Bill Hogg was an unknown to the PC party. In 2016, Hogg, a former Aurora municipal councillor, decided he would seek the PC party nomination in the Newmarket-Aurora riding. I also was seeking that nomination. #FireBillHogg
Hogg networked extensively (with the riding president as his ambassador), with PC movers and shakers. He met lots of key players, thanks to former Newmarket-Aurora riding president Derek Murray and former PC MPP Frank Klees. Both endorsed him as MPP. #FireBillHogg
Read 52 tweets
@SFdirewolf: if allies need to think of themselves as co-conspirators, they need to support the orgs that are already doing the work, like HEARD and @autselfadvocacy (I missed the first one, so sorry). Props to director @JustStimming (see their resources):
@SFdirewolf @autselfadvocacy @JustStimming @JHMarble: #autistic and disabled people are the experts in their own lives! Imagine what could happen if even 1% of the money splashed all over #autism causes and orgs was given to the autistic people who know what to do with it to change #autistic lives for the better?
@SFdirewolf @autselfadvocacy @JustStimming @JHMarble @JHMarble recently took on Fiona Ma for spewing ableist crap all over the disability caucus at the recent DNC (WE LOVE YOU JOHN.)
Read 12 tweets
Thread 1/6
FREE books on Kindle, from now until Wed 26th June
"Time Tunnel" series follows 8 yr old David Johnson who doesn't like history much, until a freak discovery brings him face-to-face with the real thing.
He's joined in later books by cousin Sarah, & new friend Maarten.
2/6 #freekindle
"Time Tunnel to Londinium" David's freak discovery of a tunnel that takes him to Londinium 1,800 years ago leads him to make friends with a real Roman boy.
He uses the tunnel to help his new friend and get top marks in a school project.
3/6 #freekindlebooks
"Londinium Revisited" a second visit to Londinium is filled with confusion as David's friend Marcus has changed.
But soon, David finds he can use the tunnel to help solve more than one problem.
Read 6 tweets
I have been trying to get answers from top tier candidates for several months on their stance on #disability. #HillaryClinton had broad policy & #disabled people on her team in 2016. ONE in FOUR Americans has a disability. We are THE largest minority in America.
For those who need a template for a candidate on #disability, here was #HillaryClinton in 2016. We should expand on that, not move backwards.…
And there is #HillaryClinton's archived policy, which included #autism, #Alzheimers, #disabilityrights, #mentalhealth, universal healthcare for all, #HIV/#AIDS, paid medical leave, Social Security and Medicare protections, addictions & substance abuse.
Read 4 tweets
Dennis Mashue now talking about his experience of being a late diagnosed autistic adult - “nothing made sense ... I learnt nothing in school ... years later I saw my son experiencing the same issues ... I now know I experienced autistic burnout” ...
Alison Morantz now speaking as an academic and a parent of an autistic person who experiences severe co-occurring mental health difficulties (schizophrenia)
Alison had extreme difficulty in finding appropriate treatment for her son. No traditional treatment worked, “there was nowhere else for Mika to go” “we spent the next 2 yrs following Mika around the country” ... lots of instability, and vulnerability to abuse from staff ...
Read 26 tweets
CRISPR (Clustered Regularly Interspaced Short Palindromic Repeats) è il nome di una famiglia di segmenti DNA contenenti brevi sequenze ripetute. La versione semplificata CRISPR/Cas9 fornisce un precisissimo strumento per modificare permanentemente i geni di molteplici organismi.
Unraveling a genetic network linked to autism

#CRISPR #DNA #RNA #mRNA #genetics #autism…
Largest study of CRISPR-Cas9 mutations creates prediction tool for gene editing. #OneGiantLeap

#CRISPR #DNA #RNA #GeneEditing #MachineLearning #Biotechnology #FORECasT…
Read 15 tweets
I am one of 17M Americans with #cancer right now.
Some of us will survive, some will not.
Our survival should not be predicated on our health insurance.
#M4A is an imperative step toward universal coverage and keeping us all living as long as possible.
Every candidate must support #UniversalHealthCoverage. Access to care is the single most important issue for all Americans regardless of party. EVERYONE has a family member who's sick: parent, spouse, child. No one should face bankruptcy to care for a loved one.
My father's final illness bankrupted me. I got sick soon after. This is a common story. But unlike our peers in Canada, UK, France or Germany, we have no recourse but to accrue massive hospital bills and risk losing everything to care for a sick loved me.
#M4A is a promise.
Read 8 tweets
#AbigailFillmore created the WH library.
#EdithWilson basically served as POTUS after Woodrow had a stroke.
#EleanorRoosevelt desegregated the WH, was on the board of #NAACP, helped create the UN, and was the first chairman of the UN Human Rights Commission.
#BeBest 1/
#JackieKennedy restored and refurbished the WH and was a style icon.
#BettyFord fought for the #ERA and abortion rights, raised awareness for both breast cancer and addiction.
#RosalynCarter attended all Cabinet meetings and advocated for mental health awareness.
#BarbaraBush raised awareness about literacy.
#HillaryClinton was head of the Task Force on National Health Care Reform and created #CHIP. Her speech on women's rights as human rights at Beijing was an international sensation. She also won a Grammy while in the WH.
Read 6 tweets
Hanging out daydreaming (lolz) in the sleep and circadian panel session at #INSAR2019 #circadianrhythms #sleepwakecycle #timeisasocialconstruct #exceptwhenitsbiobasedandinyourbody #sleepdependent
Sleep in those with Tuberous sclerosis have changed in the mTOR pathway that can make or brake translation of protein synthesis. Turns out that causes wonky circadian rhythms. AND changing BMAL1 ("a core clock driver") levels got sleep cycles back in order.
Now Olivia Veatch on genetics of sleep in #autism. #genesgenesgenes or as @amandaseales would say #denimondenimondenim #ha
Read 26 tweets
Now: “#Autism and Related Disorders in the Context of Humanitarian Emergencies” #INSAR2019
First up: Doctors without Borders developmental pediatrician, who worked in conflict zones. Can we use remote consultations to increase support disparities?
We will be hearing from group of professionals with experience with children with developmental disabilities and humanitarian emergencies. Trauma during conflict means diagnoses/traits can be muddies. #INSAR2019
Read 42 tweets
Let’s say I have #measles and don’t have symptoms yet. If I decide to go shopping while infectious, I will spread that to 9 out of 10 babies, cancer patients, pregnant women, and unvaccinated ppl within breathing room of me. How do you notify those people?
If I have #measles and expose the public do you review security tapes to try to ID people? Do you put out a press release? Who answers their panicked calls for info? Who investigates them all? Could you miss work for 21 days because you need to be quarantined?
If I have #measles and expose the public and infect a pregnant woman who is going to deliver a baby but might be infectious how do you handle that? Deliver in isolation? Is the baby at risk? What if there’s an emergency? What If you just finished fighting cancer?
Read 8 tweets

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