Discover and read the best of Twitter Threads about #autism

Most recents (24)

Autism rates in the U.S. have reached epidemic proportions. One in 36 boys now has some form of autism. Autism rates have increased exponentially since the increase in the vaccine schedule set by the CDC.
The increase in the number of childhood vaccines coincides with the 1986 ruling, exempting vaccine manufacturers from liability. If we have increased the number of vaccines a child receives, we have, in turn, increased the number of toxins a child is exposed to.
Read 20 tweets
#Autism and Parenting an infant school child - a thread.

Please read and share as you wish - reply too!

Let's dive facefirst into the morass that is trying to cope with the stress of taking a child to school every day... /1
Routine - oh goodness me I like routine, as I think a lot of #autistic people do. I live for routine. Threaten my routine and I freak out big style. Break my routine and... well... I'll not be particularly chuffed with you.

But children. In the morning. Oh. My. God. /2
My morning routine has been much the same this past 400 years or so. There is so little variation, in fact, that I'm pretty sure I could be used as some cosmic constant for astrophysics.

But these days I have to incorporate the huge will and cheeky disposition of a child. /3
Read 14 tweets
I’m the mother of a high-support #autistic young adult. I’m going to give it to you straight about antivax disinfo: why it’s nonsense, why it’s dangerous, & why it’s hurtful—especially to people like my son.
This is going to be a thread.

#autism #VaccinesWork #Neurodiversity 1/
I want to talk about a critical aspect of vaccine advocacy, which is understanding how vaccine-autism misinformation hurts the amazing people in the #autistic communities in general, and people like my wonderful, happy, autistic son specifically. 2/
If more people understand that #autism is nothing to be afraid of & is part of human diversity—if we share more messages about accepting #autistic people like my son, who need significant support but also have unrecognized abilities and have always been part of our society… 3/
Read 35 tweets
Do U Know That Mercury is Still Present in Several Vaccines?

Hg in Vax’s: A Closer Look

A Tweet Series By The Epigenetic Whisperer

The Mad Hatter, “Have I gone mad?”
Alice, “Ur entirely bonkers. But I’ll tell u a secret, all the best people are.”
-Alice In Wonderland

1
The crazy Mad Hatter of Lewis Carroll's Alice in Wonderland has become widely associated w/the toxic effects of Mercury. Mercury was used way back in the mid 17th century in France as an ingredient in the felt hat industry. Mercury poisoning soon became endemic resulting..

2
Dementia & erethism. In fact, Hg is one of the most cyto/neurotoxic substances on Earth which has been linked 2 100s of disease symptoms & death. Unfortunately mercury has been used prodigiously in industrial operations finding its way into our oceans & has infiltrated..

3
Read 28 tweets
Vaxxed Versus Unvaxxed
Whose healthier?

A Tweet Series By The Epigenetic Whisperer

I'm not upset that u lied 2 me, I'm upset that from now on I can't believe u.
― Friedrich Nietzsche

There are 3 types of lies -- lies, damn lies, & statistics.
― Benjamin Disraeli

1
R u sick of the nonsense from the CDC saying they can’t do vax vs unvax studies cuz it would be unethical 2 withhold lifesaving vax’s? 🙄 Never mind the fact that there r already tens of thousands of 🧒 that never have been nor ever will b vaxxed.

Fear not, the data exists!

2
1st there’s this👉 Less than 1% of entirely unvaxxed kids have ANY health problems. This is from the world's leading authority on health data for entirely unvaccinated people. TheControlGroup.org. They have collected more than all others combined.
thecontrolgroup.org

3
Read 21 tweets
Come visit a real public school, @Sflecce. Come tell newcomer refugee students why their ESL support was cut. Come tell children with learning disabilities why their special education reading classes were cancelled. Come tell kids why the courses they need to graduate were cut.1/
Come tell children with #Autism that their safety and academic success at school is not as high a priority as tax cuts. Come tell children in crisis that they will have to wait even longer for assessments and services, and that it’s okay if some of them die while they wait. 2/
Come tell our children that they will have to just learn to deal with not having their needs met, and that escalation and classroom evacuations are just part of how we do school now. Come tell them that walking the halls with an EA is the same thing as receiving an education. 3/
Read 6 tweets
#Autism and #Depression - a very personal thread. Despite that, please share widely as it might help folk.

All based on my own experience. /1
It's an interesting thing that mental health is so universally taboo, as it means our mental health gets progressively worse. So, following in the example of people like @matthaig1 and @Sara_Rose_G, I'm going tk be pretty open and honest about my poorly little brain. /2
Please be aware that I'm not classing #Autism as a mental illness. Because it isn't. I'm talking about the black dog - depression.

It's shit. /3
Read 15 tweets
Vaxxed Versus Unvaxxed
Whose healthier?

A Tweet Series By The Epigenetic Whisperer

I'm not upset that u lied 2 me, I'm upset that from now on I can't believe u.
― Friedrich Nietzsche

There are 3 types of lies -- lies, damn lies, & statistics.
― Benjamin Disraeli

1
R u sick of the nonsense from the CDC saying they can’t do vax vs unvax studies cuz it would be unethical 2 withhold lifesaving vax’s? 🙄 Never mind the fact that there r already tens of thousands of 🧒 that never have been nor ever will b vaxxed.

Fear not, the data exists!

2
1st there’s this👉 Less than 1% of entirely unvaxxed kids have ANY health problems. This is from the world's leading authority on health data for entirely unvaccinated people. TheControlGroup.org. They have collected more than all others combined.
thecontrolgroup.org

3
Read 19 tweets
Thread: #autism #employment statistics are unreliable but 44 years of working has taught me this: #autistic people struggle to reach their full potential unless organisational culture and environmental issues are addressed.
#neurodiversity
#employability
#inclusion
#careers
1/
I once did some work on job design and evaluation for the NHS. In attempting to improve #employment outcomes for #autistic people we often start in the wrong place. It’s no good trying to fit people into roles that are unsuitable, and this applies to working environments too.
2/
A degree of mutual adaptation is possible, but true workplace inclusion begins with design.
We have plenty of information about common challenges experienced by autistic people - our #sensory and #communication differences are well-defined.
So what seems to be the problem?
3/
Read 19 tweets
I keep seeing an argument whereby X group of kids should be served first under a revised Ontario #autism program, followed by Y group, followed by Z group sometimes, etc. and so on. Here's why it's wrong:

1) There are families who have waited for years without receiving a thing.
2) There are families whose children were DENIED service under previous OAP versions despite being non-verbal, having complex needs, and clearly needing support.

3) It's divisive. All kids deserve support.

4) We're ignoring other needs.
5) We're doing the very thing that we're supposed to be arguing against i.e. putting children into groups instead of dealing with their individual needs as was recommended by the OAP. "Okay, Group X goes first, then Group Y, and if there's anything left over some of Group Z."
Read 5 tweets
#AutismFYI
Thread on #autism, double empathy and #communication.

Most people are familiar with the idea that #autistic people are often direct when they speak and that this sometimes leads to misunderstandings, in a society like ours which values indirect communication.
1/
There is much less discussion around non verbal communication (NVC) for #autistic people, apart from the stereotype "they just don't get it".
Many autistic people I know are in fact experts in NVC, because they've studied it in great depth.

Does double empathy apply here too?
2/
I see many people who consider themselves 'experienced' in #autism who fail to recognise the most basic NVC from #autistic people.

Body language or behaviour which (to me at least) very obviously communicates distress or anxiety gets misinterpreted or ignored altogether.
3/
Read 9 tweets
Why is there so many #autisms around these days? A thread exploring the high rates of diagnosis.

CW - may have some jokes in. Maybe even sarcasm. /1
Current official estimates for the prevalence of #autism on the UK are around 1 in 60 to 1 in 100 depending on who you listen to. However, given that we *know* that many individuals go undiagnosed (especially women) the rates are likely to be much higher, maybe even 1 in 30. /2
Incidence rates over time show a clear upward trajectory - here's the USA over the 11 years 1996-2007. Naturally many people see this and panic, assuming #autism is somehow on the increase, or more 'catching'. /3
Read 21 tweets
CN: murder, disability, & mental health.

There is a horrifyingly typical coupling of devotion with murder, whenever disabled people are involved.

I'm here to say: Fuck that.

This is going to be a thread.

#Neurodiversity

1/
I need you—and judges and reporters everywhere—to understand that, however difficult it may be for families to support their disabled loved ones, *murder is never excusable*. There are always other options.

Always.

2/
Consider that disability-related murders are more common than the occasional high-profile story might have one suppose—according to Julia Bascom @JustStimming of the Autistic Self Advocacy Network @autselfadvocacy, the average rate for these murders is…

One. Each. Week.

3/
Read 11 tweets
Autism and masking, or

who the hell am I then?

A brief intense thread. Please share. /1
Masking is the conscious or subconscious effort that an #autistic person makes to appear neurotypical to the people around them. It's an intensely resource-intensive activity that is exhausting to maintain. /2
It's a bit like running two new, graphically impressive video games simultaneously on a decent PC. It's possible but it slows things down considerably and your RAM is screwed. /3 #autism #masking
Read 15 tweets
THREAD. So I went to my local NAMI (National Alliance on Mental Illness) group meeting tonight. TWO things annoyed me. (1) We had to pledge allegiance to the medical model, implying participants must denounce any version of a social model or combined social-medical model. /1
(2) Reinforcing (1), the moderators jumped all over me when I mentioned a medication name. Apparently, there is an “unwritten rule” that people are not allowed to talk about any medications that they’re on by name. Only circumlocutions are allowed. /2
What was the reason given for (2)? Supposedly, “they” don’t want people to take questions back to their doctors about their medications or treatments, or heaven forbid to not take a medication. /3
Read 17 tweets
OK then, where to start on THIS hot bag of crap?

'Get Well' magazine, claiming to tell you how to 'reverse #autism' by 'reigniting a child's brain'?

Literally every part of this is bullshit. A lot of it is genuinely dangerous bullshit, too. Hence this thread

/1
Let's start with the obvious; this is not a 'new' publication. It's 'What Doctors Don't Tell You', under a new title. WDDTY is well known in the sceptic/scientific communities, for obvious reasons. It unashamedly peddled pseudoscience and potentially-harmful 'health advice'

/2
One thing nobody could fault 'What Doctor's Don't Tell You' for, though, was the title. Indeed, no real doctor would tell you about the stuff it printed, because doctors can't prescribe magic, have to obey the laws of nature, and actually want their patients to recover

/3
Read 26 tweets
My #Autistic Son Needs 24/7 Support. And That's OK.
We have a good life, because we stopped buying into mainstream notions about what happy families look like.

This is going to be a thread.

#neurodiversity #autism 1/
I’m the parent of a high-support autistic teenager, which means some people would say he “has severe autism.” By our own parameters, my family is a happy and well-adjusted crew. But before you make assumptions about me being a positivity unicorn… 2/
…or that my son must be only “mildly” #autistic, please know that my beloved dude is a mostly non-speaking ball of# autistic energy who requires 24/7 support. 3/
Read 29 tweets
Autism and relationships Thread #1

-+-+- Flirting -+-+-

A thread on one of the ludicrously difficult social activities known to humanity. Based broadly on my experience and reading. Please share widely as it might help people. /1
Right, I'll start by saying this is not a 'how to' guide. Nor is it a full explanation of what people mean when they flirt. Sorry but I'm actually dreadful at flirting - World class bad - and it's this that I'll draw on - what is flirting like for some #autistic people? /2
Flirting seems to me to be a sort of game that humans in certain cultures play to determine whether or not the other person both finds you attractive and is willing to act on that fact. It is *extremely* ambiguous and that is where #autistic people may struggle. /3
Read 24 tweets
Sometimes, it can be really hard to tell the difference between good autism organizations and not-good autism organizations. We totally get this! And that’s why we put together handy guidelines on identifying useful #autism orgs. This is going to be a thread. 1/

#Neurodiversity
We believe #autistic people of all ages & abilities deserve to be treated with respect, have their civil rights & humanity recognized, & have access to the resources & accommodations they need. We will not support autism organizations that do not abide by these basic precepts. 2/
We acknowledge that it can be difficult to identify #autism orgs that legitimately work towards the best interest of autistic people & their families, as questionable autism orgs tend to employ vocabulary of acceptance & support—even when actively undermining those principles. 3/
Read 12 tweets
This thread is in response to a recent thread by @leoniedelt that was interesting & provocative & hopefully won’t be a magnet for trolls, but as it stands, deserves a healthy debate.

As a bereaved parent & multiple trauma survivor & a psychiatrist of 30 years & a multiply

/1
#Disabled #ActuallyAutistic & #AutisticParent, I am very accustomed to being a member of heterogenous groups that share one overarching life experience that sets them apart from the rest of society.

In a bereaved parents’ group, we are there to support one another

/2
unconditionally.

Everyone is in the same boat, having suffered unimaginable loss, so it really isn’t cool to create a hierarchy of suffering based on how old your child was when they died or their cause of death or how many children died or how many are still alive or

/3
Read 25 tweets
Autism researchers and research funders: if you don’t listen to autistic community members and leaders about what #autistic people want investigated, you are not actually helping the autistic people you really, truly think you’re helping. This is going to be a thread. 1/
Autism research is mostly failing my teenage son and his autistic community. Saying something so forthright may seem harsh, but this is the Greta Thunberg era—and we’re now telling people what they need to hear, not what they want to hear. 2/
I've been going to autism science conferences & scrutinizing autism research for nearly a decade, & during this time most autism studies have remained mired in areas like causation—which does absolutely nothing to improve the lives of autistic people who are here already. 3/
Read 26 tweets
With PTSD trauma (caused by people’s actions) you often feel or are excluded from things u did before, this may be stigma, others taking sides or misunderstanding

This may not seem much 2 others
but u notice at time u need routine most it’s denied

#Autism #Trauma #Abuse #PTSD
When people cause u harm seriously & deny/fail 2 take responsibility it can feel like a daily second ‘injury’ which may then make the situation far worse & recovery seem impossible

this may also seem an added cruelty on an already vulnerable person

#Autism #Trauma #Abuse #PTSD
When harm comes from within an organisation they often even when harm obvious deny or protect the reputation of those responsible

It retriggered hurt when you see them continued to be included & your left out - it reinforces the hurt is your fault

#Autism #Trauma #Abuse #PTSD
Read 8 tweets
A thread on being diagnosed as #ActuallyAutistic before most people knew that #AllAutistics existed.
I’m 50 next year.
I was diagnosed aged 13.
36 years ago.
Many autistics my age are only recently diagnosed. How have our lives differed?...1/13
...At least I’ve known as an adult WHY I was different to others. I didn’t have their doubt, that feeling of being an alien ALONE on this planet – I knew there were others like me, even if it took me well over a decade to meet any...2/13
...I still had to mask though. I couldn’t TELL anyone about my #autism because until recently they didn’t know what it meant. If they knew anything of autism it was usually down to Rain Man or some tragedy story on the news. People like me who...3/13
Read 14 tweets
Read an opinion piece by two academics @kellyfritsch1 @anneemcguire.

Topic: #Autism @Airbnb and #Disability in #Ottawa

My major concern - It reads like a polemic full of biases.

And that's only the start.

#AcademicTwitter
@AcademicChatter
#cdnmedia
#cdnpoli

1/x
Opinion pieces can invaluable.

They give an informed insight into an important issue or dilemma.

This largely depends on the manner in which the issues are addressed and unpacked by the author(s).

What is the contention? What data are relied on? Does the piece impugn?
There are a whole range of qualitative indicators we can use to determine the contribution an opinion piece can make on furthering our understanding of an issue.

There are major missteps one can take that undermine the salience and news worthiness of a piece.
Read 20 tweets

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