1/ So I got quite a bit of "pushback" when saying that I would probably/most likely/am considering no longer using the joined # of #hpm or #hapc ... when tweeting about #PalliativeCare exclusively...
I also said I would explain myself to those wondering why...
I also said I would explain myself to those wondering why...
2/ Quick disclaimer: I will entertain thoughtful discussion and opinions in this thread...
I won't entertain one sided views that try to shut me down with that "I'm big & your small, I'm smart & your dumb..." talk
I am expressing MY thoughts, keep your gaslighting to yourself
I won't entertain one sided views that try to shut me down with that "I'm big & your small, I'm smart & your dumb..." talk
I am expressing MY thoughts, keep your gaslighting to yourself
3/ One of the #CAPCSeminar19 keynotes was on messaging and how we brand ourselves.
It was a great conversation with Diane Meier and Mark Ganz (intentionally not tagging them) with the sharing of ACTUAL CAPC data but also ACTUAL life stories involving Mark's parents.
It was a great conversation with Diane Meier and Mark Ganz (intentionally not tagging them) with the sharing of ACTUAL CAPC data but also ACTUAL life stories involving Mark's parents.
4/Key take aways for me during that talk was:
1. Ppl NOT IN palliative care still do NOT clearly understand what it is we do.
2. Ppl are still getting referred to PC too late at the end of their lives, resulting in little benefit from PC...
1. Ppl NOT IN palliative care still do NOT clearly understand what it is we do.
2. Ppl are still getting referred to PC too late at the end of their lives, resulting in little benefit from PC...
5/This struck a cord in me, because where I am practicing now (as a newly minted PC physician) the hospital uses ME as such...
The end of life guy, the keeper of the keys, the "hey we're done with them now, your turn" person...
And I am TIRED of this...
The end of life guy, the keeper of the keys, the "hey we're done with them now, your turn" person...
And I am TIRED of this...
6/And as the PC program is small and we are trying to grow, I do not have the luxury to "say no" to PC consults...So I educate with each one...
"Thanks for the consult! Also, did you know I can totally help earlier in the..."
"Thanks for the consult! Also, did you know I can totally help earlier in the..."
7/But what I didn't realize is that a few directors back of the PC program here was focused solely on hospice and asked for PC consults to help generate hospice consults...so the culture at this place is PC = Hospice
8/Do you all know how hard it to change hospital culture in a largely white male dominated hospital?
As a non white male...who is new grad???
But I thought, maybe this struggle is just me, just this place, just this corner of the US...
I need to do better, I'm not doing enough
As a non white male...who is new grad???
But I thought, maybe this struggle is just me, just this place, just this corner of the US...
I need to do better, I'm not doing enough
9/Then I hear a keynote...where on a stage...a story is shared that resonates with me and (sadly) reaffirms that the message of PC = hospice is NOT just where I am...
It's everywhere...
It's everywhere...
10/So how do we change this message?
We remember WHO the audience actually is...and it is NOT us...WE GET IT! They still don't...
They = ALL non palliative care people even those IN the medical world!
We remember WHO the audience actually is...and it is NOT us...WE GET IT! They still don't...
They = ALL non palliative care people even those IN the medical world!
11/From the keynote:
"Social Marketing 101 - Don’t define something by what it's not. The audience will remember the negative you’re trying to distinguish from"
"Social Marketing 101 - Don’t define something by what it's not. The audience will remember the negative you’re trying to distinguish from"
12/What should we do:
1) Use the evidence-based definition.
2) Reinforce it by NOT introducing it at the
same time as end of life language.
3) Make it clear that palliative care is
based on need, not prognosis.
1) Use the evidence-based definition.
2) Reinforce it by NOT introducing it at the
same time as end of life language.
3) Make it clear that palliative care is
based on need, not prognosis.
13/So accepting that my audience on twitter is #MedTwitter and #MedEd which includes non PC docs, that, I can assume, don't really get what PC is, along with regular folk/pts...
When I tweet with #HAPC or #HPM, I'm reinforcing that they are in fact one in the same...
When I tweet with #HAPC or #HPM, I'm reinforcing that they are in fact one in the same...
14/When we know that:
#PalliativeCare ≠ #Hospice
And if our goal is to move PC upstream...then distancing ourselves from hospice is a natural progression of that...
Distance ≠ a bad thing
#PalliativeCare ≠ #Hospice
And if our goal is to move PC upstream...then distancing ourselves from hospice is a natural progression of that...
Distance ≠ a bad thing
15/Hopefully this explained (somewhat) why I think, that, FOR ME, I will probably stick to a more thoughtful approach to my #'ing when it comes to #PalliativeCare and #Hospice
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