The Biden disability plan is up. It is solid. There is some exciting stuff. It's much more moderate than the Castro, Warren, or Sanders plans. #CripTheVotejoebiden.com/disabilities/
Exciting stuff:
--Lots of stuff the agencies can do regardless of Congress
--Including addressing guardianship!
--A White House Domestic Policy Council member focused on disability (this sounds boring but is really important and we've been asking for it for years #CripTheVote
More exciting stuff:
--Big focus on competitive integrated employment and ending subminimum wage
--Addressing violence, including sexual & domestic violence, against people with disabilities
--Supporting higher education for students with intellectual disabilities #CripTheVote
Disappointing stuff:
--Commits to ending the institutional bias (HUGE) and expanding Medicaid HCBS, but does not look at expanding HCBS outside of Medicaid
--Treats SSI differently than SSDI--addresses some problems but maintains the double standard #CripTheVote
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Like, there are a lot of words my medical team might use to describe my medication reconciliation, but I don't think "delight" is one of them. Oh well! I still need medical care!
Is your body nonstandard? Is your case even slightly complicated? Are you fat, or a person of color, or homeless? Is it hard for you to maintain hygiene because you don't have the right supports? Do you have the audacity to need physical AND mental health services? Uh oh.
My disabilities impact memory and speech. Before I do interviews, panels, etc I request *questions in advance. * It's a critical accommodation for me. It may seem counterintuitive, but it supports authentic + flexible communication. (1/x)
Over the years, I've requested this accommodation from dozens of journalists. Virtually no one has batted an eye. No one has called into question my expertise or authority bc of this accommodation.
But closed captioning to support auditory processing, that's too far? (2/x)
I have an important first call with a funder coming up. You better believe that this discourse is weighing on my mind as I debate whether or not to ask for the accommodation I need.
I'm good at my job. @JohnFetterman is damn good at his. Accommodations let us do our jobs. (3/4)
On #WorldDownSyndromeDay I am thinking about all the people with Down Syndrome I know and everything they have added to our world. My understanding of #neurodiversity and disability rights is richer and sharper because of them. Going to add some works to this thread.
"Letter To A Baby Who Was Thrown From A Bridge" was written by a woman with Down Syndrome, and we share it every Day of Mourning. It's one of the most powerful pieces of disability rights writing I've read. mouthmag.com/bridgebaby.htm
It's been a hard...timespan. But this week our community has done some incredible things, even in the face of all the awful the world can throw at us. Inspired by @AuroralAutistic's 🧵, I want to highlight 5 examples of Autistic Excellence that are getting me through today. (1/6)
This piece by @slooterman about guardianship. “There’s this double standard where, if you’re perceived as having a disability, your preferences are subsumed by what’s in your, quote, best interest. That’s just not how humans function.”(2/6) newrepublic.com/article/161344…
This piece featuring @jessicalbenham talking about running for (and winning) elected office as an openly autistic candidate. Jess is already kicking ass in her new position. (3/6)
"The decisions parents make after prenatal testing are private and individual ones. But when the decisions so overwhelmingly swing one way—to abort—it does seem to reflect something more: an entire society’s judgment about the lives of people with Down syndrome." (2/?)
"In wealthy countries, it seems to be at once the best and the worst time for Down syndrome. Better health care has more than doubled life expectancy. Better access to education means most children with Down syndrome will learn to read and write..." (3/?)
Hi cross-disability twitter! I deeply appreciate the solidarity y’all are showing the autistic community right now. I want to ask you to engage with this beyond just “they cast a non-disabled actor!” Here’s why: 1/10
(1): Nonspeaking people are some of the most marginalized folks in our community. Nonspeaking actors exist, but it is incredibly rare for them to be hired, even compared to other disabled actors. This has real consequences for them, and makes them invisible. 2/10
By talking generally about Sia hiring a “non-disabled” or “non-autistic” person, we contribute to that erasure. We should be centering this inequity explicitly, and naming that Sia should have cast a *nonspeaking* person. 3/10