Discover and read the best of Twitter Threads about #neurodiversity

Most recents (24)

Mental illness does not explain mass shootings. Let's talk about psychopathy. 1/X
Psychopathy is a human trait that we all have. There are people who are constitutionally psychopathic, but they are more likely to do petty crimes or get swallowed up by the system due to impulsivity than plan out something like this. 2/X
For most people, we have a psychopathic core that is tied to group dynamics - who is "in" and safe - and who is "out" and unsafe. The more strongly we buy into an ideology, the more "out" people's humanity is dismissed and our empathy circuits turn off. 3/x
Read 11 tweets
Would you like to help us with the Neurodivergent in STEM project?

We're looking to expand our scope and would love to form a diverse team of neurodivergent people and allies to bring some of our ideas to life. Get in touch at neurodivergentinstem@gmail.com

#Neurodiversity
(1/n) Some of our ideas include:
♾ A peer mentoring scheme for neurodivergent STEM professionals
♾ Hosting events to share best practices and facilitate discussions around embracing and supporting neurodiversity in STEM
(2/n)
♾ An outreach program to forge connections with schools, colleges, sixth forms, universities, and other EDI initiatives
♾ Managing our blog to share ideas, interviews, and best practices
Read 7 tweets
This week is #NeurodiversityCelebrationWeek!

Like most autistic-led organisations, AMASE strongly supports the celebration of neurodiversity; humankind is stronger, and more interesting, because different people think and experience the world differently.
amase.org.uk/resources/
You don't need to think all neurodivergent people have superpowers to celebrate neurodiversity!

As human beings, we have much to offer whether or not we have extraordinary talents; diversity, and people who process the world differently, are worth celebrating for their own sake.
Neurodiversity is not a name for a collection of labelled neurological differences: it is a term describing the collective cognitive diversity of humans as a species.

It is one manifestation of biodiversity - the variation that gives ecologies their resilience and adaptability. In a diverse group of shape...
Read 9 tweets
Big ND Celebration Week news: My 1st PhD publication is out (early vers) in Human Development! Title: Conceptualising Autistic Masking, Camouflaging and Neurotypical Privilege: Towards a Minority Group Model of Neurodiversity. Thread translating to public: karger.com/Article/Abstra…
Nearly 3/4s of Autistic folks report masking & camouflaging [concealing Autistic traits/identity] (@DrEilidh & Troxell-Whitman, 2019). Reasons for masking/camouflaging include facing discrimination if appearing visibly Autistic--so why is Autism called an ‘invisible’ Disability?
@Noahsasson & Morrison (2019, p.51) found that masking (aka camouflage) is “stressful and exhausting” alongside being “associated with anxiety, depression, and poorer self-image”; and @DrMBotha & Frost (2020) argue these poor well-being outcomes reflect Autistic ‘minority stress’
Read 22 tweets
It’s tricky to be a parent advocate in the autism community, especially if, like me, you are not autistic yourself. Autism is about autistic people, & that’s who should be leading autism advocacy efforts. Threading my recent @AutismOAR column:

researchautism.org/what-is-the-ro… #autism 1/
@AutismOAR …But in the nearly two decades since my son was diagnosed, I’ve learned that I do have a role as an advocate: To learn and share and fight for the policies and knowledge needed for my son to live a good life as an autistic person.

#autism #parenting 2/
Parents of autistic people simply can’t avoid being advocates. It is not reasonable to be passive when our loved ones need so much support, & when there are so many roadblocks to getting that support from educational, social, & medical networks that are supposed to provide it. 3/
Read 26 tweets
@RepGarbarino, #ActuallyAutistic New Yorkers need you to #AbolishABA, which abuses autistic children, conditioning them to suffer in silence to accommodate the bigotry of allistic parents & authority figures.
The onus is on THEM to accommodate #neurodiversity!
"Allistic" is our preferred term for those who aren't punished by the majority for being different .
You may have heard the term "neurotypical"; that presupposes that you are the typical, better version, while we who are "neurodivergant" are implied inferior. 2/
If autistic people were the majority, the shoe could just as easily be on the other foot.
You've constructed the dominant social norms, laws, corporate policies, etc. based on assumptions that we don't quite fit so well; this mismatch causes our difference to be a disability. 3/
Read 4 tweets
@SenSchumer & @SenGillibrand, #ActuallyAutistic New Yorkers need you to #AbolishABA, which abuses autistic children, conditioning them to suffer in silence to accommodate the bigotry of allistic parents & authority figures.
The onus is on THEM to accommodate #neurodiversity!
"Allistic" is our preferred term for those who aren't punished by the majority for being different .
You may have heard the term "neurotypical"; that presupposes that you are the typical, better version, while we who are "neurodivergant" are implied inferior. 2/
If autistic people were the majority, the shoe could just as easily be on the other foot.
You've constructed the dominant social norms, laws, corporate policies, etc. based on assumptions that we don't quite fit so well; this mismatch causes our difference to be a disability. 3/
Read 4 tweets
Truth-telling and "utility" (greatest good for greatest number) are 2 basic principles in healthcare ethics that may come into conflict. For example:

17% of adults are salt-sensitive (more salt => higher blood pressure). 83% can eat as much salt as they like.
THREAD
(2)
The above figure comes from this peer-reviewed paper.
ncbi.nlm.nih.gov/pmc/articles/P…

Now, let's consider how truth-telling and utility come into conflict...
(3)
The dilemma for public health is this: If we tell EVERYONE to reduce their salt intake, this will help the 17% who are salt-sensitive. It may save lives.

But that requires us to violate truth-telling (i.e., it requires public health authorities to lie to 83% of adults).
Read 13 tweets
Thread about why most #autism assessments are ableist, why so many psychologists do bad autism assessments, and why #neurodiversity informed assessment is essential. 1/x
It all starts with our training, which is steeped in DSM, medical model ableism. ADHD, autism, etc are inherently bad things, maybe the worst things because they really can't be fixed with psychological tools. All of this is implicit in training, through ableist messages. 2/x
So when someone comes to us looking for an Autism diagnosis, we are trained to be comprehensive, to do "rule outs" for everything else. This leads to 2 immediate consequences 3/x
Read 19 tweets
Growing up, I struggled in my relationships with other kids my age.
When I did hang out with other kids, they were often older or younger than me, additionally, my relationships were often very superficial, because, even when I wanted to, I didn’t understand how to get close to others or let people in.
For many years, as a preteen and a teenager, my best friends were our family cat and my dog, Ripley.
When I struggled to bond with others around me (even my family and caregivers) animals always were as kind to me as I was to them - like a mirror reflection back on me.
Read 8 tweets
Attending the school of Pharmacy and Medical Sciences research retreat #PAMRR2021 @Griffith_Uni

Thankfully it's made accessible via Teams for those of us unable to physically attend.

Might share some little insights from the presentations
Welcomed by the enthusiastic, encouraging, and humble @JennyAKEkberg and reminded to connect our research and funding with community and industry and engage in research cross-pollination. /1
Read 43 tweets
.@eminesaner @guardian article on highly sensitive (HS) ppl says:

1) Large overlap w/autism
2) HS≠autism
3) Society should "recognise and nurture" ppl with HS traits

TFW MSM mirrors #actuallyautistic advocacy while managing specifically to exclude us.

theguardian.com/lifeandstyle/2…
@eminesaner @guardian 2/ Not that I begrudge advocacy for compassion toward HS ppl, or anyone else. But AFAIK, nobody is electrocuting HS ppl or using techniques the WHO defines as torture on them and calling it therapy. There's a reason #actuallyautistic ppl feel some urgency about this issue.
@eminesaner @guardian 3/ So it is a bit jarring that the reason #autism is discussed at all in the article is for the purpose of surgically carving us out of the neurodiverse population the author is advocating for.
Read 6 tweets
It's time! #CareersInImmuno at 10AM PST | 1 PM EST | 6PM GMT with @_Jon_Silver_ @forgedonyx @ATrotmanGrant and @JonathanWosen have your questions ready about #AltCareers in #immunology #BIIW21 #CareerDevelopment. A flyer of the Careers in Immunology panel with the headshot
We've got some brilliant panelists with experience stretching across entrepreneurship, science communication, biotechnology, business and more!
#AltCareers
#BIIW21
@forgedonyx - Dr Danielle Twum's work in a biotech involves talking to lots of people from CEOs, clients, study directors - sharing and explaining science and the potential of her company's technology
#AltCareers
#BIIW21
Read 20 tweets
🟣 #CrowdfundMonday: Community #Crowdfunding for Diverse Independent Creatives

HOST: @YHBNews

SEP 20TH | 10AM PT

Share your campaigns LIVE.
⬇️
#filmmaker #artist #gamedev #theater #author #BIPOC #LGBTQ #women #disability #inclusion #YHBNEWS #RT

twitter.com/i/spaces/1LyxB…
WHAT:
Promoting #crowdfunding can be difficult. But not when you're part of the interactive community at #CrowdfundMonday! Since 2012, we have shared resources to help each other minimize the costs of marketing our short and long-term campaigns. /1
In the spirit of "Artists Supporting Artists," we encourage our community to amplify #crowdfunding campaigns for creators in emerging entertainment which promote inclusion through:

✅their content, and/or
✅their intentional hiring of cast and crew.

/2
#CrowdfundMonday
Read 12 tweets
Here’s something I’d like to try. Below are a list of workshop ideas that I have ready to go but wonder about interest. These would be first Live on Instagram and Facebook but then published to my website for free viewing & my YouTube channel. Like or comment. Here they are:
Autistic bug out bag: how to prepare yourself for sensory inputs while enjoying the adventure of life

Like or comment to support this video creation by The unLibrarian.

#autism #neurodiverse #neurodiversity #ConstructiveAdaptation #EverydayMagic #SelfCare
The link between self advocacy and confidence: removing the aggressive narrative

Like or comment to support this video creation by The unLibrarian.

#advocacy #disability #SelfCare
Read 9 tweets
I posted a tiktok video talking about alexithymia. I’m going to try to do a whole series using the #ndconcepts hashtag and then reshare here as I go.
And here’s one talking about a key insight in my own life that I learned from the always incredible @ahandvanish — it turns out that emotions make way more sense when you realize they’re senses.
On CPTSD — this cuts off the last bit, which explains my theory as to why so many ND people have cPTSD. Go watch it on tiktok, I’m mykola_b there
Read 10 tweets
So many of my views about drugs, drug use, and drug regulations have changed the past few months. This is what can happen when there's respectful dialog, sharing of ideas, and factual information.
I know several people in recovery. I've seen them struggle. I've seen them have to wait to get into treatment. I've seen them have to go to a short term program instead of a long term one because of finances / insurance approval.
I've watched some relapse, I've known some to die, and I know some who live amazing lives working their recovery programs.

I've seen too many go to jail when they needed to go to treatment....
Read 8 tweets
I feel a thread coming on. Grab a coffee and your reading glasses. My feels are flowing.

With so much conversation about bias and disclosures I thought maybe it was time to look at my own. Why is the movement to #ChangeTheConversation and save #ABillionLives so important to me?
I chose to enjoy some online interaction with fellow advocates last night and stayed up very late. So I already knew I'd be tired today because of lack of sleep. The little sleep I got was far from restful.
I dreamed I was in a hallway, peeking through the crack in a door. Saying, pleading, yelling...

"Hang in there bud, you got this, come back to us, please don't die! I love you, I'm here, can you hear me? TOM! It's Mom. Please hang in there".

I dreamt it over and over. 😢
Read 23 tweets
Several children in our group have had a diagnosis #PANS triggered by Covid infection.

💙PANS = Paediatric Acute-onset Neuropsychiatric Syndrome💙

A sudden onset of:
👉 OCD symptoms and/or severe eating restrictions
👉 Cognitive, behavioural, neurological symptoms (at least 2)
😢"It’s like my child woke up as a
completely different person!"😢

#PANS kids display a dramatic personality
change, some #OCD, tics or issues with
food, together with a number of other symptoms
usually following some kind of infection.

panspandasuk.org
In very young children, #OCD can display as intense anxiety or fears.

Symptoms can be extremely alarming:
👉Anxiety/depressive moods
👉Aggression and/or irritability
👉Severely oppositional behaviour/regression
👉Sensory & motor abnormalities
👉Hallucinations and/or psychosis
Read 5 tweets
Most weeks now, there's new research published talking about autism in terms of monotropism: a tendency to concentrate attention, and have relatively few interests aroused at a time.

A lot of autistic people feel this explains our experience better than any other theory. Thread:
#Monotropism getting this much attention has been a long time coming!

My mum started talking about autism in these terms in the 1990s, building on her 1986 PhD thesis with help from Mike Lesser and later @WennLawson.

Here's a 1997 chapter on 'normality':
researchgate.net/publication/33…
She presented at various conferences about her ideas, developing them as she got to know and befriend various other autistic people, disabled to varying degrees.

In 2005 she published this paper in @JournalAutism together with Wenn Lawson and Mike Lesser:
researchgate.net/publication/78…
Read 19 tweets
Autism Parents: Only speak to your experience of #Autism

Also Autism Parents: We need full control over Autism funding because Autistic people are getting too politically empowered and speaking out against services WE like
Reminder, Canada has a group of lobbyists and parent advocates that work to advocate for ABA against the stated interests of Autistic self-advocacy groups in the country

Actions against this group have been framed by "progressive" politicians as an "attack on autism services
Remember that when you see an "attack on autism services" referenced by politicians in Canada they are talking about Autism Conversion therapy ABA

It's working to advocate against these lobbyists, people are starting to listen
#Autism #BanABA #Cdnpoli
Read 20 tweets
🚨#actuallyautistic and #neurodiversity pals!🚨
A chance for self advocacy that can make a BIG difference in interventions for autistic kids!
ucdavis.co1.qualtrics.com/jfe/form/SV_82…
The MIND institute of UC Davis is one of the foremost research organizations for autism and neurodiversity. They have enormous sway and their findings wide up in policy everywhere from DC to your local regional center.
They are surveying stakeholders to see how they feel about the neurodiversity movement, social vs medical models, appropriate interventions, and they have autistic grad students running it.
Read 5 tweets

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