Discover and read the best of Twitter Threads about #CripTheVote

Most recents (24)

So in my city #SSI pays $771 a month.
I was just informed that I don't qualify because although I make below the poverty level in annual income, that income makes me ineligible.

The SSI person was very nice as I coughed through our conversation, but it's over.
How is anyone supposed to live on this amount of money in a big city? It's beyond belief. Who sets these income levels? Where are #disabled people supposed to live? How are they supposed pay for a phone? Even a burner costs $25 a month. What about utilities?
The insanity is, I just qualified for #SNAP because I live below the poverty level, but that "entitlement" as the #SSI person explained, counts against your income limit. The woman was very nice & commiserative, but she closed out my file. My application for #Medicaid is pending.
Read 6 tweets
How do we honor the our disabled elders & ancestors?

When I first found out that Carrie Ann Lucas @DisabilityCubed died 3 days ago, it was painful. Like countless of sick, chronically ill, and disabled people, she died at the hands of the medical industrial complex.
Carrie Ann created disability culture, family, and community. She lifted people up and defended their rights. She fought the system with every tool at her disposal. She loved her friends and family fiercely.
Stories can carry our history, joy, love & grief into the future. We can preserve Carrie Ann's crip wisdom by sharing stories about her. I'm delighted to publish 2 guest pieces for @DisVisibility by disabled parents about Carrie Ann, a badass unapologetic queer disabled mother.
Read 10 tweets
Nearly *HALF* of the 700,000 people behind bars in U.S. jails -- many of them there because they can't afford money bail -- are people with mental illness.

via @SteveCollNY @NewYorker… #DisabledBehindBars #cripthevote
@SteveCollNY @NewYorker Note: It's not just people with mental illness being warehoused in U.S. jails (and prisons). It's people with disabilities broadly.

People behind bars in U.S. jails & prisons are more than 3x as likely to have a disability than the general population:…
Meanwhile: Poor conditions and inadequate access to health care & mental health treatment can not only exacerbate existing conditions -- but also cause disabilities & health conditions people didn't have prior to incarceration.
Read 4 tweets
Here's my latest update to my collection of active Twitter #Disability & #ChronicIllness Hashtags - previous update 12.13.18.

Please share it. Thank you! :-) Light blue sand background has the # drawn in the sand to the right. The left side is blank. <br />
<br />
At the bottom of the picture, text reads
Portable PDF version will appear on my Kofi in the next day or so.


These hashtags are for sharing your stories & experiences. Also helpful for crowdsourcing solutions.

Read 45 tweets
Yes. And there are also a number of other serious disability rights problems with his bill. #CripTheVote #HealthcareForAll…
The #M4A bill also implicitly has a formulary for assistive technology "(a) Negotiated Prices.—The prices to be paid for covered pharmaceuticals, medical supplies, and medically necessary assistive equipment shall be negotiated annually by the Secretary."
You can't really do annual price negotiation for all approved assistive technology unless you have a formulary restricting what you will cover. This provision is going to cause major problems for people who need assistive technology.
Read 12 tweets
As a disabled disability rights activist, I am concerned about the potential consequences of exclusive focus on the Disability Integration Act. #DIAtoday #CripTheVote #FreeOurPeople
To be clear here, I want to pass the DIA. I’ve been arrested advocating for the DIA, I’ve put creativity into finding effective narratives for the DIA, and I expect to continue to do both.

I also think that we need to be careful not to put all of our eggs in one basket.
The effort to #FreeOurPeople is broader than the effort to pass the Disability Integration Act. And, in fact, our #DIAtoday advocacy has yet to free any of our people.
Read 13 tweets
This has been the most frustrating day.
I have been working since I was 14.
I am now trying to apply for #disability--#SSDI.
It's a ridiculously arduous process meant to trip people up and keep desperate/sick/#disabled people from accessing help.

We must do better.
Since the #GOPTaxScam, my health insurance premium costs $1,978.10 PER MONTH for an HMO.
The cost of being sick in America.

That is just my premium--not the co-pays, not the cost of oxygen, hospital bed, Rxs.

I'm already bankrupt and soon The Wife will be as well.
My health insurance premium costs $24k a year.
That's more than I make as a writer.
How is this acceptable, America?
If I didn't have a partner, I would be on the street, paralyzed and sick.
Is this what we want for our most vulnerable people?
Read 7 tweets
Not one person running for president in 2020 has a #disability platform thus far.
#HillaryClinton had one in 2016.
She had #disabled people on her staff.
She'd been addressing disability for decades.
She invited disabled people to speak at the Democratic National Convention.
One in five Americans has a disability, according to the CDC.
We are the country's largest minority.
Why aren't candidates falling all over themselves to reach out to us?
Because we have been rendered invisible.
That much change.
Some candidates are pushing #Medicare4All which we need in this country, but not one has addressed the huge gaps for coverage of the #disabled.

I wrote about how many women are impacted by #disability in this investigation for @damemagazine:…
Read 3 tweets
A number have people have reached to ask about @NYGovCuomo's attack on #CDPA services and what it will mean for disabled New Yorkers. I'll try and cover it in the thread that follows. #CripTheVote
#CDPA or Consumer Directed Personal Assistance began in New York and was quickly copied across the country. It was designed by disabled people for disabled people to give us more control over or lives and the supports we used to live in the community. #CripTheVote
#CDPA makes disabled people the employer of the attendants who provide us services. It gives us control over hiring & firing as well as how and when it is provided. It lets us control who touches our bodies, who assists us with our most intimate needs and who doesn't #CripTheVote
Read 16 tweets
Patients/Disabled folks: Have you ever been in a situation where your doctor couldn't be reached and you needed an Rx refill? Like on a holiday weekend and you needed an inhaler or your lyrica? I need your stories. #cripthevote
A bill in Colorado will have a hearing next Wednesday on this issue. It would allow pharmacists to refill your Rx if they can't reach your doctor. The bill text is here:
The bill came to be because a man died when he didn't have insulin and a pharmacy couldn't reach his doctor and thus refused to refill it. Several states have passed similar bills so that this situation will never happen again.
Read 7 tweets
REMINDER: Trump is nowhere close to done trying to dismantle Medicaid by fiat, after failing to get his cruel cuts through Congress.

A quick refresher on what “block-granting” Medicaid would mean and why it’s so dangerous.

1. “Block-grant” is code for converting a program from one that guarantees coverage to all who qualify, to one that helps fewer and fewer eligible people over time due to capped funding that declines year by year.

Here's what that would mean for Medicaid.
2. Medicaid is a federal-state program, meaning it’s partially funded by the federal government and partially by states. Currently the feds pick up a set percentage of states’ Medicaid costs.
Read 21 tweets
Here's my lastest update Twitter #Disability & #ChronicIllness Hashtags - previous update 10.17.18

Please share it.
I'll have a PDF version of this for download on my Ko-fi by this time tomorrow. Link at the end.

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

Read 29 tweets
A6. Twitter, despite some people's belief that #ChronicPain can be cured by ridiculous things, is a wonderful place to find and participate in community. #LupusChat
A6. Some favorite hashtags and Twitter chats, then I'll leave a link to the last time I updated my list.


#LupusChat of course
Read 3 tweets

Today, we're pleased to announce the 2018 Bitch 50, recognizing the most impactful creators, artists, and activists in pop culture whose imaginations extend beyond normalizing and affirming the same mainstream messages.
We honor @eveewing's work as a sociologist, professor, author, and poet, and her concise, witty, and often withering commentary on the communal toll of systemic racism.
Culture writer @IWriteAllDay_ created the Kent Test, inspired by the Bechdel Test, to evaluate the representation of women of color in media. Criteria includes “must not solely exist for the purpose of fetishization” and “must not be solely included for a male character's story.”
Read 8 tweets
This #Thanksgiving
I'm thankful to still be alive.
I wasn't sure last Thanksgiving I would get here.
I'm thankful for my docs, my two nurse practitioners, my physical therapist who have made a harrowing year less so.
I am also grateful my story has helped others tell theirs.
This #Thanksgiving
I am thankful for all the love and kindness in my life and for the ability to love others in return.
There aren't really words to express how grateful I am for The Wife™️.
She's simply amazing. Smart, talented, hilarious. 19 years. Fabulous. 💜
This #Thanksgiving
I am thankful for my fam.
I see the stories on here of folks who can't handle their racist families or who are rejected for being queer/trans (as I was by my parents).
Thankful to have a family who are left political activists & #LGBTQ allies & who I love.
Read 8 tweets
Thank you everyone who is coming to the Nov. 13 meeting to support me and other disabled voters who’ve been dismissed about inaccessibility. I had a disabled woman tell me she experienced discrimination in Fulton. I’ve heard from others. This is a huge issue. #CripTheVote #GApol
This is a list I wrote for an abled voter and shared with a Georgia councilman who wants to do better by disabled voters. Please use to see if a place is really accessible. If it’s not, file complaints because disabled people are ignored, dismissed and abused when we do complain.
This causes some to not vote, others to not complain. We’re focused on our safety in the moment, voting and leaving. I’ve explained to well-meaning poll workers that just because they don’t perceive/aren’t told of inaccessibility or discrimination doesn’t mean it doesn’t happen.
Read 16 tweets
So my PT just texted me to tell me that @IBX is discharging me from physical therapy because their medical director thinks it is no longer medically necessary for me to have physical therapy.

I am still paralyzed and still have MS, but it's not medically necessary?
This is what sick people go through every day: fighting for the most basic services.

PT is essential for folks with neuro/muscular diseases.

I pay $1,978.10 PER MONTH for my health ins premium for an HMO because I am sick.
Now I can't get PT b/c it's not medically necessary?
This is everyone you know next year if you don't get to the polls and take a freaking busload of people with you.
We have to get the House back if we expect to live another year under this system that is crushing sick people every day.
Read 3 tweets
Liaten. Monday call your state repreaentatives to put a stoo to this. 12 states have agreed ro it??? WTF?…
We’ve talked about this before. It’s not a hoax or a joke. Monday cal. Tuesday vote if you haven’t.
The people@who want to@kick@out your immigrant parents and friends can not be allowed to get their hands on our Constitution!
Read 17 tweets
Arlington Texas voting update on #Accessibility and early voting for #disabled voters.…

The update to this has my voting experience as a #DisabledVoter.

The place was accessible and catered to multiple types of disabilities including invisible disabilities.
Signage explaining the #disability rules. 9 flyers posted outside the door of the pool entrance, giving the rules of voting laws for mobility and other data.
Read 4 tweets
Some voting and disability issue resources ... #CripTheVote #RevUp #Midterms2018 (11 of them)
2. Find Your Polling Place - National Association of Secretaries of State #CripTheVote #RevUp #Midterms2018…
Read 12 tweets
.@Commish_Schmidt In these days of #VoterSuppression, we all need stories of public servants who are fighting it.

When I got another ballot app instead of my ballot, @Commish_Schmidt stepped in, made sure I got my ballot & that it got in before the deadline.

He saved my vote.
@Commish_Schmidt #Disabled voters are most likely to face #VoterSuppression and voter disenfranchisement.

We should not have to fight to vote.

The forms are hard to understand and make voting more difficult. But @Commish_Schmidt showed real concern for what disabled voters face.
@Commish_Schmidt Hopefully in the future @Commish_Schmidt and I can talk more about what can be done to make voting more accessible to the 1 in 5 voters with a #disability. This is a demographic that has yet to be addressed, but we are THE largest voting minority in the US.

Read 3 tweets
A3. I want to say yes. But I do not see it here in North Texas.

And you see things like free/discounted @Uber & @Lyft but then they often can't accommodate your wheelchair or other mobility issues. #CripTheVote
A3. Plus, if you are forced to demand a provisional ballot, it often requires follow up for that vote to be counted. Where's my free/discounted ride then?

A3. People also tweet things meant to go wide but the link is in text in an image with no image description or hyperlink.

Read 5 tweets
Okay so provisional ballot aren't *automatically* thrown away. (Never said they were but not the point.)

But they are thrown away if you can't do the follow-up legwork.

Some people literally can't. Or don't know.
And those tampering with voter registration know this. #GOTV
Who can't?

It once took me nine months of active coordination and effort to be treated by an oncologist.

Between transportation, being well enough to ride in the car & financial issues.
Read 36 tweets
We have to look into reasons behind supposed low voter turnout or we're just spinning our wheels.

Major Democratic leaders can point out the disenfranchisement on TV for example.
One huge example? What if ...

🗣Texas is blue/purple
🗣Has been so for 2 or more decades
🗣Is a test ground for more types of cheating than gerrymandering?

This *may* not be true. I haven't deeply studied this outside the two areas I've lived in this state.
But this needs investigating, at the least. That's the reason for this thread, and my last "voting isn't the only answer" thread.
Read 25 tweets

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