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I'm in awe about how far this spread yesterday and today, and humbled by everyone coming forward with stories like mine. There are so many of us. I've been getting a lot of DMs about causes of particular symptoms. I'm part of a recovery program thru Mount Sinai, and the... 1/
head of the program thinks that a lot of long-term symptoms can be explained by Covid causing sudden onset autonomic dysfunction, including POTS. Another theory is that the virus is triggering either CFS/ME or MCAS. I am not a doctor, but wanted to pass this along bc... 2/ many people in my mentions are chronic sufferers of these diseases & recognize the symptoms. The truth is we don't know yet. Part of this journey, for me, has been learning to sift through speculation and trying to practice patience, because this monster is brand new... 3/
and science takes time. (Admittedly, this isn't an easy thing to practice when you're in pain. I'm trying.) Thank you for the well-wishes. God, it's been an emotional experience, to read all your messages. If you're looking for something tangible to do, write to your... /4
representatives and tell them that they need to be fighting for post-Covid recovery support for their communities. Tell them to publicly acknowledge patients who are suffering long-term. And google "covid long-haulers" for more information. Thank you. 💜 /end
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