1. People with #LongCovid : the reason medicine has nothing to offer you right now and your life is hanging in the balance with zero prognosis is because post viral diseases such as ME/CFS have been ignored, stigmatised and ridiculed as psychosomatic for decades.
2. There has been virtually no biomedical research funding in all this time as we were told it’s in our heads and sent to do CBT to cure our “false illness beliefs” and Graded Exercise Therapy to cure our fear of exercise (erm..yep... except many of us were athletes before M.E.)
3. You know how sick you are right now. You know that you relapse every time you try to do a bit more. Can you see how graded exercise has made many M.E. patients permanently disabled? It may do the same to you. The virus has affected your energy metabolism.
4. Trying to exercise out of it is like trying to run on a broken leg. We have the @KingsCollegeLon psych lobby to thank for these disabling “treatments” and the total void in research funding and why we now have ZERO to offer you to get your lives back.
If you want to learn more and help future research so we all, those sick for years as well as new patients can get our lives back, please look at @OpenMedF
