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Samantha Hartley (Sam, she/her) Profile picture
@HartleySamantha
Aug 5, 2020 • 9 tweets • 7 min read • Read on X
Our #qualitative study exploring the experiences of people involved in #participation and #involvement for the design and delivery of #CAMHS has just been submitted for publication, but we didn't want to wait to share some key findings and resources with you! Image
Following a #research and service development meeting to design a new staff-based intervention for inpatient #CAMHS (Follow @StudyTric and me for updates in due course), we asked those present to tell us about their experiences of being involved.
In line with @NIHRinvolvement guidelines, our group included all those with a stake in the intervention and lived experience of the context: young people, family members and frontline clinicians all sharing their expertise alongside researchers and clinical academics.
Previous experiences drove hopes + fears related to involvement. Participants felt like they were 'all in the same boat' - sharing a sense of community + respect, working for a similar aim, alongside 'wearing different hats' drawing on various facets of their experiences + roles.
Individual experiences varied, with a real richness in the data. We have submitted the paper for publication + can share in due course. It's been a positive collaboration between @OfficialUoM @ManMetUni and @PennineCareNHS led by myself, @JasmineHearn1 + a wonderful MSc student. Image
We have these photos available as a pdf and jpegs for digital sharing and formatted as a three-fold leaflet for printing- more than happy to share. @HealthyYM @McPinYPNetwork @42ndStreetmcr @GMiTHRIVE @AFNCCF @RollercoasterPS @WeCanTalkCYPMH @CAMHsBright
It's sparked more of an interest for me in understanding how to implement effective #involvement. Exploring more fully the experiences of those that don't want to do this, understanding when involvement doesn't work + why. Who is excluded + how can we make it better for all.
....+How we can create spaces where clinicians' individual practice is shaped by meaningful involvement, education + challenge from those with lived experience of services. Myself and @beth_1day have been working on this and hope to share and do more in due course.
We have now uploaded the electronic sharing version onto ResearchGate. We also have a three-fold version for printing as a leaflet so please ask if you want that. We will share the paper once published. researchgate.net/publication/34…

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More from @HartleySamantha

Samantha Hartley (Sam, she/her) Profile picture
Jan 18, 2022
NHS mental health service sometimes repeat patterns of trauma that are present in society and often in the histories of the people we are meant to help. 1/9
When people are coerced into receiving treatment (or ending treatment), that repeats coercive control. 2/9
When services are not there for people's clear needs, that repeats neglect. 3/9
Read 9 tweets
Samantha Hartley (Sam, she/her) Profile picture
Nov 23, 2021
Mental Health Professionals: struggling with the idea that we have power?
That's probably because we work in systems where we feel utterly powerless lots of the time.
But power is relative + dynamic + we'd best wake up to it.
It'll be painful for each of us in different ways....
We want to see ourselves as useful, helpful, caring. We could've done this in other ways e.g. a befriender. But we chose professions that conferred 'expertise'. There's probably something that drew each of us to that (the avoidance of the other bad, shameful or vulnerable place?)
Whatever route we took, we arrived at somewhere with a caring and (relatively) powerful role. With that power comes responsibility. Responsibility to not pass the pain down, responsibility to ground oneself when in the maelstrom of the expression of traumatic or relational pain.
Read 6 tweets
Samantha Hartley (Sam, she/her) Profile picture
Nov 22, 2021
So, I started to work on this in the background a bit, over a year ago. I had hoped I could get something off the ground in my workplace but that doesn't seem viable (yet). Thinking of continuing it outside (/alongside) my work role. Wondering how to do this practically.
I wanted to get something backed and funded going so it could be co produced. Without a structure or resource, I’m not sure how to do that well or fairly. I have drafted some stuff already so could just ‘put it out there’ and see what comes back but that seems a bit uncertain.
There was an @EmergingMindsUK SIG on harm but I haven’t heard much from them recently and there was already a developing agenda so probably not space for this in addition.
Read 4 tweets
Samantha Hartley (Sam, she/her) Profile picture
Sep 29, 2020
I am on the edge of burnout. I think it’s important I’m honest about this yet wanted to take some steps before I shared publicly. I am emotionally exhausted, full up + empty, noticing my red flags (suicidal thoughts - I’m not suicidal, I am safe; this is a sign for me to listen).
Many others are too. Those and I who are resilient, persevering, compassionate, determined, innovative. I got a first class degree while depressed and experiencing ED, I did a PhD while working full time. I have worked in complex care for six years. This is new.
I will carry on. I must, I can, I have to for those that need me to and, I want to. I am taking steps personally and professionally to manage. We are working together to resolve more broadly. And yet this sign is my body and mind telling me something.
Read 5 tweets
Samantha Hartley (Sam, she/her) Profile picture
Sep 6, 2020
So much pain is caused by our human difficulty with holding in mind two truths; working with dialectics. Synthesising apparent contradictions can be healing and yet it’s hard.
I am right and yet you’re not wrong. I am responsible and yet it’s not my fault. You need help and yet we cannot help you. I have empathy for your position yet will challenge your action. We are where we are and yet must move. There is good evidence and yet it is equivocal.
Being with apparently contradictory ideas is hard. The urge to resolve this by holding fast in one position and denying the other, rather than synthesising or honouring them both leads to words and actions that can be harmful and are experienced as dismissive or dishonest.
Read 5 tweets
Samantha Hartley (Sam, she/her) Profile picture
Sep 3, 2020
It has been so valuable to write this piece for @AsylumMagUK. The call-out from @HSpandler came at a time I was navigating my own position on this and writing it helped me explore and develop that
(a journey very much ongoing...) Image
That, on submission + publication, I felt a surge of anxiety in how it would be received is testament to some of the themes I have discussed, IMO. There is pain in connecting with the current landscape, in services + our roles in that, and yet it's so vital for healing + growth. Image
I already subscribe via @pccsbooks but awaiting my bonus hard copy to read somewhere with time, space and stillness. If you haven't already, check out the past issues and consider subscribing @AsylumMagUK - listening to each other is the foundation of how we make changes together Image
Read 4 tweets

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