It's day 2 of the Disability Royal Commission into "the use of psychotropic medication, behaviour support and behaviours of concern". We'll be live tweeting from here again today using the hashtag #DisabilityRC
We heard some harrowing testimony yesterday and we encourage everyone to look after yourselves as we go through this together.
We invite you to follow along on the journey with us, but also remember you can temporarily mute the hashtag or a thread if you need to. #DisabilityRC
@FrancesPWDA will be live tweeting for us from her account this morning. Check out the thread here:
We're back from the break, going to Brisbane. The next witness is Joyce-Lyn Smith, interviewed by Ms Zerner. Ms Smith is the Clinic Director of PoDDSS (Professional Disability Development Supports & Services). We're going to be talking about support plans. #DisabilityRC
"Positive behaviour support" plans specifically. The language here is already ableist, focussing on our behaviour rather than our environments. #DisabilityRC
Ms Zerner says we have heard a theme today that behaviour support plans are the gateway to use of chemical restraint.
We're talking about the different definitions in "chemical restraint" between NDIS and Queensland, creating confusion with reports from doctors.
Ms Smith is describing the process of spending time with a person with a disability in different setting over time in order to set up a behaviour support plan. #DisabilityRC
Focus on "person centred approach" talking to many of the "stakeholders" including family, support workers, allied health ... #DisabilityRC
Talking about proactive and reactive strategies to manage "behaviours of concern". Talking about giving support workers strategies to use language in ways to avoid upset. #DisabilityRC
The language here is concerning. One moment we're talking about improving quality of life for the PWD (good), the next we are talking about reducing "displays" of "concerning behaviour". #DisabilityRC
Talking about data collection now as a way of identifying why particular behaviours are happening. E.g one person had a "behaviour of concern" at a similar time every Wednesday ...
Turned out the support workers on at that time were consistently having conversations that were upsetting to the PWD that were being overheard. #DisabilityRC
Ms Smith is talking about a case where a person centred behaviour support plan was effective. The general theme is that figuring out *why* people are behaving as they do, and actually talking about that with support workers is helpful. #DisabilityRC
An anger management program was helpful in another case. EMDR therapy is also identified as one option to support people who have been impacted by trauma. #DisabilityRC
The focus now is on effectively reducing the need for psychotropic medication as a restraint. We are still qualifying with "reduce the need", implying there will inevitably be *some* need for chemical restraint even with behaviour support plans. #DisabilityRC
Now discussing how behaviour support can help PWD to stay out of the criminal justice system, making effort to support people in their interpersonal relationships in particular. #DisabilityRC
Talking about quality control of behavioural support plans. In Ms Smith's understanding 1 in 5 plans are checked for quality control. #DisabilityRC
Now talking about challenges with regulation. Differences between the NDIS and the Queensland Framework. E.g. regulation that applies to under 18s in the NDIS not under the Queensland Framework #DisabilityRC
One method that may be used to justify use of psychotropic medication under the NDIS regulation is adding a diagnosis so it can be identified as treating a condition rather than a form of chemical restraint. This is very *very* worrying! #DisabilityRC
Post NDIS, more cases of chemical restraint used on children have become apparent, as they are now covered by legislation. Dept. of Child Safety still do not acknowledge use of chemical restraint though. #DisabilityRC
Sackville asks (paraphrasing): Is a behavioural support plan not so much about the PWD's behaviour, as much as the behaviour of the people around them and the environment?
Smith agrees it is. It's about educating the people around the PWD.
Smith confirms that a behaviour support plan is about improving quality of life and reducing the need for restrictive practices including chemical restraints. #DisabilityRC
Getting ready to live tweet the last day of the #DisabilityRC hearing into the use of psychotropic medication and chemical restraints.
It's been a tough week, so if you need to mute this thread of the hashtag, we do understand.
If you feel impacted by anything you read here today, remember you can always call Lifeline on 13 11 14.
You can also call the National Counselling and Referral Service (specifically set up to support people impacted by anything related to the #DisabilityRC) on 1800 421 468.
We have been very disappointed so far with the lack of people with disability giving evidence at this hearing, and we'd like to start this thread today by sharing three blogs written for us by people with lived experience of the mental health system. #DisabilityRC
Getting ready to live tweet the #DisabilityRC again this morning. Thanks to everyone following along this week. Some of the testimony is confronting to hear, and we appreciate everyone engaging with us this week.
As always, if you need support, you can reach Lifeline on 13 11 14.
You can also call the National Counselling and Referral Service, set up to support anyone impacted by anything related to the #DisabilityRC, on 1800 421 468.
@FrancesPWDA is live tweeting this morning's #DisabilityRC sessions. You can follow the thread here:
The 6th Disability Royal Commission hearing on "the use of psychotropic medication, behaviour support and behaviours of concern" starts today at 10am, and we will be live tweeting the proceedings from here.
We'll be using the hashtag #DisabilityRC if you'd like to join us.
The Royal Commission is back from recess and we will be live tweeting from here for the next few hours. #Covid19#DisabilityRC
Rachel Spencer from @CIDvoice (Senior Manager Inclusion Projects) is now giving evidence. Ms Spencer describes her role overseeing projects promoting the inclusion of people with intellectual disability #Covid19#DisabilityRC
@CIDvoice focuses on health, transport, education and safety for people with ID (intellectual disability). The majority of the board are people with ID.