Thread by @DressFor_ME

Their warped sense of “gains” bares no resemblance to any actual reality. It is in fact #prejudice #stigma & #disabilitydenial

What they think & project on to patients vs the actual reality: A thread.

1. I earned better money, kudos & respect in my job in film. Benefits process is cruel, demeaning & arduous & for a pittance.
I think I will randomly throw away a great career, money & status for a shitty stigmatised emprisioned demeaning life on the dole ... said no one ever!!

Equipment? Wtf. What “equipment” is that? 🤨🤷🏻‍♀️

I have not received anything to help my day to day life living with this disability in 20 years.

I bought myself a stick seat and a shower seat. I know how to really spoil myself with something fancy(!) 🙄🤦🏻‍♀️

Accommodation. Yeah I gave up freedom & independence to live with my elderly parents because they could really do with worrying about my health & future. What kind of a moron would list that as a “gain” many #pwME without support end up destitute & struggling to feed themselves.

2. My friends were NOT sympathetic. I lost 90% of my social circle in a year. Some family members were unsupportive and a couple quite nasty. Doctors unsupportive as MEcfs has huge stigma.

A stigma that these psychs have entirely created themselves with their unfounded “gains”.

There is no special care & attention for #pwME. If you have the misfortune to get severely ill there is zero medical support, no specialist, no care. In fact if you try the CBT/ GET combo & make you severely ill, they just drop you to deal with the terrifying fallout yourself.

3.Of course it’s only sexually abused women that get ME said the person ignoring that there is zero evidence for this. Only a sexist dogmatic psych would spit out this hysterical women nonsense & ignore all the children & men with this condition. 🙄🤦🏻‍♀️

4 “social mystique” wtf. Apart form no longer having any social life or social status I had more social mystique in my exciting glamorous job in film.

Feeling like utter shit every day with no help or medical support not so much. You get so ill that people forget you even exist

There is no “mystique” just stigma, pain, suffering & isolation.

Glorifying the gains from disability to justify prejudice and hatred for those that have a disability is just wrong.

Fact. #MyagicE is not rare. It’s more prevalent than MS and is widespread across the world affecting millions.

It is a silent pandemic currently ignored by medicine for 30 years.

The fall out from coronavirus will bring this fact sharply into focus.

#MyalgicE is seriously underfunded, neglected and a field dominated by misinformation from a small cabal of toxic psychs intent on harming and killing patients with their toxic narrative with no consequences.

Be in no doubt. This is government endorsed medical abuse.

It must end now @NICEComms

How biomedical ME research was crushed by a small group of psychs: hfme.org/whatisme.htm