Estimated national death toll of people with learning disabilities nearly 1,000! 3.6 times the rate per 100,000 than the general population.
During peak 1, number of deaths of people with learning disabilities were 3x the average over same period in the 2 previous year. (general population 2x).
People with learning disabilities disproportionately affected.
Higher death rates 55-64 for people with learning disabilities (75 for general population)
Greater margin of deaths of people with learning disabilities relative to general population in younger age groups.
small number of reported deaths from minority ethnic groups. This hindered anaylisis.
Number of deaths of white people with learning disabilities 1.9x the number in previous 2 years.
For Asian it was 4.5x, black 4.4 times.
minority groups disproportionately affected. @culturalhealth_ FYI
Care home deaths accounted for 54% of adults with learning disabilities deaths. In community - those receiving social care similar to care homes although data not fully reported.
general consensus of under reporting of deaths to LeDeR.
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More from @theLDphysio

1 Apr
@CNEamonn @rachaelmoses can I again reinforce the need for employing a staff member with specialist Learning Disability Knowledge? If you are creating a facility the size and scope you are, then there should be a requirement to have at LEAST LD liason nurses. These roles have
proven invaluable in saving lives in mainstream hospitals where bed numbers vary between 400-1,000 and in creating a facility without this key piece of experience we are opening the doors to neglect of human rights of those who are most vulnerable. LD nurses have experience
in the Mental Capacity Act and reasonable adjustments which remain legal responsibility of healthcare providers, even in times such as these. The changes suggested can and do save lives. They can also be key links and advise about areas including discharge planning and future
Read 9 tweets
15 Jan
I talk a lot about getting creative with exercise and some of the time it takes the form of adapting use of equipment or supporting understanding of it's use.

Then there are days when it's about making stuff up on the spot to build engagement.

Yesterday was one such day... 1/
Young lady with Moderate LD is in the gym, she has poor balance, lower limb weakness and low bone density.

She is a really fun character to work with but is easily distractable and she rarely engages with things for more than a few seconds. 2/
she responds really well to banter around who is cheekier, her or me and I comment on her rather smashing pink, sparkly, FLASHING trainers that she got for Christmas.

I add that I'm amazed she managed to get presents despite being on the naughty list 3/
Read 13 tweets

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