After eight months of being scrupulously cautious, pulling the kids out of school, not attending church or eating in restaurants or doing anything with anyone, my husband has covid. Because he had to go back to work and the people around him weren’t as careful as we’ve been.
I am alternating between terror and incandescent rage. We’re doing everything we can to keep the rest of us, especially Ethan, safe. But what does it matter when everyone else acts like this isn’t a big deal?
So far the Husband of Joy just has mild symptoms, but we know that can change. We’re well set up to monitor him here (hello medically complex child arsenal of equipment), but it’s more than that.
The rest of us are going to have to be tested next week to make sure we’re not asymptomatic carriers. That means coping scripts and medical play between now and then because we don’t want to make Ethan’s medical trauma come roaring back.
It means I’ve repacked my hospital go bag; if Ethan gets sick, we know he can go downhill fast, and we need to be ready.
The Husband of Joy was exposed at work, where they all sit together in an office, six feet apart but unmasked, despite all the science that says that’s not safe.
So when you’re thinking you’ll just get together with a few people for Thanksgiving? When you pull your mask down just for a few minutes? When you vote for people who won’t implement government aid so that people can stay home? Think about our family.
Because it doesn’t matter how careful we’ve been. If you don’t stand with us, we don’t stand at all.

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More from @aliranger29

13 Mar
Got kids at home suddenly and need some screen-free entertainment? Here's a list of some of our favorite podcasts:
We have to start with our all-time fave: @storypirates. Kids write stories and they turn them into amazing sketch comedy and songs. Their website (storypirates.com/podcast) has bonus content and you can get your kid writing stories to send in!
For science, and @Brains_On is a great place to start. It's a fun mix of silly and serious, and my kids love trying to guess the mystery sound. Their recent episode on COVID is excellent. Their website is brainson.org
Read 27 tweets
26 Mar 19
What’s hard for me is the sheer number of people who believe that this is no big deal and that life for families like mine will just go on as usual. Because surely insurance companies didn’t REALLY deny based on pre-ex conditions before the ACA, right?
I don’t know how to convince people of what is true. I don’t know how to make people care, how to convince them that there’s enough to go around in this ridiculously wealthy country.
So I’m sitting here again, crying into a pile of laundry, gutted that it wasn’t enough. That laying bare our family’s private medical story, sharing the bright light of our son with them, that it somehow wasn’t enough.
Read 7 tweets
15 Aug 18
Against him getting up the courage to kayak on his own for the first time.
Against just one more scoop of ice cream.
Read 11 tweets

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