Cochlear implant fact of the day: those inspirational CI activation videos that you see on the internet do not tell the whole story.
When you see those videos, you see only the reaction from the CI user and/or their parents. What you don't see is how the CI user is hearing in that moment and all of the work that lies ahead of them in learning how to hear through their CI.
You might be wondering, "What's wrong with celebrating when a person has a good CI outcome?" Nothing at all! But whether an outcome is "good" isn't apparent from a CI activation video. Activation day is only the beginning of a long process.
Depending upon the individual CI user (child or adult with their own unique history) and the outcomes measured (hearing, speech, language, academic performance, etc.), whether the outcome was "good" might not be fully known for months or years.
Also, the emotional experience of having a CI activated varies greatly from person to person.
If you would like to see the perspective of an audiologist who uses CIs herself, Dr. Sparks received her 2nd CI while studying for her AuD degree. She filmed her activation experience and explained it. Full video in ASL with English voiceover and captions:
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Cochlear implant fact of the day: there is no credible evidence that sign language causes poor spoken language outcomes in children with CIs. Read this one carefully!
Little research exists on early sign language access in children with CIs specifically.
Some research has reported better spoken language outcomes for DHH children who communicate primarily in spoken language compared to those who communicate primarily in sign language. In some cases, study authors have suggested that sign language itself causes poorer outcomes.
Listening fatigue is a common experience for deaf and hard of hearing (DHH) people who communicate in spoken language. Understanding what another person has said requires cognitive effort.
Even more of that effort is required when a person does not hear all of the sounds clearly due to background noise or another reason. When a person is experiencing listening fatigue, they may feel tired, frustrated, and stressed, even after the listening situation is over.
They will probably have more difficulty maintaining attention and energy. This picture lists other examples too. Another person's listening fatigue might not be obvious. You might not always know that the DHH person in your life is experiencing listening fatigue.
Today's cochlear implant myths and facts post has been challenging to write. An important distinction must be made clearly. People with different perspectives might say that "CIs work!" or "CIs don't work!" Which is correct? The answer depends upon how you define "work".
CIs provide access to sound. They are highly effective for this, and almost every person who uses a CI hears more than they would with a hearing aid.
If you are a CI candidate and your expectation is better hearing than you would have with a hearing aid, that is realistic in most cases. But if your expectation is "normal" hearing and no difficulties with listening, that is not realistic.
Dr. Sarah Sparks, Au.D. is pleased to announced the formation of Audiology Outside the Box, an online practice serving clients in Maryland, Massachusetts, Virginia, and Washington, DC. Practice and website opening on November 30, 2020!
Audiology Outside the Box offers a different mindset about audiology services. The focus is on supporting your communication and hearing-related goals, whether those involve spoken language or not. All services can be provided in American Sign Language (ASL), English, or both.
What happens during your appointment? You share about your needs and preferences, and your audiologist will listen. Together, we will create a plan that suits your individuality and does not force you into a box.