There are lots of ME recovery stories, even though recovery is rare for ppl w/ ME for more than a few years. Often, people who recover are... really annoying. I've remitted 2x, and I've tried to talk about it v carefully. I'd like to suggest some guidelines for recovery stories.
https://twitter.com/PaulGarnerWoof/status/1353792263424503809
1. What worked for you may not work for others. ME is hetergoeneous. Say that.
2. You may not understand correctly what worked for you. Sometimes ME remits spontaneously, especially at the beginning. Present the evidence for your conclusion, and acknowledge that you may be wrong
2. You may not understand correctly what worked for you. Sometimes ME remits spontaneously, especially at the beginning. Present the evidence for your conclusion, and acknowledge that you may be wrong
3. Every treatment has risks. Give your best assessment of what those risks are for the treatment you chose, even if you didn't experience them.
4. Individual virtue, of any kind, is not sufficient to guarantee recovery. Your actions contributed to your recovery, but you could have done everything you did and had it not work.
Corollary: You're no better than others who are still sick.
Corollary: You're no better than others who are still sick.
5. You're in remission, but you can't know that you're cured. The fact is, your remission might end, no matter what you do. Hopefully not, but we can't know.
Each of those points is true for me and for every single other patient who has recovered from ME. Every. Last. One. Whether they acknowledge it or not.
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