This reminds me of the time I was part of an art exhibition in Schloss Hartheim in Austria. The palace had been used as a gas chamber in by Nazis to murder disabled people & ppl with learning difficulties, so it was now an institute to take care of ppl with learning difficulties>
> The palace was beautiful but such an ugly, evil thing had been done there. The downstairs was a museum that remembered what had been done. Upstairs was the art gallery, where work of disabled artists was shown. There was a custom built, beautiful building next door, where >
> residents lived, and appeared to have a much happier life in comfortable surroundings where they were free to create. The ugliness of the past was remembered though, alongside the progress of the future, a memorial to prevent the same thing happening again. >
> It’s a stark contrast to what we are seeing and hearing here: people being culled - left to die - because of their learning disability. This on top of the deaths of disabled people due to austerity, as well as the hardship and sever impact to their to their quality of life. >
> History won’t look kindly on this period of British history, where disabled people (as well as many other vulnerable groups) have died, been left to die, faced forced hardship and sanctioned abuse/hostility by government policies, with silence from mental health charities.
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Since I’ve been doing these, I get messages from ppl ‘off the record’ who either need to reach out for support or who reach out to provide support. I’ve found the hardest thing is being treated with such different levels of respect in different contexts. Does anyone else >
> experience this? What I’ve found is that as I’ve had expertise recognised and respected in some contexts, the contexts in which it is disrespected somehow go from being upsetting to unbearable. As you raise the fact that what you are experiencing is discriminatory & >
> disrespectful, and you have it ignored time and time again, you go from being able to give the benefit of the doubt, of being able to put what is happening down to ignorance, to starting to realise that it can no longer be ignorance. So what is it? Is it maliciousness? >
Discrimination is everywhere - sexism, homophobia, racism. I tweet a lot about the discrimination faced by #LivedExperiencePractitioners#LXPs who openly use their lived experience of mental health in their work. Do we need new legislation to protect us all from #discrimination?>
> Ppl who follow me/know me in real life know my health has been decimated over my experience of trying to address mental health discrimination. Did you know there is no legislation against systemic discrimination? Well, that’s what my union told me. It’s also almost impossible >
> to win a personal discrimination case, so they don’t give you access to a lawyer. Even stress claims are hard to win, so you rarely get union help either, including legal representation. I’ve lost my driving license, had seizures, take medicine that has left me with blurred >
Yikes. I’ve had a bit of a shitty night. Woke up from a dream where I was sobbing - proper distressed, inconsolable body sobs - about work. I was living in a tiny cramped flat with my deceased family members, with no room. People from work were coming in and out & I felt >
> ashamed and I was trying to say that I used to live on my own in a bigger flat and not share a bedroom with my siblings & live with my Mum but I couldn’t. There was a new manager who came to see me and somehow bizarrely ended up in my bedroom waiting for me and it felt >
> intrusive & shaming because she saw my poor living conditions and I knew she would have been told by management that I was unstable/troublemaker/no good/rubbish. So then I cried and cried and cried and cried (to show how stable I was 🤣) and then I woke up 😳😳😳 >
Is it bad that I feel my blood boil when I see equality drives that completely ignore the inequality that people in the #LivedExperienceProfessions face in the mental health organisations they work in. Imagine being in the intersection of being a Black, non-binary LXP? Your >
> experience of discrimination won’t even be registered. It won’t make the equality drive photos. Mad people, esp those who deign to be open about ourselves & champion Mad knowledge in Mental Health settings are actively held back, treated differently. Even LXPs with White Male >
> privilege are treated worse than their colleagues, paid less, exploited with no career opportunities. So heaven help our openly #Mad#LXP colleagues of colour, who are LGBTQ, with coexisting health conditions. Is it any coincidence that myself and my colleague - both with >
COVID is frightening. The deaths, the restrictions, the lack of knowledge and consistency of how to deal with it. Conspiracy theories are a response to fear, I suppose. Thinking about it that way may help to mitigate clashes with ppl who believe them. There is generally a grain >
> of truth in everything. During periods of crisis & uncertainty, there are always people who use this for profit, like the disgusting assigning of contracts to companies who have never produced the PPE they were paid for. They also happen to have links with govt ministers >
> so yes, it makes sense that ppl mistrust the govt and the freedoms being taken away, because the ppl doing it aren’t trustworthy. But that doesn’t automatically mean that the precautions & restrictions to control the virus are wrong or the virus doesn’t exist. >
#LXP explanation thread: There is no standardised language in the Survivor movement. When I use the term #LXP it is an acronym for #LivedExperiencePractitioners or #LivedExperienceProfessions. It refers to ALL people who work in posts that require use of insight from >
> lived experience of adverse mental health. So that includes LE Consultants, Survivor Researchers, Peer Support Workers etc, It’s not a universally accepted term, but when I tweet I need to use *something* to refer to us all, so that’s the term I use, because it’s quicker than >
> writing an explanation each time that Twitter doesn’t allow enough characters for, unless it’s a thread which people are less likely to read (ha, that’s a hilarious thing to say in a thread 😂). We all do very different roles but the one thing that binds us is the unique way >