Thank you @questmd for such a heartfelt reflection. Such a complex story of oppression, mistrust, compassion, and hope. #hapc21.
"You have to be trustworthy for a community to trust you. That takes a long time. But it's so, so rewarding." @roneetE on culturally-concordant systems of care. #hapc21
Who wants to be shoved into something that's not culturally appropriate? So when it came to advance directives, @roneetE & team asked patients, "How do YOU want to share your values with your doctor?" #hapc21
Such an important takeaway. Reminds me of the quote, "We don't see things as they are. We see them as we are." Critical to remember when caring for patients. #hapc21
.@palliator: "Google hospice or palliative care-sure looks like something for white people provided by white people.”
We have a lot of work to do-not only are there a lot of palliative "sad hands," they're all white sad hands! #hapc21
Next talk at #hapc21! Controlling the dyspnea-anxiety cycle.
Remember that dyspnea is very common. Not just in COPD but in other diagnoses, and not just in hospice patients but in the ICU and other settings as well. #hapc21
The complicated and vicious cycle of breathlessness. #hapc21
Diving into a difficult topic at #hapc21. Dr. Horowitz is starting with his mother, who had dementia and was considering voluntarily stopping eating and drinking (VSED).
Key points about the key clinical considerations around VSED: note that life should be unacceptable and IRREVERSIBLY difficult. This can't be an impulsive decision. #hapc21.
Psychiatric considerations are important too. There is an important difference between the wish to die vs. the wish to "not live like this" when considering VSED. #hapc21