Diving into a difficult topic at #hapc21. Dr. Horowitz is starting with his mother, who had dementia and was considering voluntarily stopping eating and drinking (VSED).
Key points about the key clinical considerations around VSED: note that life should be unacceptable and IRREVERSIBLY difficult. This can't be an impulsive decision. #hapc21.
Psychiatric considerations are important too. There is an important difference between the wish to die vs. the wish to "not live like this" when considering VSED. #hapc21
The decision for VSED is an iterative process. Expect a series of conversations. #hapc21
The logistics around VSED are important. Saying goodbye. Visiting important places and people. Scheduling a last meal. I can only imagine the resolve and support needed to prepare like this. The emotions. #hapc21
Symptomatic considerations for VSED. Hunger is generally transient; thirst is persistent. Know that ice chips can add up quickly and prolong life-this bears a discussion with patients as to their preference. #hapc21
Dr. Horowitz's mom's last days. She gave permission for her experience to be shared. So grateful to both doctor and mom for sharing - this was very powerful and I feel like I have a much better understanding of VSED from the patient and family perspective. #hapc21
No discussion of VSED would be complete without discussing the ethics around it. Dr. Quill takes us through the hard questions. #hapc21
It's generally accepted that we can't ethically force feed mentally competent patients at the end of life. #hapc21
The other ethical questions around VSED are more complicated. #hapc21
• • •
Missing some Tweet in this thread? You can try to
force a refresh
Next talk at #hapc21! Controlling the dyspnea-anxiety cycle.
Remember that dyspnea is very common. Not just in COPD but in other diagnoses, and not just in hospice patients but in the ICU and other settings as well. #hapc21
The complicated and vicious cycle of breathlessness. #hapc21