Thread by @NeuroCoolWheels

Hey! I’m the person in the hospital, they gave me my phone back but threatened to take it away if I contact anyone but my father, I’m too scared to say the name of the hospital till I am out in case of retribution but I will keep everyone updated thread about everything 1/

https://twitter.com/A_Silent_Child/status/1367596226078674947

TW: transmisia/ableism I came into the ER they only called me by my legal name and pronouns -many people still are but not all While in the ER they refused to turn off the beeping machine connected to me that was till another nurse came over and did it b/c he understood autism 2/

Once I got back and placed in a room they took all of my belongings away from me - including my phone (which is also my communication device) for 16 hours and still are threatening to take it away if I “get agitated” or contact people 3/

They also forced me to eat oral food twice that would give me an auto-immune reaction before they would give me back my tube feeding supplies 4/

TW: ED Also they didn’t take me to a restroom for 16 hours (& it took 14 hours to be given oral fluids and they won’t give me an IV even though I need it) despite me telling them I was dehydrated and hadn’t eaten or drank anything in over a day 5/

Aside from that all the psych hospitals in the area are refusing to treat me because I have a PEG tube (which I can deal with) and a wheelchair so Ive already been held in the ER for 24 hrs now and will be in the regular ER for a couple days minimum 6/

TW: suicide: They said I cant get psych treatment unless I went involuntary & the guy told me I was already going to be involuntary b/c I was “resisting treatment” and “non-compliant”by being non-verbal & said I refused a safety plan when they never asked me about creating one 7/

They also withheld all ways to pass time including coloring with crayons until dad called them because it was deemed it was dangerous/I didn’t earn it? They didn’t explain well 8/

Also they messed up my meds last night and gave me alburerol instead of atenolol (though now I’m pretty sure by suspicion that I am ADHD is right because it helped me focus and think clearer...) 9/

Last night the social worker forced me to tell her I would trust her despite her doing nothing to help me, not really using my pronouns, and claiming I couldn’t be autistic because “I was social” 10/

They also “provided a sign interpreter” aka: a monitor with choppy video and a person who could only read finger spelling (& wasn’t very good) so the only way to communicate was to write which I have difficulty with when overloaded & had to wait for the nurse to see I wrote 11/

TW: suicide There’s probably more but being overloaded from being in the hospital and of having checked myself in for suicidal ideation (so I’m confused why I’m involuntary when I’ve complied w/ except for contacting people b/c I wasn’t safe) means I can’t remember everything 12/

Currently I am a bit less scared as the Psych team finally saw me a few minutes ago and said no one would take my phone but the social worker is the one who actually makes the decisions so idk 13/

I’ll also keep adding to this thread as much as I can (unless/until they take my phone again) about how things are going /14

They also refused to give me an emotion chart or other communication tools when questioning me 15/

TW: suicidal ideation treatment
They refused to give me access to my wheelchair and are leaving it out in the hall, where I can’t get to it, though for now it isn’t as big of a problem as I’m on 24hr watch and am not allowed to leave my room anyway

They also said I can contact a lawyer through call (but like..... I’m nonverbal, so idk how that works) and that anything I say is not confidential and can be used against me in court

A nurse and police officer l locked me in a room, tried to take away my comfort item, and did take away my wheelchair (I have no clue where it is). I am ok for now but I’ll need to save the battery on my phone (as they won’t let me charge it) so I might not be posting for a bit

When I said I didn’t want to order food (because I couldn’t stomach it) they ordered something for me (that I know I can’t safely eat/drink for to my Hereditary alpha tryptasemia) and guilt tripped me into eating it no now I’m nauseous, flushing/itching, and have abdominal pain

Don’t be afraid to break the rules or push back/be disruptive if that’s what you need to do to fight for your rights and ensure your safety

I don’t know what’s gonna happen but this will be my last post for who knows how long🤟🏻 I don’t know if I’d’ve coped at all with everything going on without all of y’all (Including the amazing @A_Silent_Child ) stay safe, do some self care, & if needed talk w/ a support person

They took my phone & charged it for me so that’s good but I am currently in solitary, so anyone have any ideas to pass the time?(there’s no clock in here so idk how long I’ve been here because I forgot to check the time on my phone when they moved me, but I’m already super bored)

They refused to let me go to a bathroom to change my incontinence product instead I had to do it in solitary where theres a clear window to a public hallway (they have a camera in here & nurse at the other window so no need for open public window) this is not acceptable treatment

I just realized it is one am and they haven’t given me night meds - I got a new nurse who is searching for my word board, is going to see about getting me meds, and is going to get some water for me so 🤞🏻she’s got a long shift and stays my nurse

Meant to say adderol*

When they did give me my night meds they only gave me 2 of 8, neither of which were my mood stabilizer or my anti depressant

They’ve woken me up 2 days in a row where I got only 4-4.5 hrs of sleep, which is unhelpful for mental health and physical health - especially for someone in crisis

Someone ordered breakfast for me, none of which I can eat b/c I’m allergic to everything here (I was going to ask for a vanilla yogurt but he left) They’re also restricting my tube feed by not giving me any even though it’s in my chart and I showed them my PEG tube

(Oh also I’m pissed b/c they didn’t come in for fucking forever and left me in a used incontinence product for hours) as the only way for me to get a message out is to hold up a note towards the camera till they decide to come in

They also haven’t provided me a toothbrush despite me asking for one yesterday and they’ve not given me access to any hygiene items (ie deodorant/wet wipes)

They have now provided me a yogurt I can eat and are trying to find what they did with my tube feeding pump yesterday so I can hook up to a feed as the dr or whoever approved it

I still have not received IV or PEG fluids despite only being able to drink about 30 oz (including the fluid in my tube feed) since I got here (40 hours ago)
B/c I have POTS I need 3 liters of fluid a day, I’m in danger of serious health complications if they continue like this

After I’m stable and leave I’m gonna need some serious resources for severe medical trauma and repercussions of solitary (when they take my phone it quickly effects me) as well as legal advice/assistance #DisabilityTwitter #DisabilityRights #MentalHealthMatters #DisabilityJustice

It has been 45 minutes and they still haven’t returned with my feeding tube pump they lost it last night as it was last seen being carried by a nurse but now they don’t know where it is With my mental health rn I am struggling to be angry abt how I’ve been treated but I am scared

Thank y’all for all your help! I talked to psych about not feeling safe with told what the staff did They were extremely frustrated and agreed with me so I should be transferred this afternoon to least restrictive psych ward and they are gonna see if I can keep my phone