do you ever think about how it's easy to screen yourself for POTS, and yet somehow an unfathomable number of doctors won't recognize the diagnosis unless you've been literally tortured on a tilt table and then they reveal to you that your main treatment options are SALT & WATER?!
(yes, with many caveats about how not all dysautonomia is POTS and also that there are some prescription treatment options)
patient: I’ve been paying attention to my heart rate and noticed that it predictably jumps at least 30 bpm whenever I stand. Is there anything that will help?
doctor: sorry, I can’t tell you any of my medical secrets* until you’ve agreed to be strapped to a table
*get more salt
doctor: sorry, I can’t tell you any of my medical secrets* until you’ve agreed to be strapped to a table
*get more salt
(getting more salt is not a cure for POTS & will not help everyone, but it’s often recommended first and there’s basically no reason to gatekeep that behind a prolonged referral & testing process.)
(well, there’s no reason to gatekeep that information unless you think that patients are unreliable narrators 🤔)
me:
doc told me I had POTS in 2017 after hr spiked above 190 in office. (major mold flare, maybe csf leak?)
year+ later was much milder & new neuro flagged in office (130-140). referred to cardio who checked in office, ordered holter. then another cardio, then TTT. overkill.
doc told me I had POTS in 2017 after hr spiked above 190 in office. (major mold flare, maybe csf leak?)
year+ later was much milder & new neuro flagged in office (130-140). referred to cardio who checked in office, ordered holter. then another cardio, then TTT. overkill.
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