More from @ShantelSherwood

Shamelessly_Shantel

@ShantelSherwood

6 Apr

Part of my #AutismAcceptanceMonth is asking people to stop parent shaming.
If you see a kiddo on a harness (leash as some call it) mind your business. Many of our kids elope aka are runners. We don't do this to make them puppies we do this to keep them safe.

If you see a kiddo overwhelmed, dysregulated let it go. Do not approach child. Do not reach to touch or make noises even to help. You do not know what triggered and could make it worse. Smile, silent encouragement is great. If parent is in distress then ask if help is needed.

When speaking to a caregiver do not ask what the child's savant or gift is. Only 10% of our kids avg fall into this area. It's assuming a lot. Assume the child understands so don't speak to their parent over them. Always assume competence.

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Shamelessly_Shantel

@ShantelSherwood

22 Aug 20

You can clearly see my once chunky baby and my very tiny 3 year old. This was the same day I was told that our pediatrician was going to try to fast track his long wait to be seen at the Glenrose for Autism query and also threats of a G-tube. Because he had lost 10 pounds.

I was in some of the worst pain ever as a mom because I didn't have answers for my child. Our EI team through Alberta Health Services said we can help, we will help. And they tried so hard. And we made some small gains. Or at least held off the G-tube. Trick? Butter on everything

We loved our OT and are still grateful. And schools are now having these precious people pulled but I digress. Wait lists... wait lists when you have a child in need. This still took until the end of Nov. So still 10 months from referal to the Glenrose.

Read 15 tweets

Shamelessly_Shantel

@ShantelSherwood

22 Jun 20

What if I told you my son was left in diapers that caused rashes so bad his skin would blister while in his Public Pre-K? What if I told you he lost 10 pounds off his tiny 38 pound frame (28pounds) and when I asked the school team to help me track intake the teacher he's fine.

In fact she said she wishes she could have lost the weight so easily. What if I told you he was lost, forgotten, left behind, not included because of diaper needs countless times. What if I told you FSCD approved me having a school liaison for fear of my sons care?

What if I said that even with that I still have to involve Inclusion Alberta who only really just said next near could be better in a new school? What if I told you that upon getting the complaint the teacher and V.principal no showed at the last IEP meeting. Just SLP and OT.

Read 7 tweets

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