1. Has anyone else had problems with @IrregularChoice jewellery? I ❤️ the designs so much, but when my #Kittynaut necklace arrived the clasp came off as soon as I took it out the box! I was annoyed because it was so f* expensive for costume jewellery but thought sod it I’ll just>
2. put it back on myself. Then I wore it once and it came apart, but I loved it & there were no more and so I botched it together, wore it once more & it totally fell apart 🤬 Then I fell for the #IrregularChoice Smile necklace in the sale, second time I wore it, it fell apart >
3. Again, #IrregularChoice jewellery is damn expensive even in the sale so I thought I’d better complain this time but having had such bad health recently with low mood just couldn’t face it... crazily to cheer myself up I very stupidly ordered their Pink Poodle earrings. Yes, >
4. it was a totally stupid thing to do considering my previous experience but #bipolar decisions are not always the best and I indeed regretted my life choices when my #IrregularChoice Pink Poodle earrings arrived, I actually got out of bed at 2.30pm to get them (yay!) opened >
5. the packaged, felt a sense of overwhelming joy as I first got a glimpse of my #IrregularChoice Pink Poodle 🐩 earrings which will go perfectly with my IC Pink Poodle shoes, went to get them out of the package and what the absolute f*ckety f*ck, you have guessed it, the lush >
6. #IrregularChoice Pink Poodle earring in my hand was broken. She was not attached to the actual fixing that you put in the ear. I am so damn pissed off. Yes I am the hugest idiot for not just calling up, returning the first faulty necklace, getting my money back & avoiding >
7. #IrregularChoice jewellery. But I was seduced by #Kittynaut necklace & thought it was an easy fix, esp as they were now sold out. Same with #HappySmile necklace. But I have to draw the line with the heartbreakingly beautiful #PoodleOodle earrings. I can only take so much >
8. So #IrregularChoice as much as I love your shoes (you graced my wedding feet) and I love your jewellery what gives with the terrible, awful craftsmanship & quality? For £20 costume plastic earrings you do not expect them coming out of the packet broken. I could have bought a>
9. pair of shoes with the cost of those three beautiful but now useless pieces of #IrregularChoice plastic. At some point maybe I’ll get my pliers out and fix everything myself but I’ve been struggling to do basics recently like getting out of bed & getting dressed thanks to the>
10.bipolary low that led to the purchase decisions in the first place. So as I just don’t feel up to picking up the phone, finding my email invoices to make a complaint, please accept this as my formal complaint for my terrible quality albeit gorgeous #IrregularChoice jewellery😞
1. Employers aren’t equipped to work with disabled ppl, not the other way round. Work coaches won’t make systems better, personal experience: @Keir_Starmer @leicesterliz @UKLabour & FAO: @guardian @Independent @RITB_ @DisRightsUK @johnpringdns @MITUKteam @libertyhq @labourlewis >
2. Stephen Hawking was disabled. He worked & was a genius FFS. #PIP reflects the additional costs of your #disability. Employers systems are often not set up to work with us, especially mental health conditions. A #WorkCoach can do zero to help with this. If you want >
3. more #disabled people to be able to work, you need to ensure employers systems & policies are safe, & can work with an employees needs. Can you ensure employers can financially support extended times off sick for chronic conditions like #bipolar or #CPTSD? More importantly, >
I saw an ad where two stranger footie fans sit together & over time the extrovert fan helps a grumpy fan enjoy the match. In the end the ‘happy’ fan kills himself & u see empty seat. A Hollyoaks actor asks if #TimeToTalk helps if ppl don’t listen. Chronic MH conditions need more.
2) whilst I know he said ‘talking’ & not #TimeToTalk, it raises the issues of what surface level campaigns can realistically achieve for ppl with chronic #MentalHealth conditions. We need to lead using our own experience/expertise & be funded directly to do this ourselves. >
3) Orgs LED by ppl w/chronic #MentalHealth conditions aren’t funded bc they’re not trusted w/funding. What does this say about big non Lived Experience led charities who accept funding & give us a few scraps? Do they walk the talk? Our orgs DIE. We DIE. >disabilitynewsservice.com/more-than-220-…
1) I’ve just been to @BournbrookMC surgery, crying my eyes out in the waiting room, the nurse asked me if I wanted a hug. The Dr was so kind and listened to me b4 the procedure to check I was ok. Switch to the @bsmhft #MentalHealth waiting room where security searches u & ur bag>
2) Attending #MentalHealth spaces feels criminalising and degrading from the entrance to the space itself. I’m only here because after 3/4 calls being bounced between 2 services with no call backs as promised from either while I’ve been really distressed, it’s seemed more >
3) logical physically coming to one of the buildings where the people who provide care exist rather than waiting for a never to be returned phone call. I’m scared of one service, now disappointed with the other. The difference between physical & #MentalHealth services is stark. >
1/ I actually wanted to die, slash my arms, scream at the injustice I’d experienced & everyone who caused that hurt & pain. Ppl who survive to older ages know the pain never stops being excruciating, acting out the pain doesn’t help, eventually it passes, the cycle starts again.>
2/ Pain still somatises if you don’t let it out one way or another. I’ve lost my health & my identity, a shell of who I was. But I am really lucky, because I have a support network & I don’t want to hurt them. They are rallying round, @bigwolfband have been so kind about >
3/ having to cancel two gigs because my bass playing hubby has to take yet more time off bc I had a night in a psych facility & need closer care atm. He’s losing yet more AL. Lots of ppl don’t have loved ones who will care about them when they want to die or hurt themselves. >
1/ #MadTwitter: I keep getting a call from 0800 072 0161 & Googling it I am getting mixed results on whether it’s @DWPgovuk or it being a scam call. I have a #PIP tribunal: the @CapitaPlc assessor after her usual bonus by lowering claim. Health EVEN WORSE now. Can’t even drive. >
2/ There are not adequate words for how much I loathe these people. My epilepsy is uncontrolled so although I get a free bus pass it’s not much use if I’m shaky or having absences & taxis are so fricking expensive. Plus I’ve lost my safe space mental health wise, never realised >
3/ how much I relied on my car for my independence #MentalHealth wise beyond it being just a vehicle to get from A to B til it was gone. So I’m using ‘Personal Care’ for mobility. Now the **** has dropped it Uber shares have tripled in value 😹😭😢 If I have to give some cruel >
1/Imagine working for 11y to create senior #LXP posts in an org. You hear one’s coming up, but you keep asking & get told it’s either not happening or ‘I don’t know’. Then you find out they recruited TWO posts months ago without telling you. Not naming, but you should be ashamed>
Personally I’m sick and tired of being a Mary fucking Poppins, advocating for change, seeing other ppl reap the benefit (that’s a good thing) but constantly being kicked in the c*** myself. I got bills and a roof to pay for as well. It’s not just me. Most activists who challenge>
3/ the status quo enough to change it aren’t welcome when they start to make progress. Instead the opportunities get filled by non-activists, often ppl who aren’t aware of the work that went before them. Look at the millions of PPI funding, but the LXP led orgs closing down >