Thread: Indian understanding of quality & effectiveness of medicines.
Many moons ago, I was contacted by a father from Bihar for his 35 yr old son. Had schizophrenia for nearly 15 years & not getting better since many years. Had seen many Drs but no benefit. He had heard ++
of me from a relative in Pune. "Can I please get my son to see you" he sounded desperate. I normally dissuade people from making such long journeys esp when they have already seen so many Drs + chronic illness. Don't want to raise their hopes. In this case, the father ++
a senior government official was quite insistent. He also had relatives in Pune to stay with for few days.
He took an appointment & arrived (with his wife & son) a few weeks later.
We did our usual assessment for new patients incl checking past treatment papers & current +++
treatment. He was on a long list of medicines - everything under the sun, only thing missing was a birth control pill 😀
Father said he had spent lacs on Rx & current medicines were costing him ₹5k a month.
I wrote him q prescription & assured him we will try our best +++
Leaving, wife & he made repeated pranams & he insisted his son touch my feet. I told him if he did that - it's over, I am not doing his Rx. The father was not sure, but probably decided to humour 'great docotr' & told his son to back-off. I also told him to contact me on phone ++
in few weeks. Took the next patient in.
Few min later, receptionist peeps in through the door "Sir, that pt from Bihar is back & father is very angry"
Honestly I had no idea why he was upset. Finished the pt in front of me & then called family in again ++
"We had come to you with great hopes but you are making fun of us". I did not understand.
He threw the prescription & a few strips of medicines in front of me. I check the medicines & told him the chemist had given him right medicines ++
"kya Sir, these medicines only cost ₹500/- for a month's supply.
I have spent lacs on my son's treatment & you are writing such cheap medicines..what use I'll they be?"
That was the reason for his anger. So asked him to sit down & did a masterclass on the prescribed ++
medicine. Told him clozapine was one of the most effective medicine + I don't prescribe medicines based on cost.
He seemed sceptical and reluctantly picked the prescription & meds. "Chalo" he said to his wife & son & pushed them out of my consulting room.
I never ++
expected to see him again.
So I was surprised to get a call from him a month later. Sounded very cheerful - apparently son was doing better. Attributed it to my medicine. Didn't have the heart to tell him his son was better bcoz the side effects had gone down from ++
stopping the unnecessary cocktail of medicines.
Anyway to cut a long story short, son slowly got better, now holds down a simple job.
Moral of story: Expensive & lots of medicines are not necessarily better.
Remember this in #Covid times.
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THREAD: My personal experience working in India's public health system.
Regular readers of this timeline will know I am a supporter of a public healthcare system.
So naturally I get asked, why don't you work in the public health system, if you think it is so good?
Here's why ++
I trained in a public medical school Seth GS Medical College & KEM Hospital 1982-91 & left in 1991 to go to UK having completed a MD (Psychiatry).
I worked in the NHS in UK from 1991-1999, when I returned to India.
During my time in UK, I got to see first hand & closely ++
what a treasure the NHS is. From the millionaire to the homeless, everyone got the same treatment - free of cost at point of delivery & based on medical need. The primary care GP system was amazing. Anyway, I was determined that when I return to India, I would ++
Thread: I tweeted about Ekalavya & this Assistant Prof Savitribai Phule Pune University tweeted the reply below.
So let me tell you my own experience. I think 1st person accounts are important.
Disclaimer: I am not a savarna nor am I a Dalit. Honestly, I don't know my caste ++
I grew up in Mumbai in 70-80s studied medicine at G S Medical College (KEM Hospital). Proudly got in there with "merit". Reservations & caste really did not impinge on my life except occasionally when savarna classmates said I had "wasted" a seat by not taking admission++
under OBC category. I didn't much pay attention to it Had many savarna friends. I do remember a group of seniors referring to students who had come in through reservations as "bhangis" & laughing. To me this was all irrelevant. Didn't bother me at all. I had some great +++
Thread: This is a long thread about my wife's grand-father: Vinayak Apte.
Born, brought up & lived in Pune. Aptewada, Sadashiv Peth. Qualified as an engineer in 1920s or so. Married around same time.
I promise you this is worth reading, so settle down with your cup of tea....1/n
Around 1921, young Vinayak writes to Mahatma Gandhi expressing his desire to join Bapu & work for freedom struggle.
Bapu writes back saying sending money for the ticket (₹5) & get your backside up here (not exactly these words, but you know what I mean!).
Bapu adds a PS...2/n
"If you change your mind, please return the ₹5 by money order to Sabarmati Ashram" Typical Bapu, you might say! Careful with money.
Vinayak quits his job & decides to go to Sabarmati. Entire extended Apte clan is horrified. Joining that fakir? Giving up your job? Ostracised.
I find ppl have difficulty understanding #evidencebasedmedicine (EBM) & how Science works.
EBM doesn't try to "prove" anything but is focused on REFUTATION. Let's say u have a new medicine which you believe works better than previous medicine/no medicine. Thats your theory...1/n
#EBM sets out to refute this theory. Hence all trials start with a null hypothesis: New Treatment A is no better than placebo/treatment B.
You then use statistics to find out whether the difference between the two was likely to happen by chance. P < 0.05 only means that...2/n
there is less than 5% chance that the difference (if any) between the 2 treatments was likely to be due to chance, & is a real difference.
In this case, you reject the a priori Null hypothesis ( that there is no difference between 2 treatments) You accept...3/n
THREAD: for academics & researchers wanting to influence policy makers. Mostly India specific advice. Based on my reading & experience of doing this stuff for > decade now.
At the end, I have also given a link to a very useful Nature paper on this subject
So let's begin..1/n
Rule 1: Policy makers are smart people, smarter than researchers/academics/clinicians. In most countries, its harder to become a senior civil servant than get admission to medical college or a proffesorship. Don't be fooled by the dumb look. That's training. So respect them..2/n
Rule 2: Civil servants/policy makers are busy people. If you do not get their attention in the first 5 min, you are never going to make it. So have a very sharp & effective "elevator pitch" ready before you step into their office. I practice in front of the mirror...3/n
THREAD on patient confidentiality bcoz I am asked questions repeatedly. Read this & please stop tagging me on your tweets. My mentions can't cope! These are my opinions so please feel free to ignore! 1. Does confidentiality apply to counsellors/psychologists?
Ans: Yes ...1/n
2. Does confidentiality apply after death?
Ans: I am not aware of any precedent in Indian case law, but see box below. MPS is a malpractice insurance provider to Drs. Last point in Box suggests it does apply after death too. See this link for details ..2/n medicalprotection.org/southafrica/ad…
3. What about "public interest" in the box above? That can be grounds for breaking confidentiality?
Ans: Yes. Even the Mental Healthcare Act makes this an exception to break confidentiality. However what is public interest is open to interpretation...3/n