@JanetDafoe For years, researchers like Drs. Klimas and Younger have used ME/CFS as comparison groups to leverage funding from other areas. Now that we've used this strategy for advocacy, we delivered the single largest financial opportunity to ME/CFS researchers ever: over $1 BILLION… 1/4
@JanetDafoe $1 BILLION that is now available for ME/CFS researchers to continue their work. And, we have another $100m in the works for medical education, data harmonization, and research regarding disparities and access to care. #LongCOVID is the biggest opportunity for #ME research 2/4
@JanetDafoe At the current rate of NIH funding for ME/CFS, it would take 76+ years to reach $1B. Please watch today's hearing. bit.ly/3nrQnKW My heart breaks to see the mistrust, suspicion and in-fighting. Even sadder to see our community attacking others with the same symptoms. 3/4
@JanetDafoe I believe this is the single greatest opportunity our field has ever seen. We are all in this together! Let's stand united, rather than divided! Let’s work together stand together with other communities, like #LongCOVID, #MCAS, #POTS and others before it passes us by. 4/4
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