This morning I observed this hearing before Judge Rebecca Brown in the Court of Protection concerning whether it was in the best interests of a man in his 30s ("AD") to be vaccinated against Covid-19. #NotSecretCourt
The case was brought by CCG who believe C-19 vaccination to be in AD's best interests.
AD was represented by OS who was of the same view.
His mother opposes vaccination.
AD has Down's syndrome, learning disability + autism. He's "resistant to all healthcare interventions".
Multi-disciplinary team of professionals has drawn up a plan. He'll be vaccinated at home.Encouraged to wear short sleeved top that morning + covertly sedated via his morning drink. While "distracted by his favourite activities", nurse will enter + jab him without any engagement.
No physical force will be used. If plan doesn't work without force, case must return to court. (Senior Learning Disability Nurse thinks that if force were to be required that could actually tip the best interests balance against vax.)
Only Mother opposes plan. Case was adjourned last week to give her time to find legal representation but she hasn't managed to do this and appears in person. Altho' hearing is video link, she is on phone. #LitigantInPerson#NotSecretCourt
AD's mother says that people suffer serious adverse reactions to covid vaccination - including death. "It's very dangerous". And more so for her son who is "very vulnerable". She mentions blood-clotting, neurological damage, organ failure.
She says autopsies in Russia have shown that what people are dying of is NOT Covid-19 but a bacterial infection that can be cured with antibiotics, anti-inflammatories and aspirin.
She says the risk of Covid-19 now in England is very low ("nearly zero"), so running the risk of vax side effects is unnecessary. "He’s a very healthy young man, he hardly even gets a cold. I believe he has antibodies in his body and natural immunity."
And she's very concerned that he would refuse treatment for side effects of vax. "He would push people away, get angry".
CCG says that plan for vax has been drawn up by MDT including care manager who's known AD for 2 years, his IMCA, safeguarding manager, GP. They don't recognise the risks Mother raises which "appear to be based on well known misinformation from the internet”.
CCG says risk factors for AD are LD diagnosis, Down's syndrome, ethnic background + significantly overweight. He's also very friendly, hugs carers, doesn't understand social distancing.
AD should have access to vax because benefits far outweigh evidenced risks recognised by CCG
OS supports care plan for vax as evidence on risks to AD from Covid-19 is "overwhelming"
"Much of [Mother's] concern about the vaccine is a product of misinformation, speculation and conspiracy theories unfortunately."
The OS and CCG disagree about whether court should authorise a "booster" vaccine some months later, as well as 2 shots of the AZ vaccine. CCG says why not, if all goes according to plan + give him the best possible protection.
OS says that apart from speculative conspiracy theories, there are "genuine + legitimate" concerns about vaccine.
He says" I don’t know for instance if I would have a booster in 6 or 7 months time. That’s not currently in the public domain for debate."
"Why should somebody who lacks capacity have that decision [for a booster jab] made for them now, when other people will make it at the time. There mustn’t be over-reach by the court." (Official Solicitor)
Mother's view: "We do not know what the future holds. Best to have a court hearing so that we clarify if there are any more dangers from the vaccination in the future which no-one can predict."
HHJ Brown gave oral judgment.
She thanked advocates for their eloquence and Mother for "her heartfelt concerns which I entirely respect and understand".
She was "impressed" by the care plan - designed to "mitigate + if possible eliminate distress to AD of receiving vax."
Judge accepted that AD lacks capacity to consent to vax.
Said it's in AD's best interests to receive both shots of AZ vax in line with care plan, with no force being used.
She did not agree to booster, accepting submission that "it could be going into realm of overreach".
Mother sounds distressed
Asks to speak to vax nurse "to reassure me that force will not be used on my son"
Judge: "The nurse that administers must not use force and that’s the end of it."
Mother asks if AD can come+live with her
Judge says that's a matter for another hearing.
And so the hearing ends, with the judge wishing Mother and her son "the very best".
I think the judgment will be published + will link to it in next tweet if it is.
We (@OpenJusticeCoP) have also published three blog posts based on our observations of vaccination cases in the Court of Protection + links to published judgments.
Here are links to all three.
1. Covid vaccination in the Court of Protection by Bonnie Venter @TheOrganOgress
2. Who is to blame if the COVID-19 vaccination causes harm to P? by Bridget Penhale @bpenhale
Today I cried in court. I was watching 3 lovely, articulate, passionate young women (the older 2 just out of their teens) come to terms with the fact that their Dad was going to die. Doctors believed that continuing life-sustaining treatment was not in his best interests.
The family hoped+believed he would recover. There was a WhatsApp video his wife + brother believed showed P responding to them. Doctors (incl. independent expert) said no - it was involuntary movement. P is in a coma with catastrophic brain (stem) injury following stroke.
The applicant Trust was represented by Nageena Khalique QC @serjeantsinn seeking withdrawal of ventilation (+ provision of palliative care). P's brother (rep by @CounselTweets) argued for continuation of life-sustaining treatment. Official Solicitor (for P) was @DrBridgetDolan
Today's hearing was about RS who is 30. Four months ago he was diagnosed with testicular cancer. His left testes was removed, but the cancer has spread. Without treatment he'll die within a year. With usual t'ment, a 95% chance of cure. Trust referred RS to palliative care only.
His mother advocated for him. Best interests meeting was convened. Agreed usual treatment ("BEP" - Bleomycin, Etoposide, Platinum (Cisplatin) chemotherapy) is not suitable for RS. He'd need to be under GA for 70+ hrs due to inability to tolerate clinical intervention.
RS has Fragile X syndrome, atypical severe autism, learning disability + limited communication. But described by his consultant oncologist as "a fit lad with no physical difficulties".
Today's hearing concerned a Trust's application for approval of an order for a 63 year old man with learning disabilities to be given a trans-urethral resection of the prostate (TURP) - using chemical or physical restraint if necessary. nhs.uk/conditions/tra…
He's terrified of hospitals because "that's where my Dad died". He currently has a catheter in place but that needs changing every 3 months with all the difficulties occasioned by a hospital visit. A TURP would fix the urinary problems once and for all.
Mr Justice Hayden is superb today. A clear + unwavering focus on P. "I'm eager to ensure the TERP is undertaken on the basis of clinical need, rather than due to the challenges of getting P to hospital. How do I satisfy myself of that?"
Does being watched change how justice is done? Lawyers in the Court of Protection say it does. Here are the top 5 ways.
Are there more? Comments welcome!
[1] Cases are opened properly with case summaries highlighting history of case + key issues + introduction to the parties.
[2] Role of observers is now routinely raised with P + P's family Responses include "acute distress", "mild anxiety", "neutrality", "active desire for observers + journalists to publicise injustice". Solicitors may need to become more skilled at these convos. + explaining TO.
[3] Taking more time to expressly set out legal basis underpinning hearing (human rights + MCA). Lawyers' views vary from "as the principles are pushed to the forefront of everybody's mind, they are more rigorously and consistently applied" to concern about extra time taken.