1. I wondered about it a fair growing up and funnily, I was routinely pegged as queer by the other kids. But I didn’t have the language to describe my queer identities and thus to realize I actually “counted” til my mid to late twenties. #30DaysOfDisabledPride
2. Similarly, I always knew my bodymind was “different” growing up. I was a sickly, neurodivergent kid the latter of which was especially problematized by my teachers though no one ever bothered to label it with anything others than slurs or euphemisms. #30DaysOfDisabledPride
2 [cont’d]. I claimed disability when applying to university for the purpose of having access to accommodations (not that they made any) but I felt like I was cheating by claiming something I had no right to. #30DaysOfDisabledPride
2 [cont’d]. It wasn’t til my mid-20s I learned that medically invisible disability “counts” and that I am also Autistic.

#30DaysOfDisabledPride
3. Neither was hard to come to terms with for me personally, claiming both sets of identities meant gaining access to language that described my experiences of the world, as opposed to what I’d previously had which was lazy, attention-seeking, broken, etc.

#30DaysOfDisabledPride
3 [cont’d]. That said, I’d be lying if I said I’ve ever felt fully welcome in either community. With disability, I’ve felt that invisible disability/chronic illness is accepted insofar as we’re willing to pretend differences and tensions don’t exist… #30DaysOfDisabledPride
3 [cont’d]…between the experiences and needs of different subcategories of disability. And in the queer community, I have watched both nonbinary identities and especially asexuality be dismissed as “not enough” to count. #30DaysOfDisabledPride

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More from @alexhaagaard

10 May
[medical BS]

So, I recently figured out that the months-long symptom flare I've been experiencing seems to be due to my progestin pill losing efficacy.

It's been more than 2 years since I last saw my gyno so I knew they'd require me to get a new referral... 🧵
...which typically means you drop down to the bottom of the waitlist, which means waiting several months for an appointment (this was pre-pandemic mind you and I don't imagine the wait time has gotten shorter).
[abuse]

So I left a message, literally begging them to make an exception. I explained that in 2019 I had moved out of region to escape an abusive living situation, and that for the first year I could not afford to rent a car to drive 240km for a non-urgent appointment.
Read 7 tweets
27 Apr
What the exact fuck goes through someone’s head as they make the decision to keep reaching for a cowering dog as that dog’s human says FIVE FUCKING TIMES “stop doing that, she’s scared of you.”

/rhetorical
Like is this really a situation where you feel comfortable fucking around and finding out?
“But she’s wagging her tail”

Yeah dogs do that when they’re terrified, jackass
Read 4 tweets
19 Apr
I want everyone to be very, very clear that what is being described here is a blanket and systematic discrimination against disabled people in Canada receiving *any non-emergent healthcare.*

bbc.com/news/disabilit… Text: ‘Gaslighting the patient' Revealingly, Canada Care C
This is why it actively hurts me to see people claim that it is easier to access care here.

I. Have. No. Ongoing. Healthcare.

None.
I am alive right now because I have a background in pathobiology and design which afforded me the expertise to read and analyze clinical literature, and the confidence to realize that if the healthcare system was content to let me die, I needed to find a way to save my own life.
Read 7 tweets
5 Apr
I feel like most people assume that my hatred of medicine comes from my experiences as a patient.

But nah, most of it actually comes from the years I spent inside that culture.
Like just on the basis of my experiences as a patient I’ve obviously got a good, solid baseline level of rage.
But it’s knowing how doctors talk about their patients to other “insiders,” how medical students are trained to think about their patients, and what qualities are selected for by the systems that train them that keep me from thinking the clinic is redeemable.
Read 4 tweets
2 Apr
This appointment is going to go SO well Screenshot of a section from a clinical questionnaire, label
They asked if there was anything else I thought they should know about 😃 Text: "I am aware taking herbal medications is risky an
The cool thing about receiving absolutely no goddamn healthcare is that I no longer give a flying fuck what they think of me as a patient because what exactly are they gonna do, give me less than zero care somehow??
Read 4 tweets
1 Apr
Anyway, I'm just gonna go ahead and thread about my experiences with it, because it's hard to describe accurately in general terms.

But this has been one of the biggest factors that has prevented me from doing physio/strength-building exercises over the years.
It resembles Delayed Onset Muscle Soreness, which is a common and well-known phenomenon, in that it's highly localized, and involves aching and loss of muscle strength in a particular muscle group, about 24-48 hours after exercising that muscle group.
What I've never been sure about is whether the magnitude of what I experience is "normal."

Because all resources on DOMS are just like "hurting's normal but if it hurts too much you're working too hard and it shouldn't like...immobilize you or anything."
Read 12 tweets

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