Another powerful post (if you’re not following @AwareDare please do!) - this really shows how we have quite some work to do as a profession. Extending the same empathy and compassion to each other as we do to our patients is so key… #gcchat
🧵 More reflections on this: it seems to me that we are invested in a model where we imagine that a GC cannot be a vulnerable/“imperfect” human (or indeed even just a whole complex human) AND be an effective helper of others. We hold ourselves to unachievable/undesirable ideals
Also, thinking about the history of our profession to try to understand what’s currently going on (if you’ve not read amazon.ca/Telling-Genes-… I strongly recommend it).
Genetic counseling started as something done by well-to-do, white cishet women…
Clearly we are currently struggling to actualize the next stage of our development. So perhaps explicitly articulating the obvious - that healers/helpers do not have to be “perfect” (whatever that is) to be effective - could be useful to our progress?
Also obvious: We all have struggles/challenges. Many (most?) of us are drawn to GCing b/c of something about our own experience (eg personal or family history of something). But historically people were expected to hide their own stuff to succeed.
Hence toxic “ideal GC” concept of type A, cardigan-wearing, cishet women.
We have to break the abusive cycle of “I had to pretend I’m fine to succeed, so you do too”.
It shouldn’t be “brave” to own ones whole personhood in our community. It needs to be normal ASAP. #GCchat
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Here's some stuff from my talk at #WCPG2019 about polygenic risk scores (PRSs) & the public:
1st thing to know: people are already accessing their own PRSs for a wide variety of conditions.
By uploading DTC genetic testing data into 3rd party websites #GCchat 1/n
@lassefolkersen Now the thing is, we know that understanding/making meaning of even *absolute* risk is not a trivial task. PRSs are complex, and though people are accessing them, we really dont know much about how best to present them, or how people best understand them. 3/n #WCPG2019#GCchat