“To all the mamas who will hear the words ‘Down syndrome‘ for the first time this year, remember:
1. Your child will become your greatest teacher. You will watch this little person learn & master ways to adapt into fitting into a world not made for them. It will astound you.
2. The milestones. Forget about them. Your child will do all things in THEIR time. Put the books down. Stop Googling and enjoy that little baby in front of you – exactly where they are at and not where literature says they are supposed to be.
3. Your heart will break over and over again by the stereotypes held by society. It’s your job to help break down those barriers. You are now an advocate. Mama bear. Tiger Mama. You will grow to be passionate and you’ll become an expert on your child’s diagnosis.
4. Find your tribe. Lean on them. Love them hard. Confide in them. Cry with them. This is so important. They understand like no one else. And they need you, too.
5. It’s not all rainbows/unicorns. It can be so damn hard some days&it’s okay to acknowledge it. The language delay alone will break your heart. But when those little lips utter the words ‘mama’ for the first time, your eyes will fill w tears. It’s like nothing else in this world
Relish in it.
6. Prepare yourself for the questions. People mean well, they really do. Ignorance is real and out there, but you will learn to grow thicker skin. You’ll learn to welcome this dialogue and encourage it in the future. Trust me on this.
7. Your child will find joy in all of life’s little pleasures. The sun on her face. A beautifully picked dandelion. Sand on her toes. Soon, you too will see the world through those rose-colored glasses. It will take your breath away & remind you of what truly is important in life
8. Your child will connect with strangers of all walks of life. Learn from them. When she greets the cashier at the grocery store, you do too now. The lady at the local coffee shop drive thru gets blown kisses. Give her a good tip. Pay your child’s pure love & genuine joy forward
In any way you can. Imagine how much kinder the world could be?
9. Dance in the kitchen.
10. Take the bubble baths.
11. Happiness comes from within. Look deeply at your little person. See that happiness? It radiates and it looks good on you, too.
12. Lastly and most importantly, you CAN do this! You might not believe it now, but you will. The NICU stays, the weeks on end hospital stays. Sometimes the punches never stop coming it seems.
But when the dust settles, the appointments wind down&you catch your breath for a moment, give yourself the grace & look at the little person before you who has endured so much but still finds the joy every day
You’ve got this mama” -Kristin Scott (Lily’s mama) #LoveWhatMatters
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🏳️🌈 Ruth Coker Burks 🏳️🌈
“In 1984, when Burks was 25 & a young mother living in Arkansas, she would often visit a hospital to care for a friend who had cancer. During one visit, she noticed the nurses would draw straws, afraid to go into one room, its door sealed by a big red bag.
She asked why and the nurses told her the patient had Gay-Related Immune Deficiency (GRID), later known as AIDS. On a repeat visit, and seeing the big red bag on the door, Burks decided to disregard the warnings and sneaked into the room.
In the bed was a skeletal young man, who told her he wanted to see his mother before he died. She left the room and told the nurses, who said, "Honey, his mother’s not coming. He’s been here 6 weeks. Nobody’s coming”. Burks called his mother anyway, who refused to come visit her
“Don’t really get all the #BLM stuff?
400 years ago white people enslaved black people.
And sold them.
And treated them as less than human.
For 250 years.
While white men built the country and created its laws and its systems of government.
While 10, 15 generations of white families got to grow, flourish and make choices that could make their lives better.
150 years ago white people "freed" black people from slavery.
But then angry white people created laws that made it impossible for them to vote.
Or to own land.
Or to have the same rights as white people. And even erected monuments glorifying people who actively had fought to keep them enslaved.
All while another 5, 10 generations of white families got to grow and accumulate wealth and gain land and get an education.
Essay from Josh Lerner, MD after @CDCgov loosens guidelines for everyone on the front lines
“In one of the most vivid scenes in @HBO miniseries "Chernobyl" soldiers dressed in leather smocks ran out into radioactive areas to literally shovel radioactive material out of harms way
Horrifically under-protected, they suited up anyway. In another scene, soldiers fashioned genital protection from scrap metal out of desperation while being sent to other hazardous areas.
Please don't tell me that in the richest country in the world in the 21st century, I’m
supposed to work in a fictionalized Soviet-era disaster zone & fashion my own face mask out of cloth bc other Americans hoard supplies for personal use & so-called leaders sit around in meetings hearing themselves talk. I ran to a bedside the other day to intubate a crashing,