1. I've never had cancer but yes this. 👇

I have MS so I've had a lot of MRIs over the years. Previously my hospitals would embargo the radiologist's report for 7 days so I couldn't access it online, during which time, no one would contact me with the results.
2. MRI reports are usually written within 24 hours of scan.

In order to get a copy of my MRI report(s), I could drive to the hospital and go in person to the film library to have them burn me a CD and give me a copy of the report.
3. Eventually my PCP's office will send me an official letter online and sometimes my neurologists will call or message me to tell me the results but this has always longer than 24-48 hours after.
4. Same is true for other medical tests I've had beyond labs although in some cases I've even had lab results not be available to me online.
5. Of course sometimes I misunderstand or can't understand reports and don't get a clear answer until my follow up with my specialist which is sometimes months later. My lack of comprehension is not great but I would rather have the reports than not have them.
6. Is it great that the patient was notified they had cancer by an automated message while they were home alone? Depends on the patient.
7. I'd rather get an automated alert with bad medical news ASAP even if I'm alone than have to wait to be on the phone with my doctor or in their office to get results. 🤷🏻‍♀️

Perhaps this is something that patients could opt out of in the future if they want a human notification.
8. Is this impersonal and inhumane? For some, yes. But it's also arguable that it's inhumane to make a patient wait for bad news because the doctor is busy seeing other patients and doesn't have time in their schedule to make these kinds of calls until the end of the day.
9. For those who aren’t aware, Dr. Maykel’s tweet refers to this recent change in US federal law that went into effect on 4/5/21. It requires healthcare providers to give us full access to our records online for free and ASAP.

10. As more healthcare providers have set up patient portals we have had access to some records online but not all. In order to obtain records, providers are legally permitted to charge to produce records (sometimes exorbitant amounts if you need many years of records).
11. As I noticed upthread, some test results would be embargoed for some length of time before we could access them. The new law seems to remove those barriers.

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More from @keikoinboston

3 Jul
1. Always fascinating to read tweets from people who have no earthly idea what is going on in a situation and are being misled by a conflict entrepreneur but don’t know enough to know what they don’t know.
2. Because these folks are often in a bubble of their own making, they can’t get any outside info to learn more and debunk what they think they know, although even if that info is made available to them, they wouldn’t believe it.
3. Also fascinating how these conflict entrepreneurs can get into a toxic feedback loop with their followers/enablers. Their falsehoods are supported by the people who believe them and don’t know better and keep telling them to keep going on the basis of the false info.
Read 6 tweets
3 Jul
1. This happened in the Wakefield/Reading area north of Boston. 11 arrested.

One of the men "told the trooper they were on their way to Maine from Rhode Island for "training.""

They are with Rise of the Moors.
riseofthemoors.org
2. They claim not to be sovereign citizens because "When we declare our nationality as Moorish Americans we are taking back the position as the aboriginal people of the land, to which the sovereign power is vested in."

riseofthemoors.org/faq.html
archive.ph/wyv2k ImageImage
3. Like sovereign citizens, they don't pay taxes.

riseofthemoors.org/faq.html
archive.ph/wyv2k Image
Read 45 tweets
2 Jul
People like to make pronouncements about the death of journalism, especially local journalism which is struggling. But the team at @EastIDNews news proves that it's still possible to be a trusted source of news in your community. Happy anniversary and thanks for all you do! 🥳
@EastIDNews Most of what I watch on @EastIDNews is their coverage of the Vallow Daybell case but I also discovered the joy of their Feel Good Friday and Secret Santa segments.

Read 4 tweets
1 Jul
Hospital hold music loops need to be longer. Much longer. 🎶

Currently listening to what sounds like 80s uptempo smooth listening with numerous synth hooks. It’s actually not that bad but I’ve been on hold for several minutes and I think I’ve heard it in full 6+ times.
Update: It loops every minute and 3 seconds.

This is actually longer than some other hospital hold music I have to listen to regularly.
Well, spent 80 minutes on the phone with an assistant who is the only person who has tried to really help me in her department with an issue I’ve been having since last week. Definitely going to be telling Patient Relations about how helpful she was. 💖
Read 4 tweets
30 Jun
1. Queer folks and the media will sometimes talk about the needs of “the queer community”, “the LGBTQ community” or “the trans community”.

But LGBTQ folks, like any identity group, don’t all want the same things.
2. The more radical are happy to call out others for not queering appropriately by their standards.
3. This is how you get a group of queer activists barring Minneapolis city councillor Andrea Jenkins from leaving the Taking Back Pride march for 2 hours until she signed their demands.

minnesotareformer.com/briefs/protest…
Read 50 tweets
29 Jun
1. A rant about the administrative burden of being chronically ill.

The most frustrating aspect of living with chronic illnesses are the people who treat you like you must just be hanging out resting in bed for fun or who imply that you’re lazy.
2. Today I spent the majority of the afternoon catching up on medical phone calls even though I should have been resting. But I don’t have an assistant so I have to make all these calls myself.
3. I made/received 25 calls from around noon to now. This wasn’t to 25 different offices. Some were redials due to bad connection or going through voicemail options trying to figure who the best person was to leave voicemail for.
Read 38 tweets

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