Continuing on our Sarcoma 🧵 More expert answers to your questions: Diagnostics

Q1: What are the different types of sarcoma?

There are many different types. Easiest to describe the division into bone, soft tissue and visceral sarcomas that involve organs.
There are overlaps in these groups!

The sarcoma name usually indicates the tissue or cell type the cancer most closely resembles.

But, it gets more complicated...not all sarcomas resemble recognisable cells, this is often the case with diagnosis in younger people.
Q2:Does one type of sarcoma have better outcomes?
Short answer-not really!

Some sarcomas are very resistant to the treatments we have readily available

Others respond very well to these treatments

While others may respond very well initially but can then become resistant later
Q3: Is there a genetic link? Can I pass sarcoma to my children or should my family be concerned about their own risk?

Genetics can cause an increased likelihood for family members getting cancer, but this is a small minority of cases and applies to all cancers.
It's always important to think about genetics, but there are times when it is more in focus like;

🔹unusually young age at diagnosis
🔹association with other clinical signs
🔹family history
Q4. How long does it usually take to make a diagnosis?

If it is a straightforward, it can be as quick as 24 hours to confirm a diagnosis

However, as we increasingly recognise the importance of tumour genetics- some of these tests can take weeks to complete and receive results
Q5. What is the best scan to diagnose a sarcoma? How big does sarcoma need to be before you can see it on a scan?

MRI is the best way to see soft tissue sarcoma

MRI is not used on it's own to make a diagnosis
We use MRI more-so to see tumour size and it's location + effect on other normal body structures

Tumours as small as a few millimeters are visible on MRI, but sarcomas are usually a few centimeters before they're noticed by patients.
Some more answers coming tomorrow to wrap up our #July #SarcomaAwareness campaign! Thanks to all who sent in questions😀
#ayacsm #sarcomaawarenessmonth #AYAcancer @IrishSarcoma @SarcomaIreland @Sarcoma_UK @IrishCancerSoc @AYA_Cancer_IE

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More from @AYA_Cancer_IE

29 Jul
We are wrapping up our #SarcomaAwareness campaign. Thanks to all who sent in questions and to the experts who took time to answer them 🌻

Today we are looking at questions often posed at the time of diagnosis.

Q1. What are the most common treatment options for sarcoma?
This depends on
🔹The stage of the cancer (if it has spread and to what body parts)
🔹The grade (how quickly the cancer cells grow)
🔹The particular type of sarcoma

Surgery alone will remove the cancer and surrounding margins
Radiotherapy is often used before surgery or after surgery

Chemotherapy is often used either before or after surgery

Sometimes surgery, radiation and chemotherapy are combined

Immunotherapy is not a standard of care currently for sarcoma treatment
Read 13 tweets
26 Jul
So begins our 🧵of #sarcoma info - we'll add to it this week. Thank you to our contributors, patient and healthcare provider alike.

Tonight - the MDT meeting - the multidisciplinary team meeting

#sarcoma #ayacsm #SarcomaAwarenessMonth 1/n
Q1: Is there MDT discussion for every sarcoma patient?

A1: Yes, ordinarily there is or should be. Occasionally, if an emergency decision has to be made, the patient will be discussed with other MDT members outside of the regular meeting.

2/n
Q2: Who attends the sarcoma MDT?
A2: Specialists in surgery, radiotherapy, chemotherapy & sarcoma nursing. Pathologists & radiologists also attend. Different doctors dial in to discuss their patients if needed.

3/n
Read 6 tweets
25 Mar
Here goes! Our first Twitter #journalclub. In this review, Yasmin, @RodTMitchell & Lane discuss fertility preservation in young people with haematological malignancies. They raise a number of really important points, and areas for further development. #AYACancerIE 1/2
Let's get started,
#Question1 what are the barriers to discussing fertility with a young patient who has been newly diagnosed with cancer?
Remember, answer in line & tag #AYACancerIE in your replies so we don't miss any! 2/2
Read 4 tweets

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