We are wrapping up our #SarcomaAwareness campaign. Thanks to all who sent in questions and to the experts who took time to answer them 🌻

Today we are looking at questions often posed at the time of diagnosis.

Q1. What are the most common treatment options for sarcoma?
This depends on
🔹The stage of the cancer (if it has spread and to what body parts)
🔹The grade (how quickly the cancer cells grow)
🔹The particular type of sarcoma

Surgery alone will remove the cancer and surrounding margins
Radiotherapy is often used before surgery or after surgery

Chemotherapy is often used either before or after surgery

Sometimes surgery, radiation and chemotherapy are combined

Immunotherapy is not a standard of care currently for sarcoma treatment
Q2. What are the most common side effects?

This varies greatly, depending on your prescribed treatment. Your team will discuss this in detail with you and help you to understand short and longer term side effects, methods to minimise these or if they can be avoided
Q3. Are there clinical trials?
Clinical trials are available that look at causes, diagnosis and treatments of sarcoma.

The main aim of a clinical trial of treatments, is to test to see if they are safe and effective.

This might improve survival chances.
There are no open trials in Ireland at the moment, and it can sometimes be difficult to access trials overseas.

Some studies are not open for those traveling from overseas, and accessing these treatments can be very expensive.
It is important to consider clinical trials and your team will discuss any trial options with you.

Q4. What are the goals of treatment?
Usually goals are to either
🔹Eradicate cancer and prevent its recurrence

🔹If it is not possible to eradicate- aiming to prolong survival, reduce or control the cancer growth, relieve symptoms of cancer and improve quality of life
Q5. Can I continue to exercise?
Short answer- yes!

Exercise and physical activity are an important part of cancer care.
Exercise and movement can help people thrive during and after treatment phases.
Some reports show that it can also improve quality of life and tolerance of treatment
It is important to discuss limits with your team and physiotherapist as certain activities may not be advised due to your treatment or in recovery from certain treatments
Q6. Will this affect my fertility?

Short answer- maybe!

Fertility can be decreased by radiation therapy that involves the ovaries or testes

Chemotherapy can negatively impact sperm and egg production
Fertility preservation is an essential aspect of patient care and should be discussed with every person at time of diagnosis

Fertility preservation options will differ for many different reasons and need to be discussed on an individual level.

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More from @AYA_Cancer_IE

28 Jul
Continuing on our Sarcoma 🧵 More expert answers to your questions: Diagnostics

Q1: What are the different types of sarcoma?

There are many different types. Easiest to describe the division into bone, soft tissue and visceral sarcomas that involve organs.
There are overlaps in these groups!

The sarcoma name usually indicates the tissue or cell type the cancer most closely resembles.

But, it gets more complicated...not all sarcomas resemble recognisable cells, this is often the case with diagnosis in younger people.
Q2:Does one type of sarcoma have better outcomes?
Short answer-not really!

Some sarcomas are very resistant to the treatments we have readily available

Others respond very well to these treatments

While others may respond very well initially but can then become resistant later
Read 9 tweets
26 Jul
So begins our 🧵of #sarcoma info - we'll add to it this week. Thank you to our contributors, patient and healthcare provider alike.

Tonight - the MDT meeting - the multidisciplinary team meeting

#sarcoma #ayacsm #SarcomaAwarenessMonth 1/n
Q1: Is there MDT discussion for every sarcoma patient?

A1: Yes, ordinarily there is or should be. Occasionally, if an emergency decision has to be made, the patient will be discussed with other MDT members outside of the regular meeting.

2/n
Q2: Who attends the sarcoma MDT?
A2: Specialists in surgery, radiotherapy, chemotherapy & sarcoma nursing. Pathologists & radiologists also attend. Different doctors dial in to discuss their patients if needed.

3/n
Read 6 tweets
25 Mar
Here goes! Our first Twitter #journalclub. In this review, Yasmin, @RodTMitchell & Lane discuss fertility preservation in young people with haematological malignancies. They raise a number of really important points, and areas for further development. #AYACancerIE 1/2
Let's get started,
#Question1 what are the barriers to discussing fertility with a young patient who has been newly diagnosed with cancer?
Remember, answer in line & tag #AYACancerIE in your replies so we don't miss any! 2/2
Read 4 tweets

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