The #sicknotugly trope is a bit problematic, but you probably get my gist. Just because we are chronically ill doesn't mean that we have to look haggardly or wretched.
And here's where the ableism creeps in. If ppl with chronic illness are inherently haggard/wretched/assumed to be all the bad things, how might those assumptions impact their...
...job prospects, dating prospects, etc. Or better yet, our self worth? Ableism is layered. Not only does it impact interpersonal situations, but structurally it can be devastating.
If I can't obtain gainful employment (because of assumptions about ppl with chronic disease/disabilities), how can I afford housing, food, etc.?
• • •
Missing some Tweet in this thread? You can try to
force a refresh
No disrespect to anyone who embraces it, but I've always shied away from the "I have MS, but MS doesn't have me" statement. I prefer "I have MS, but MS IS NOT ME". There's a qualitative difference, I think.
I mean, one look at my lesion ravaged MRIs, and the accessories of my MS that adorn my space (mobility aids, reachers, etc.), and it's clear that MS has me. However...
...I refuse to be defined by my MS. I am NOT my MS. It's a part of my identity, but I am a whole person. MS dictates a lot, but doesn't define who I am.
Wanted to share more of my journey & invite you to share yours. Early in my #MultipleSclerosis diagnosis,looked for local support groups. MS Society. All->Travel, Arrangements, Drug Ad Sponsors,Adherence Guidelines. I wanted none of that. Others desperately Needed that. It’s OK.
Each of Individuals is Our Own Person.
Genetics
Health
Nutrition
Socialization
Activity
Purpose
Love
Preferences
Dislikes
Distastes
Predjudice
Greed
So much more. #MultipleSclerosis
Of All the People You will Judge in your Lives,
I am sure,
At the end of the night,
Every Person Judges themselves harshest
Should’ve, Would’ve Done that, but for….
I questioned every source, searching for answers for 12 years waiting.
Now people wait a day to hear the results.
Time for some career chat (a thread again) - I still work full-time and I hope that this crisis shows that with the right adjustments I can continue to do so even if travelling to the/an office every day becomes unfeasible...
I have a PhD in Civil & Environmental Engineering (2013) and have worked in Geoscience Research for the British Geological Survey (2013-2014) and Heriot-Watt University (2015-2018) before changing career to Researcher Development in Nov 2018...
I was diagnosed with RRMS in Nov 2016 - half way through my first postdoc (fixed-term contract), 1 month after my 10 year anniversary with my partner and just as we were making some life-plans...
Good Morning Shift MS followers! First cup of coffee, peruse Twitter. Check Email, then do a little @FishdomOfficial or Clockmaker. That match 3 thing...ding 🔔 ding🔔 prize 🥳 Try out new headphones 🎧 listening to political shows Fred gets weary of, Glatopa shot,Meds,breakfast
How’s your morning going/gone?
Do you wake up too, doing a Neuro self exam?
Right leg ✅
Left leg ❌ wait, wiggle it around, ok 👌🏽✅
You know the drill.
Eyesight, balance, strength.
Sleep evaluation...not long enough or deep enough.
Pain? Don’t get me started 🤦♀️
I want to make this weekend twitter takeover something to remember. I want you to see the power of churning minds,
Together. ShiftMS is indeed a constant friend to me and the greater Multiple Sclerosis Community. Together, we individuals sing 🎤 the same songs. Come,Sing Along.