I'm going to type out the questions here, to show you how many people they are missing (and how pathologizing this is).
1. Does your child look at you when you call his/her name? 2. How easy is it for you to get eye contact with your child?
3. When your child is playing alone, does s/he line objects up? 4. Can other people easily understand your child’s speech? 5. Does your child point to indicate that s/he wants something (e.g. a toy that is out of reach)
6. Does your child point to share interest with you (e.g. pointing at an interesting sight)? 7. How long can your child’s interest be maintained by a spinning object (e.g. washing machine, electric fan, toy car wheels)? 8. How many words can your child say?
9. Does your child pretend (e.g. care for dolls, talk on a toy phone)? 10. Does your child follow where you’re looking? 11. How often does your child sniff or lick unusual objects? 12. Does your child place your hand on an object when s/he wants you to use it
(e.g. on a door handle when s/he wants you to open the door, on a toy when s/he wants you to activate it)? 13. Does your child walk on tiptoe? 14. How easy is it for your child to adapt when his/her routine changes or when things are out of their usual place?
15. If you or someone else in the family is visibly upset, does your child show signs ofwanting to comfort them? (e.g. stroking their hair, hugging them)? 16. Does your child do the same thing over and over again
(e.g. running the tap, turning the light switch on and off, opening and closing doors)? 17. Would you describe your child’s first words as: (options: very typical/quite typical/slightly unusual/very unusual/my child doesn't speak)
18. Does your child echo things s/he hears (e.g. things that you say, lines from songs or movies, sounds)? 19. Does your child use simple gestures (e.g. wave goodbye)? 20. Does your child make unusual finger movements near his/her eyes?
21. Does your child spontaneously look at your face to check your reaction when faced with something unfamiliar? 22. How long can your child’s interest be maintained by just one or two objects? 23. Does your child twiddle objects repetitively (e.g. pieces of string)?
24. Does your child seem oversensitive to noise? 25. Does your child stare at nothing with no apparent purpose?
[end of checklist]
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One of the most interesting things to me is how being gay was seen (even by gay people themselves) as a "behavior."
i.e. If you didn't "behave" in certain ways, you weren't gay.
1/
Being autistic is definitely still seen as a set of "behaviors." I think this is why even research perpetuates the myth that you can "grow out of autism,"
as if being "like neurotypicals," speaking, not stimming, and being compliant makes you "not autistic" anymore.
2/
Right after I typed that -
"I based being gay on my behavior, not my feelings. It was my behavior that made me gay, even though I still had feelings."
- person who used to be a leader that told people they could learn not to be gay
I moderated a facebook group for a while for parents, with a focus on autistic girls.
I had to leave that facebook group because of the transphobic statements made by parents.
I was called "too aggressive" from other mods when I responded to bigotry & told it wasn't bad.
The parents were essentially telling other parents that the autistic kid questioning their gender identity (which is what the post was about) that autistic children are "often just confused, especially autistic girls." So I responded to that.
Another parent said cis women are more important than nonbinary people and should be "able to be represented" (which just meant "we should be allowed to exclude trans and nonbinary people from conversations and assume people's genders). One even complained about puberty blockers.
Don't you know that all shapes have social and cognitive emotions,
It's like neurotypicals want to design experiments just to tell us we're "deficient" in whatever it is they decide. Apparently we should know that shapes have emotions and intentions just like humans! 1/2
I'm imagining if neurotypical people didn't find intentions and emotions in shapes, and autistic people did, we would still be found to be "deficient" and told we were "off in our own world" or something. 🙄 2/2
Okay this gets even worse.
They used parents of autistic kids as a control group?! (UA = unaffected)
"Although the UA may also have a genetic predisposition to ASD, unaffected, first-degree relatives have been observed to perform better on social cognition tasks" [cont]
3/
This one is about how neurotypical people have terrible social skills too and are also bad at figuring out someone's emotion with facial expressions, research shows it - neuroclastic.com/2019/05/14/aut…
2/5
Do you remember when some non-autistic researchers got a $5,000,000 grant to create robots to annoy autistic people and tell them what they're doing wrong, which was somehow supposed to help autistic people acquire employment? neuroclastic.com/2020/10/06/5-m…
3/5
I love how "measuring autism" using questionnaires from decades ago created by cis white neurotypical researchers, & created with cis white hetero boys who don't mask in mind..
is seen as objective. 😂
Do they know how bad the AQ is?
"I usually notice car number plates"
Here are a few other gems:
"I am fascinated by dates." (??)
"When I'm reading a story, I can easily imagine what the characters might look like." (HOW is this related?)
"I don't particularly enjoy reading fiction."
"I am not very good at remembering people's date of birth."
2/9
I bet you people have not updated these questions in their research with this questionnaire. I bet you people still use the old AQ.
And oh, look! Turns out they're not actually helpful!
I'm on the burnout chapter of "Laziness Does Not Exist" and uh..
oh..
oh no..
"they had also begun to see their work as meaningless. A pervasive sense of dejection and apathy had descended upon their lives, sapping the joy from everything they did." - by .@drdevonprice
I have not fully processed just how terrible (traumatized?) I have felt in the past year about my PhD project.. Not processed at all..
My advisor: *sets literally impossible expectations that even other faculty tell me are actually impossible*
Me: If I just try hard enough, I think I can do it.. It has to be possible, right?